Recommended Supplements?

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ranhanssen
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Recommended Supplements?

Postby ranhanssen » Sat Nov 21, 2020 12:04 am

Hi All -

I'm hoping to learn about what supplements others are taking. What do you recommend taking and where do you source them from / what name brand is reliable? I'm new to all of this so just trying to order up so I can start taking at least a few!

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beach sunrise
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Re: Recommended Supplements?

Postby beach sunrise » Sat Nov 21, 2020 10:31 am

Good morning, I would say get with a naturopath to find out what you really need. For starters there are two things that might help keep your immune system strong which is very important in this fight until you can get with an ND. They are: Turkey Tail Mushroom (I am currently taking RealMushroom brand), the hot water extracted and a high quality Beta Glucan (I take the immunodyne kind made by LCI company).
Last edited by beach sunrise on Sat Nov 21, 2020 12:55 pm, edited 1 time in total.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

utahgal7
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Re: Recommended Supplements?

Postby utahgal7 » Sat Nov 21, 2020 11:33 am

Hi,

I think that adequate folate level and adequate vitamin d level is important. I would echo what beach sunrise said about Turkey Tail mushroom. Also, I have read that reishi mushroom is good for immune system. In addition, I think it could be important to suppress inflammation in the body, a bioavailable turmeric supplement could help with inflammation.

As far as supplement brands, I've been told that Life Extension supplements are really good. However, they are expensive. Gaia Herbs were recommended as well.

Of course you would want to discuss with your doctor or other health professional before using supplements. I know some doctors are against supplements, so good luck with that.
02/20 Rectal Cancer Diagnosis
03/20 CEA 2.7 ST Radiation - 25Gy over 5 days
04/20 LAR surgery w/ ileostomy (6 lymph nodes retrieved, 1 node positive for cancer)
04/20 T3N1M0; MSS
05/20 CAPEOX (had to discontinue because Oxaliplatin caused temporary blindness in left eye)
06/20 CEA 0.9
08/20 Ileostomy reversal
09/20 CEA 1.4, CT chest/abdomen/pelvis; suspicious areas in liver
10/20 MRI liver; dx hemangioma

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beach sunrise
Posts: 298
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Re: Recommended Supplements?

Postby beach sunrise » Sat Nov 21, 2020 11:44 am

Yes, inflammation is one driver of cancer. Tumeric is potent at least 800mg caps taking 4 caps 2hrs apart TID.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

Koreysue
Posts: 183
Joined: Mon Apr 30, 2018 2:36 pm

Re: Recommended Supplements?

Postby Koreysue » Sat Nov 21, 2020 9:45 pm

I agree with the above comments to try to see a naturopath for dosing, brands ect. I saw a naturopathic oncologist alongside my regular oncologist.
I take tumeric, broccoli sprouts, vit D, and a mushroom trio
Ksue
Diagnosed: June 2017 stage 3 colon cancer
Sigmoid colon, 2 nodes affected
CEA at diagnosis: 6
Sigmoid Colectomy and folfox (chemo complete January 31, 2018)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/2018 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/2019 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)

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Green Tea
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Re: Recommended Supplements?

Postby Green Tea » Sat Nov 21, 2020 11:42 pm

For supplements, I think it is important to specify the purpose for which you want to take supplements. There are supplements for all kinds of conditions, for example, for insomnia, for arthritis, for low energy level, for stress, for vitamin deficiency, for mental alertness, etc. You need to clearly specify why you would like to start taking supplements. A Naturopath Doctor (ND) would be able to help clarify things and put everything in perspective for you.

Every day I take about half a dozen supplements, but none of them are for cancer, per se. If I were to give my list of supplements, it wouldn't do much good unless I also mentioned why I am taking these supplements.

Also if you are starting to add supplements to your list of meds, either you or your doctor will need to check whether or not these are compatible with whatever else you are already taking. This includes both drugs/supplements and foods/beverages.

https://reference.medscape.com/drug-interactionchecker

zephyr
Posts: 297
Joined: Thu Aug 18, 2016 7:31 am

Re: Recommended Supplements?

