9 year stage IV cancerversary

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Ehut
Posts: 230
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

9 year stage IV cancerversary

Postby Ehut » Tue Dec 01, 2020 11:31 pm

I usually post for my annual cancerversary, so here is this year's post. It's been 9 years since that fateful day (12/1/11). I remember the flurry of activity for testing, staging, scans, and treatment in late 2011 and most of 2012. I was well aware of the long term survival statistics at the time, and prayed that I would be one of the few fortunate ones. I guess still being here 9 years later and NED is testament that the prayers were answered. My life has been more or less "normal" for the last 8 years and I think less and less about the journey as time goes by, but it will always be a part of me. Hopefully my story gives hope to someone out there.

Blessings,
Dave
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 8+ years and counting!

Koreysue
Posts: 197
Joined: Mon Apr 30, 2018 2:36 pm

Re: 9 year stage IV cancerversary

Postby Koreysue » Wed Dec 02, 2020 12:34 am

THANK YOU for taking the time to log on and share this. It means so much.
Ksue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6.1
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5 (happy to see a lower number)

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CRguy
Posts: 10267
Joined: Sun Feb 10, 2008 6:00 pm

Re: 9 year stage IV cancerversary

Postby CRguy » Wed Dec 02, 2020 2:29 pm

Continued best wishes !

Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
14 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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beach sunrise
Posts: 369
Joined: Thu Mar 05, 2020 7:14 pm

Re: 9 year stage IV cancerversary

Postby beach sunrise » Wed Dec 02, 2020 2:48 pm

The stories of hope is where its at!
Thank you!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug. Adding Everolimus soon.
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

kiwiinoz
Posts: 1155
Joined: Thu Jan 03, 2013 11:44 pm

Re: 9 year stage IV cancerversary

Postby kiwiinoz » Thu Dec 03, 2020 8:02 pm

Keep on keeping on Dave, you gave me hope when I first joined too.
Stage IV Rectal Cancer (39 Year old male at dx)
pT3N0M1 (wish that was M0)
Diagnosed 05 Dec 2012
LAR 05 Jan 2013
VATS 27 Feb 2013
FOLOFX April 2013 - Sep 2013
Clear Scan 03 Dec 2013 - 22 May 2019
Port Out 26 March 2015

DarknessEmbraced
Posts: 3553
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: 9 year stage IV cancerversary

Postby DarknessEmbraced » Fri Dec 04, 2020 12:59 pm

Congratulations! That's wonderful! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Gravelyguy
Posts: 350
Joined: Thu Jul 05, 2018 6:03 pm

Re: 9 year stage IV cancerversary

Postby Gravelyguy » Fri Dec 04, 2020 3:59 pm

Awesome Ehut. Thanks for sharing!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!

DBF
Posts: 323
Joined: Fri Jun 07, 2013 1:44 pm
Facebook Username: https://www.facebook.com/#!/profile.php?id=1000008
Location: New York

Re: 9 year stage IV cancerversary

Postby DBF » Fri Dec 04, 2020 9:15 pm

Congrats!! So happy to see your post.
All the best,
Donna
6/13 Dx @ 29 Wks pregnant, 42 yo
Adenocarcinoma, mucinous
7/13 C-sec/col resec/part. hysterectomy
8/13 Pulm embolism
8/13 Spread to liver
9/13 Liver resection
FOLFOX
CEA UP
ADAPT: Xeloda/Celebrex
2/14 oopherectomy
10/15 obstruction surg
10/17 Scar tissue removal/vsg surg
2019: NED :D
2020: NED
Mom to 3 boys: 22, 11 & 7

prayingforccr
Posts: 70
Joined: Sun Jun 28, 2020 4:44 pm

Re: 9 year stage IV cancerversary

Postby prayingforccr » Sun Dec 06, 2020 11:05 am

Fantastic!!!
Nov 2019: colonoscopy
Dec 2019: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2020: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2020: sigmoidosvopy confirmed tumor/scar 3.7cm with significant tumor necrosis but some persistent disease
July 2020: began 8 treatmentsFOLFOX
August 2020: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2020: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.

boxhill
Posts: 673
Joined: Fri Apr 06, 2018 11:40 am

Re: 9 year stage IV cancerversary

Postby boxhill » Mon Dec 07, 2020 7:56 pm

As a fellow Stage IV diagnosee, I'm so happy to see you post here!

I'm currently NED due to Keytruda, but I assume that your survival is not due to immunotherapy? I know I'm among a lucky minority these days, and hope to see it extended to those who are not MSI-H.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

Siti
Posts: 190
Joined: Thu Aug 01, 2019 10:58 am

Re: 9 year stage IV cancerversary

Postby Siti » Wed Dec 30, 2020 7:43 pm

Thank you Dave! You’re an inspiration to many of us :)
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

mymom
Posts: 1288
Joined: Fri Aug 12, 2011 11:07 pm
Location: Connecticut

Re: 9 year stage IV cancerversary

Postby mymom » Tue Feb 02, 2021 10:06 pm

Congratulations!
Stage 4 CC DX 5/11
colon/livr rsct 5/11(1 met)
Folfox July-11/11
NED to 5/12
New Primry BC-4/12,Stage 1
2 livermet 5/2012
Liver rsct,HAI 6/12,Folfiri
NED to 10/13,1 liver met,ablation, Folfiri
NED to 12/14, another spot
3/15 NED
Ablation 1 liver met 10/15
1/16-current NED


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