Jess83 wrote:I’m starting FOLFOX on the 29/12 - any tips?
boxhill wrote:Well, that stinks. Of course, there have been a lot of advances since your first bout. Genetics, for one. Has your tumor been biopsied yet?
It sounds like you may be in for chemo this time, but can you have TEMS again?
Claudine wrote:My husband also had an adrenal met (left). After 18 rounds of Folfiri and Avastin, which shrank it by half, he had laparoscopic adrenalectomy last February. The surgeon was very happy, able to remove the whole thing cleanly. Recovery was quite smooth. Definitely something to look into!
kandj wrote:I am so sorry you have had to join the shitty Stage 4 group. My DH has also has a met on his adrenal gland. There are a few others here. His has been a pin to deal with. I highly suggest having it taken out surgically if that is an option for you. DH had his treated with ablation, that had to be stopped early due to irregular EKG readings. Then it came back, so he had radiation done on it. So far so good with that one. Had he not had several surgeries before hand I think they would have surgically removed it. I am sure lots of others will chime on on FOLFOX. It can be a rough go. I have only been on the caregiver side of things.
Has he noticed any changes due to its removal?
I was suffering from terrible anxiety for the past 6 months and was wondering if the tumor might have had something to do with it?
Nor Cal wrote:Jess83 wrote:I’m starting FOLFOX on the 29/12 - any tips?
I've been on FOLFOXIRI so not exactly the same, but the oxi is the hard one for me. You may want some gloves handy for reaching into the fridge for a couple days post chemo. If you're going home with the 5-FU party ball, make sure you shower day of chemo because you won't have the chance for a couple of days once you're hooked up. And if your taste buds start to go sour, I'd avoid you favorite foods as the chemo may ruin them for you. Oh, and you'll probably want over the counter meds ready for bowel issues.
The neuropathy is obviously the big worry, but I've found that exercising my fingers and toes regularly really helps.
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