Postby zephyr » Sun Nov 22, 2020 4:21 pm

Green Tea wrote:... if you are starting to add supplements to your list of meds, either you or your doctor will need to check whether or not these are compatible with whatever else you are already taking. This includes both drugs/supplements and foods/beverages.


Excellent point and, as other have also mentioned, seeing an ND or an Integrative Medicine doc is really important. You can't rely on what others are doing because everyone is different - their cancer is different, their medical history is different, their treatment, etc. You don't want to risk sabotaging your treatment. I'll give you an example that actually happened to me. Green tea (the tea, not the poster above :wink: ) is amazingly helpful for good health. There are lots of studies that back up that statement. However, if irinotecan is part of your treatment, green tea can result in increased toxicity. If you happen to be on iron supplements, green tea can reduce bioavailability. You really need to see someone who can look at the big picture and make recommendations. That said, MSK has an excellent site called About Herbs that is very helpful if you want information about specific herbs/supplements, and it often includes "Do Not Take If" and/or "Herb-Drug Interactions" sections.

https://www.mskcc.org/cancer-care/integrative-medicine/herbs/green-tea?msk_autocomplete_search_query_suggestions%5Bquery%5D=magnesium

If you can't find a naturopathic doc, preferably one certified in oncology, or an Integrative Medicine doc in your area or if you just don't feel comfortable going in, for whatever reason, you may want to consider joining Life Extensions and scheduling a consultation with one of their Wellness Specialists. I think you need to be a member to use the consult program, but I might be wrong. The membership is $50/yr and you get $50 in credit to apply to purchases. Maybe call first to make sure the Wellness consult program can still give you the guidance you need. It used to be that their Wellness Specialists were naturopathic docs. I wanted to see what the program was all about a few years ago so I scheduled a consult even though I was under the care of a naturopathic oncologist. They recommended pretty much the same protocol as my N.D.

https://www.lifeextension.com/about/wellness-specialists

I hope this helps.
Nov-2009 Early stage CRC found during routine colonoscopy
2010, 2011, 2014 Follow up colonoscopies, all clear
Jun-2016 CRC found during routine follow up colonoscopy, surgery, Stage 4, KRAS, MSS, inoperable lung mets
Aug-2016-May-2018 Folfox, 5FU & Avastin, 5FU, Folfiri & Cyramza
Aug/Sep-2018 YAG laser surgeries (Germany) on both lungs, 11 nodules (9 mets) removed
Nov-2018 clean CT scan
Mar-2019 New lung nodules
Apr-2019 - ? Xeloda/Avastin, SBRT, continue Xeloda/Avastin

prayingforccr
Posts: 54
Joined: Sun Jun 28, 2020 4:44 pm

Re: Recommended Supplements?

Postby prayingforccr » Tue Nov 24, 2020 8:27 am

Maybe research the Joe Tippens Protocol:

I. Protocol
a. Tocotrienol and Tocopherol forms (all 8) of Vitamin E (400-800mg per day, 7 days a week). A product called Gamma E by Life Extension or Perfect E are both great.
b. Bio-Available Curcumin (600mg per day, 2 pills per day 7 days a week). A product called Theracurmin HP by Integrative Therapeutics is bioavailable.
c. CBD oil (1-2 droppers full [equal to 25mg per day] under the tongue, 7 days a week)
d. Panacur C, The above three items every day (7 days per week) and the canine medicine
(1 GRAM PER DAY FOR 3 CONSECUTIVE DAYS) per week. Take 4 days off and repeat each week. Each gram of Panacur C has approximately 222 mg of Fenbendazole, in case you are trying a different branded product
Nov 2020: colonoscopy
Dec 2020: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2021: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2021: anoscopy confirmed tumor/scar 3.7cm with significant tumor necrosis but some persistent disease
July 2021: began 8 treatmentsFOLFOX
August 2021: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2021: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy scheduled first week of december.


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