1 year clear from stage IV

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Marie25
Posts: 40
Joined: Tue Aug 20, 2019 9:32 am

Re: 1 year clear from stage IV

Postby Marie25 » Sun Dec 13, 2020 8:12 pm

Wonderful news!
Supporter to my husband
Rectal adenocarcinoma
Folfox 8/2019
Short Course Radiation January 2020
Surgery January 2020
T3 N0 stage 2A
0/42 lymph nodes

Markdale
Posts: 17
Joined: Wed Dec 02, 2020 4:45 pm

Re: 1 year clear from stage IV

Postby Markdale » Sun Dec 13, 2020 10:45 pm

Great news Rob. I’m sure you’re enjoying being NED. We re all glad you posted, gives us hope.
How has your lifestyle changed? Are you more conscious of your diet, are you taking additional supplements?

Mark dale
09/20:Diagnosed after colonoscopy for bleeding.
MRI and ct scan confirmed tumor at rectosigmoid junction aswell as lung nodules in right lower lobe (1X1.2cm) and right upper lobe (3X.5cm)
10/20: low anterior resection tumour t3n2m1 4 lymph nodes positive of 24. No ileostomy.
11/20: pet scan showed low to moderate uptake of glucose.
11/20: began folfoxiri..
12/20: ct lung biopsy of lung nodule to confirm metastasis

Gravelyguy
Posts: 350
Joined: Thu Jul 05, 2018 6:03 pm

Re: 1 year clear from stage IV

Postby Gravelyguy » Wed Dec 16, 2020 10:18 pm

That is so awesome Rob! Thanks for sharing.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!

Rock_Robster
Posts: 533
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: 1 year clear from stage IV

Postby Rock_Robster » Fri Dec 18, 2020 8:48 pm

Markdale wrote:Great news Rob. I’m sure you’re enjoying being NED. We re all glad you posted, gives us hope.
How has your lifestyle changed? Are you more conscious of your diet, are you taking additional supplements?

Mark dale

Thanks Markdale! I take a laundry list of supplements and off-label drugs that I worked up with an integrative doctor here (happy to share if helpful), and my oncologist also has me doing intermittent fasting (16:8) and a cardio program as he believes both can potentially have great benefit for overall survival. I have a set of kettlebells that I look at often.

I went to a plant-based + seafood diet in Jan, but must admit I’ve been having chicken or red meat once every week or two lately now. The only things my doc summarily banned me from was smoking (which I never did anyway really), and processed meats (which I did enjoy a fair bit in the past). I try to drink less booze (mainly smaller amounts of red wine, when I do) and eat less sugar - but I’m definitely not a saint or depriving myself :). I think that’s about it!

Hope you’re doing well.
38M Australia
10/2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9, Jun-20=2.1, Sep-20: 2.1, Dec-20: 2.3
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic radiation; complete met. response
07/19 ULAR w ileo, 1/27 LN+
08/19 Found liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection
02/20 Ileo reversed
03/20 NED (CT/PET/MRI) - latest Dec 2020
07/20 Clear scope

Markdale
Posts: 17
Joined: Wed Dec 02, 2020 4:45 pm

Re: 1 year clear from stage IV

Postby Markdale » Sat Dec 19, 2020 6:13 am

That’s great rob, it’s so good to hear that people are having good outcomes after a stage 4 diagnosis. I’m doing well, Chemo hasn’t been as bad as bad as I thought it would be but Its still early in the treatment. I’ve been considering the fasting, but will need to wait till chemo is over. I’ve always exercised, will push harder after treatment.
Anyway great to hear it’s going well mate
09/20:Diagnosed after colonoscopy for bleeding.
MRI and ct scan confirmed tumor at rectosigmoid junction aswell as lung nodules in right lower lobe (1X1.2cm) and right upper lobe (3X.5cm)
10/20: low anterior resection tumour t3n2m1 4 lymph nodes positive of 24. No ileostomy.
11/20: pet scan showed low to moderate uptake of glucose.
11/20: began folfoxiri..
12/20: ct lung biopsy of lung nodule to confirm metastasis

shaina
Posts: 12
Joined: Mon Oct 12, 2020 11:11 am
Facebook Username: shaina.leskin

Re: 1 year clear from stage IV

Postby shaina » Tue Dec 29, 2020 8:40 am

Hi, Rob. I'm two years clear from Stage IV b with local mets. Hang on in there, you can be a survivor, too! Crying as I write this, as it's emotional to get through this whole procedure, and I have lots of follow-up PET scans etc. coming up. But wishing you much luck in continuing to survive.

Annmont
Posts: 7
Joined: Thu Jun 04, 2020 2:00 pm

Re: 1 year clear from stage IV

Postby Annmont » Tue Dec 29, 2020 11:36 am

I am so so happy for you!! My husband is in a very similar situation as you and this gives us so much hope!! Keep fighting and winning!!
DH diagnosed August 21, 2018 with colorectal cancer
6 weeks chemo/radiation
Surgery December 2018/ileo
4 Months Chemo pump
July 1, 2019 Ileo reversal
two clear scans then boom June 2020 mass in liver
Liver resection July 1, 2020, scheduled to start Xeloda

Siti
Posts: 190
Joined: Thu Aug 01, 2019 10:58 am

Re: 1 year clear from stage IV

Postby Siti » Wed Dec 30, 2020 7:28 pm

Congrats Rob! Nice hearing the good news and very happy you’re well. My husband too is around 1 year clear, but since we never really got an official date of his NED status, it’s around this time November to early December last year 2019. I’ll continue to pray for everyone’s good health :)
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.


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