Stage 4 “no cure without surgery”

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CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Stage 4 “no cure without surgery”

Postby CRguy » Thu Dec 24, 2020 1:42 am

stu wrote:Hi ,
I shared this once on here about ten years ago and it created a big debate about my mum being in denial and needing a reality check .
CRGuy had to come to my rescue back then ( different user name ) It was a bit of a shock for me at the time as I felt she was awash with reality checks .

As my best buddy Brownbagger here once said ..." Just one of the many fine services we provide ! :shock: :mrgreen: "

Seriously, VERY glad to have helped out here for you.
The CRC Journey can be an intimidating experience
and NOBODY should feel intimidated or unwelcome on this forum.

WORD !

Thanks for hanging in there stu
you are ALWAYS a supportive and positive member here !

MEGA BEST WISHES to you and you family
for Christmas and always
Cheers and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Stage 4 “no cure without surgery”

Postby ginabeewell » Mon Jan 11, 2021 2:56 pm

Today, I rang the bell!!!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Stage 4 “no cure without surgery”

Postby AmyG » Mon Jan 11, 2021 5:49 pm

Holy shit!!!!!

That's fantastic, I'm thrilled for you!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Stage 4 “no cure without surgery”

Postby claudine » Mon Jan 11, 2021 5:57 pm

Heck yeah! Way to start 2021 in style!!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Stage 4 “no cure without surgery”

Postby Gravelyguy » Mon Jan 11, 2021 9:53 pm

Way to go Gina!
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

Punky44
Posts: 498
Joined: Mon Oct 01, 2018 4:29 pm

Re: Stage 4 “no cure without surgery”

Postby Punky44 » Mon Jan 11, 2021 11:49 pm

Just getting caught up on this thread but I am inspired by your optimism and fighting attitude and then I am inspired again by all the awesome advice and reasoning to your question on this thread.

What a great group of people here.

Happy you rang in the new year!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0; 3.4; 3.1; 3.4; 3.0; 3.1; 2.6
Latest update: 8/21/23 Clear CT with CEA 2.6!

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Siti
Posts: 269
Joined: Thu Aug 01, 2019 10:58 am

Re: Stage 4 “no cure without surgery”

Postby Siti » Wed Jan 13, 2021 9:05 am

Optimism is half battle won! You’ve been an inspiration to many and don’t let anyone tell you otherwise. I’m happy you rang the bell!
DH (54) DX on 5/7/19
Sigmoid|G3|LN:30/31|MSS|WT KRAS, NRAS, BRAF
7/19 PET distant LN para-aorta neck hip (0.5-1.5cm)
7/19 Lap resection
26/8 to 20/12/19 CAPEOX+Bev 7x
6/11/19 CT 3 cycle LN shrunk
1/20 Cap+Bev
4/20 TS-1+Bev due to bad HFS
NED 4 years
8/23 PET recurrence chest LN growing since Feb. CEA May(4.5>5.1>5.9)
9/23 Stopped Bev, CEA Sept(8.7) Radio 17x
11/23 PET 1+ supraclavicular LN, CEA (3.4>2.5)
12/23 Lymphadenectomy
1/24 Narrow margins, 1/5 +LN, 1.4cm +tissue, TMB (19)

boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: Stage 4 “no cure without surgery”

Postby boxhill » Sat Jan 16, 2021 4:23 pm

Yippee!!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 “no cure without surgery”

Postby stu » Sat Jan 16, 2021 7:26 pm

Powerful.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .


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