Hey Mark, ok, makes sense. Given you’re in Melbourne I can perhaps be a bit more help now.
Sounds like you’ve had good care there at Dandenong. But if you’re considering looking further (noting Dandy don’t seem to have a dedicated thoracic service), given your staging (like mine), I’d strongly recommend getting into the Victorian Comprehensive Cancer Centre (VCCC) alliance of hospitals, and seeing some of the more senior staff there. My A-Team would be:
Private: Prof Peter Gibbs (Melbourne Private, Western Health; research division head at WEHI). Both my onc and a genius
Public: A/Prof Jeanne Tie (Peter Mac, Western Health)
Mr Phillip Antippa (Peter Mac; RMH - head of the lung tumour stream)
SABR/SBRT: A/Prof Shankar Siva (Peter Mac, Epworth - head of the SABR practice)
Other: Prof Trevor Leong (head of radiation oncology)
On the other stuff, the rate of CRC in under-50s is steadily rising, and no idea why. If you’d like to contribute to research, just contact Prof. Ingrid Winship at Royal Melbourne Hospital / Melb Uni and sign up for the ANGELS study into early-onset colorectal cancer.
Also there’s a lot of selection bias here - as mentioned this group tends to be more aggressive toward treatment, and being a web forum is naturally going to be younger on average.
Keep in touch!