Mom’s situation - ostomy?

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IamBT
Posts: 3
Joined: Sun Nov 15, 2020 10:42 pm

Mom’s situation - ostomy?

Postby IamBT » Sun Nov 15, 2020 10:58 pm

Hello, everyone. My mother (a very spry and feisty 82 years old) was diagnosed last November with stage IV colon cancer. It had spread to her liver and a small spot on her lung. She has been taking Keytruda since January, and her lung and colon have been responding very well. The liver, not so much. Monday, they removed the right lobe of her liver and her gallbladder. She is doing super well. However, she has a little tan bag attached to her abdomen about 3” below the incision where her wound vac is attached on the incision. It doesn’t seem to be removable, we didn’t get instructions on how to take care of it, and nothing is draining into it. She is having normal bowel movements. Does anyone have an idea what this might be?
Thank you

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: Mom’s situation - ostomy?

Postby Lee » Mon Nov 16, 2020 3:22 pm

IamBT wrote: . . . However, she has a little tan bag attached to her abdomen about 3” below the incision where her wound vac is attached on the incision. It doesn’t seem to be removable, we didn’t get instructions on how to take care of it, and nothing is draining into it. She is having normal bowel movements. Does anyone have an idea what this might be?
Thank you


Am I correct to assume she is having normal bowel movements out her rectum?

Because they did not do surgery on her colon, I am going to assume that is not an ostomy bag, butt at the same time,i do not know what it is. I have a colostomy bag & I have a wafer attached to my stomach & the bag is attached to the wafer like a tupperware system.

Is she still in the hospital? If not, any type of follow up care? Can you call the surgeon or the surgeon's office?

Hopefully someone who's had this type of surgery can give you a better answer.

Good luck,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

boxhill
Posts: 641
Joined: Fri Apr 06, 2018 11:40 am

Re: Mom’s situation - ostomy?

Postby boxhill » Tue Nov 17, 2020 12:31 pm

This is definitely a question for her doctor's office! Call the surgeon's office! I am astonished that this was not addressed when she was leaving the hospital, frankly. Presumably she has a follow-up appt with her surgeon scheduled?
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

User avatar
beach sunrise
Posts: 298
Joined: Thu Mar 05, 2020 7:14 pm

Re: Mom’s situation - ostomy?

Postby beach sunrise » Wed Nov 18, 2020 12:58 am

Yes. let us know. I am puzzled too. There was a guy in our ostomy group that talked about a wound vac he had for about 6 months with a fistula draining pouch also I think is what he said. Maybe its something like that?
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

IamBT
Posts: 3
Joined: Sun Nov 15, 2020 10:42 pm

Re: Mom’s situation - ostomy?

Postby IamBT » Wed Nov 18, 2020 10:33 pm

So I didn’t have anyone I could call that night, and when she went in for bloodwork the next day (she was discharged 5 days after surgery, on a Friday, and I moved in to take care of her) the blood draw nurse said it didn’t look like a colostomy. She had a follow up visit today, and the woundvac and the bag have been removed. The skin looks normal where it was, and there is no dressing on that area. I couldn’t go in (thanks for making all this more difficult, COVID) and we still don’t know what it was for.
Sh’s going incredibly well for an 83 year old woman who has never had any surgery before this, or really been sick at all.
Thanks for trying to answer my question. I am glad to have found you folks.

boxhill
Posts: 641
Joined: Fri Apr 06, 2018 11:40 am

Re: Mom’s situation - ostomy?

Postby boxhill » Fri Nov 20, 2020 3:34 pm

It sounds as if it was a bag for the wound vac to pump fluids into. I had a wound vac in the hospital, but I do't recall what it was hooked up to. Probably something like that.

Any way, it sounds like she is healing well! May that continue. :)

Does she have surgical staples? Does she have an appointment to have them removed?
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

IamBT
Posts: 3
Joined: Sun Nov 15, 2020 10:42 pm

Re: Mom’s situation - ostomy?

Postby IamBT » Sat Nov 21, 2020 9:41 am

No staples or stitches outside. They used some kind of superglue. She has steri-strips supporting the wound, but they will fall off by themselves. Her incision looks great, actually.


boxhill wrote:It sounds as if it was a bag for the wound vac to pump fluids into. I had a wound vac in the hospital, but I do't recall what it was hooked up to. Probably something like that.

Any way, it sounds like she is healing well! May that continue. :)

Does she have surgical staples? Does she have an appointment to have them removed?

boxhill
Posts: 641
Joined: Fri Apr 06, 2018 11:40 am

Re: Mom’s situation - ostomy?

Postby boxhill » Sun Nov 22, 2020 4:50 pm

She's lucky she doesn't have staples. I found them highly uncomfortable. I was so relieved when they were removed! :)
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED


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