1 year clear from stage IV

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Rock_Robster
Posts: 529
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

1 year clear from stage IV

Postby Rock_Robster » Wed Dec 09, 2020 3:23 am

Hi all,

I wasn’t going to post anything for this, but I remembered how much hope posts like this gave me when I was starting out. I used to screencap them and save them in my favourites to read when I was feeling hopeless.

Well, yesterday I got the news that my 1 year CT scan was all clear. This follows a year of CTs, PETs, MRIs and scopes, after my 2nd liver resection in Dec 2019 (the final step in 14 months of treatment for stage IV rectal cancer with liver mets, other than my ileostomy reversal in Feb this year). I know 1 year is still early days in cancer terms, but I’m pretty damn grateful to be where I am - and you can’t get to 5 years (and beyond) without going through the others first!

Hope you guys are doing well out there. Best of luck.

Rob
Last edited by Rock_Robster on Wed Dec 09, 2020 5:00 am, edited 1 time in total.
38M Australia
10/2018 Dx RC, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9, Jun-20=2.1, Sep-20: 2.1, Dec-20: 2.3
11/18 FOLFOX x6
3/19 Liver resection
5/19 25x pelvic radiation; complete met. response
07/19 ULAR w ileo, 1/27 LN+
08/19 Found liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resection
02/20 Ileo reversed
03/20 NED (CT/PET/MRI) - latest Dec 2020
07/20 Clear scope

stu
Posts: 1429
Joined: Sat Aug 17, 2013 5:46 pm

Re: 1 year clear from stage IV

Postby stu » Wed Dec 09, 2020 4:00 am

Good on you . Fantastic that you posted this . It’s the hope others set their eyes on to drag them through those very difficult early days .

I do it every year at some point .

Wishing you many , many more to come .
Have a great time celebrating, you did all the hard work to arrive here.
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

DarknessEmbraced
Posts: 3545
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 1 year clear from stage IV

Postby DarknessEmbraced » Wed Dec 09, 2020 11:31 am

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Koreysue
Posts: 197
Joined: Mon Apr 30, 2018 2:36 pm

Re: 1 year clear from stage IV

Postby Koreysue » Wed Dec 09, 2020 2:36 pm

Awesome! Congrats!
Love that you shared. As Stu said, it’s the hope we all seek and NEED at various points in this process.
Ksue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6.1
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5 (happy to see a lower number)

Ehut
Posts: 230
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: 1 year clear from stage IV

Postby Ehut » Wed Dec 09, 2020 5:11 pm

Congratulations! I remember the anxiety for every CT scan that slowly eased after each one. I hope you continue to get good reports and join the long term survivor club!
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 8+ years and counting!

Punky44
Posts: 464
Joined: Mon Oct 01, 2018 4:29 pm

Re: 1 year clear from stage IV

Postby Punky44 » Wed Dec 09, 2020 6:29 pm

Woo woo!! Congrats!
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4; 3.0
Latest update: 12/17/20: Clear CT; CEA 3.0

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

AmyG
Posts: 358
Joined: Tue Dec 25, 2018 8:08 pm

Re: 1 year clear from stage IV

Postby AmyG » Wed Dec 09, 2020 7:45 pm

Rob!!

I'm right there with you buddy! Last chemo was 12/23 of last year. Nothing but clear ct scans, scopes and labs for me. They were worried I have something in my chest but it's assumed to be thymic rebound.

I was told that if my scans and labs are clear in March I can move to 6 month appointments and will be considered cured at the 5 year mark. :shock:

I'm glad we're both still here.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

User avatar
Green Tea
Posts: 292
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: 1 year clear from stage IV

Postby Green Tea » Wed Dec 09, 2020 11:48 pm

Rob -
Congratulations! And thank you for taking the time to share your important milestone.

User avatar
GrouseMan
Posts: 845
Joined: Mon Aug 12, 2013 12:30 pm
Location: SE Michigan USA

Re: 1 year clear from stage IV

Postby GrouseMan » Thu Dec 10, 2020 11:47 am

Congratulations :!: :!: :!: Good news is good news and should be celebrated.

GrouseMan
DW 53 dx Jun 2013
CT mets Liver Spleen lung. IVb CEA~110
Jul 2013 Sig Resct
8/13 FolFox,Avastin 12Tx mild sfx, Ongoing 5-FU Avastin every 3 wks.
CEA: good marker
7/7/14 CT Can't see the spleen Mets.
8/16/15 CEA Up, CT new abdominal mets. Iri, 5-FU, Avastin every 2 wks.
1/16 Iri, Erbitux and likely Avastin (Trial) CEA going >.
1/17 CEA up again dropped from Trial, Mets growth 4-6 mm in abdomen
5/2/17 Failed second trial, Hospitalized 15 days 5/11. Home Hospice 5/26, at peace 6/4/2017

User avatar
CRguy
Posts: 10264
Joined: Sun Feb 10, 2008 6:00 pm

Re: 1 year clear from stage IV

Postby CRguy » Thu Dec 10, 2020 3:14 pm

Yes major congrats Rob

calls for a happy dance !!!

Cheers
CRguy


Image
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: 1 year clear from stage IV

Postby Lee » Thu Dec 10, 2020 6:26 pm

Congratulation!!!

May you always reside in NEDville.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
horizon
Posts: 1593
Joined: Tue Apr 12, 2011 10:10 pm

Re: 1 year clear from stage IV

Postby horizon » Fri Dec 11, 2020 12:36 pm

Heck yeah post it. Big congrats!!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

User avatar
beach sunrise
Posts: 356
Joined: Thu Mar 05, 2020 7:14 pm

Re: 1 year clear from stage IV

Postby beach sunrise » Fri Dec 11, 2020 11:52 pm

I so love love this post!!! I hope you are celebrating BIG!!! Congrats!!!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug. Adding Everolimus soon.
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

boxhill
Posts: 662
Joined: Fri Apr 06, 2018 11:40 am

Re: 1 year clear from stage IV

Postby boxhill » Sat Dec 12, 2020 10:14 am

Hurray for Nedville!

Glad to hear your news too, Amy.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

User avatar
Atoq
Posts: 390
Joined: Wed Oct 25, 2017 9:31 am

Re: 1 year clear from stage IV

Postby Atoq » Sat Dec 12, 2020 4:20 pm

Fantastic news!! Congratulations! :D

Best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED
29.11.20 CAT, NED


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