boxhill wrote:prayingforccr, at this point I think that everyone knows how you feel, and it is less than helpful to tell someone bravely soldiering on that you would RATHER BE DEAD than be them! Could I kindly request that you put a sock in it?
Rickimaroo, I'm sorry that I have no experience to share with you. Would a medication like GasX possibly help?
prayingforccr wrote:Rikimaroo wrote:For those with Colostomies, not iloeostomies, do you get recurrent once a week gas pains that are painful and just discomforting? I think what happens to me if I don't go for the whole day, the same day i get whirring noises in my stomach and I know its gas, because I feel like it farts or releases inside my body but stays in there and don't come out of the ostomy. Eventually it comes out and if I lie on my side it comes out, but not enough to release the pains. I want to know if there is a regular routine I should do it keep them gas pains away. I have avoided things that cause gas, but unfortunately can't avoid everything, but sometimes I don't know the cause.
I take tea oregano at night recently started, to see if it will help. I think its help a little as the pains are not incredible like they were. It just puts me in groggy mood.
Any recommendations?
Thanks
Riki
This helps to solidify my position to end my life via an exit bag rather than have a surgery that leaves me with a colostomy.
Lee wrote:boxhill wrote:prayingforccr, at this point I think that everyone knows how you feel, and it is less than helpful to tell someone bravely soldiering on that you would RATHER BE DEAD than be them! Could I kindly request that you put a sock in it?
Rickimaroo, I'm sorry that I have no experience to share with you. Would a medication like GasX possibly help?
THANK YOU boxhill!, Could not have said it better!!
Riki no pain, sometimes gas, butt not pain. Could there be a bit of obstruction going on? Are you still on any kind of chemo? I too would recommend walking, nothing serious, light walk once around the block. Or inside your house depending on the weather. Can you see an ostomy nurse?
Also keep a food journal, maybe some food is causing this.
This was many years ago. I was about 2 weeks out from my 2004 surgery, my 11 yr old daughter had a friend sleeping over. I SUDDENLY passed the biggest fart/gas on the planet out my stoma . Daughter looks at me mortified, I'm sure see wanted to crawl into some hole. Her friend looked at me, what was that .
I reminded daughter's friend, I had surgery 2 weeks ago. guess passing gas is a good thing, part of my recovery. I followed up, to be honest, if my surgeon had heard that, she would have been proud of that one. I reminded her it could happen again. Daughter's friend was like that's okay, I remember my dad passing a lot of gas following his shoulder surgery. Doesn't bother me.
I looked at my daughter, order had been restored in her universe.
Have you checked out UOAA? United Ostomy Association of America. Here is there web site
https://www.uoaa.org/forum/viewforum.php?f=2
If not, you might want to check it out.
Good luck, Lee
prayingforccr wrote:This helps to solidify my position to end my life via an exit bag rather than have a surgery that leaves me with a colostomy.
Rikimaroo wrote:
I wouldn't doubt that there is possible obstruction for the pain to be there, i am not running to doc for obstructions, i have enough of the doctors to be honest LOL...I feel like a human guinea pig. The gas usually follows if I don't poo for a day. It's been better, I am going to look into beano. Believe me I love when my ostomy farts, it feels like relief that gas is passing and I won't worry about stuck gas. I have made massive farts too and my daughters look and me and like Daddy, same old Daddy LOL, only now I can't control it. haha
I have been on UOAA and hard to find gas related pain with ostomy, so I bet its obstruction and the pain of it going through my intestines. I just have to figure out the right remedy to relieve it before it gets to that, like the tea drinking, lots of water etc...I really appreciate everyone's feed back.
I worry about Prayingforccr, because life doesn't have to end because of an ostomy. I remember when I was first told about getting an ostomy because of surgery and it was so taboo to me, I was very scared and didn't do surgery, now I think I am in a worse position because of that thought process, i might of been done with all of this if I just listened to my doctors. Anyways, ileo or colo ostomy have been a real breeze to be honest. Once you get the swing of things, its not bad at all and very easily concealable.
I also agree food is the major factor in this. I now know I can't eat onions sadly, I love onions, but your typical gassy foods, cabbage, broccoli, onions, beans etc...I have to avoid. Carbonated beverages avoid, I don't usually drink it anyways, but once in a while I indulge and no gas pain sometimes, it really depends, but onions I notice is a trigger.
Thanks for all the advice. We are family here!!
Best
Riki
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