Please help.

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gigglepress
Posts: 1
Joined: Sun Oct 04, 2020 7:09 pm

Please help.

Postby gigglepress » Wed Nov 18, 2020 11:06 pm

My husband had his 18 month scan today. His liver and lungs looked good but the dr said he has 3 lymph nodes in his upper abdomen that have been steadily growing. She told us it might or might not be from the cancer spreading there. We'll have to come back in 3 months for a MRI to see if there has been more growth. Has anyone else had a similar situation and what was the treatment if so? I'm having a hard time finding any info online and I'm so scared right now.

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: Please help.

Postby Lee » Wed Nov 18, 2020 11:54 pm

gigglepress wrote: . . . . but the dr said he has 3 lymph nodes in his upper abdomen that have been steadily growing. She told us it might or might not be from the cancer spreading there.
. . . .


PLEASE . . .

Get a 2Nd opinion at a major cancer hospital or research cancer hospital. . . . Any Ideas on his CEA levels??

Where are you in the USA??

Not trying to scare you, butt he might need a 2nd opinion from a cancer hospital who has been down this road a few times.

PLEASE . . . follow up,

Lee
Last edited by Lee on Thu Nov 19, 2020 12:07 am, edited 2 times in total.
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
Green Tea
Posts: 238
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Please help.

Postby Green Tea » Wed Nov 18, 2020 11:58 pm

gigglepress wrote:My husband had his 18 month scan today. His liver and lungs looked good but the dr said he has 3 lymph nodes in his upper abdomen that have been steadily growing. She told us it might or might not be from the cancer spreading there. We'll have to come back in 3 months for a MRI to see if there has been more growth. Has anyone else had a similar situation and what was the treatment if so? I'm having a hard time finding any info online and I'm so scared right now.

On this board there is a group of patients who call themselves "Olymphians" or "Olympians". They are the ones with involvement only in the remote lymph nodes.

You can read about them and their treatment plans in some of the posts here:


Siti
Posts: 180
Joined: Thu Aug 01, 2019 10:58 am

Re: Please help.

Postby Siti » Thu Nov 19, 2020 2:23 pm

I wouldn’t wait. Strongly suggest getting a second opinion or try to insist further investigation ASAP.
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.


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