Rectal bleeding(Maybe a tear or hemorrhoid)

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DarknessEmbraced
Posts: 3588
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Location: New Brunswick, Canada

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby DarknessEmbraced » Wed Nov 18, 2020 11:07 am

I'm hoping that my GI will order more testing. Maybe he will want to do a colonoscopy. None of my doctors are examining me in person. I don't have the report from my colonoscopy. All I know is that my GI said it was normal. He said that everything around the anastomosis site was fine. In the past I had it strength. My colonoscopy showed no evidence of my cancer coming back. That's what my GI told me. I have quite often dealt with hemorrhoids or tears. With the tears I will have some blood on the paper when I wipe and it burns a little. I've never had some blood floating in the water nor more blood on the paper I had put in the toilet bowl. I have an anal skin tag which I think causes issues too.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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Green Tea
Posts: 408
Joined: Mon Oct 24, 2016 10:48 am

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby Green Tea » Thu Nov 19, 2020 12:15 am

DarknessEmbraced wrote:I'm hoping that my GI will order more testing. Maybe he will want to do a colonoscopy. None of my doctors are examining me in person. I don't have the report from my colonoscopy. All I know is that my GI said it was normal. He said that everything around the anastomosis site was fine. In the past I had it strength. My colonoscopy showed no evidence of my cancer coming back. That's what my GI told me. I have quite often dealt with hemorrhoids or tears. With the tears I will have some blood on the paper when I wipe and it burns a little. I've never had some blood floating in the water nor more blood on the paper I had put in the toilet bowl. I have an anal skin tag which I think causes issues too.

I think your spell-checker probably inserted the wrong word above. Shouldn't it be "stretched" ?

What did the GI have to say today?

DarknessEmbraced
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Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby DarknessEmbraced » Thu Nov 19, 2020 11:14 am

Yes, for some reason it entered strength. I did mean stretch. It was an awful experience because it was done via sigmoidoscopy without sedation. My GI's office hasn't called. His receptionist usually will call to give me a date and time that he will call me. He usually doesn't take me seriously saying it's just IBS so I don't expect to hear back from him anytime soon. Due to the doctor shortage there are only about two(maybe three) GI's all of whom work in the same office.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

DarknessEmbraced
Posts: 3588
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby DarknessEmbraced » Tue Nov 24, 2020 3:28 pm

I had an ischemic colitis attack on Friday. It was without bleeding. Usually after an Ischemic attack I have cramping, , bloating, and gas for only a few days. This time it has lingered. I went back to eating twice with a liquid lunch. Today even the Boost plus calories is bothering me. I get nauseous more often too. I need to have the calories from the solid food but I'm thinking maybe I should go to liquids for the rest of the night and maybe for the next day or so. I have to fast for 12 hours for blood tests on the 27th so I will need to try to have solid food afterward on that day. I'm finding this frustrating. I need to gain weight but I can't deal with this awful cramping and bloating! I try to take buscopan sparingly so they will last longer before I go to buy them over the counter again.(insurance doesn't cover them).
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

DarknessEmbraced
Posts: 3588
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby DarknessEmbraced » Sat Nov 28, 2020 11:34 am

I had fasted for 12 hours before my blood tests yesterday. The blood tests check my thyroid, electrolytes, blood counts, iron, liver and kidneys. My doctor didn't put stat on the blood tests and it takes 7 to 10 days for results. I hope the results will be sooner because I would like to know something before Christmas.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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beach sunrise
Posts: 441
Joined: Thu Mar 05, 2020 7:14 pm

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby beach sunrise » Sat Nov 28, 2020 10:08 pm

Thinking about you! Let us know.
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
High dose IVC 1 1/2 wks before surgery. Continue still twice a week
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug
MHL1+
PMS2+
MSH2+
MSH6+
POLD1 , KRAS Q61H
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

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Green Tea
Posts: 408
Joined: Mon Oct 24, 2016 10:48 am

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby Green Tea » Sun Nov 29, 2020 12:37 am

On November 18th, DarknessEmbraced wrote:... My GI's office hasn't called. His receptionist usually will call to give me a date and time that he will call me. He usually doesn't take me seriously saying it's just IBS so I don't expect to hear back from him anytime soon. Due to the doctor shortage there are only about two(maybe three) GI's all of whom work in the same office.

So, has your gastroenterologist called back yet? If not, you might need to deal with your issues yourself by using self-care tips taken from a competent source.

Here's a WebMD article with some self-care tips for anal fissure treatment:

Anal Fissure Treatment
https://www.webmd.com/digestive-disorders/anal-fissure-treatment

How are your blood test results going to help with your rectal bleeding issues? What kind of results are you hoping for before Christmas?

DarknessEmbraced
Posts: 3588
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby DarknessEmbraced » Sun Nov 29, 2020 12:35 pm

Thank you beach sunrise! I will update when I know more. No, my GI hasn't called and I doubt he will call anytime soon because he believes everything is just IBS. I had an ischemic colitis attack with some bleeding in March and went to the ER. My GI didn't call until October. Thank you for the information Green Tea but I can't take fiber supplements such as metamucil because they cause horrible cramping and gas. There are many fiber rich foods I have to avoid because they cause severe diarrhea and severe cramping. I haven't had more blood in the water again. It's only happened twice. I didn't only call my GI about the bleeding. It was also to talk to him about the weight loss, feeling full quickly, more cramping, pain and bloating for quite a while. The blood tests have nothing to do with the rectal bleeding. They are to try to figure out the cause of my weight loss. I already know that I have calcium deposits embedded in my kidneys which can cause pain and impact renal function. I'm hoping to at least get a cause of my weight loss and a plan to do something about it. If it's due to hyperthyroidism then I can develop a plan with my endocrinologist. I was referred to an urologist(still waiting to hear anything about that) who could address my nephrocalcinosis and any other kidney related issues. Liver problem would be addressed by my GI. I know that a CT showed I have a mildly fatty liver. I also really need my endocrinologist to get back to me regarding my hyperparathyroidism. High calcium causes all sorts of issues. Constipation being one of them.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

shaina
Posts: 12
Joined: Mon Oct 12, 2020 11:11 am
Facebook Username: shaina.leskin

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby shaina » Mon Nov 30, 2020 2:16 pm

Sending you emotional hugs and prayers for a speedy recovery. May you have a good prognosis and quick healing! :)

DarknessEmbraced
Posts: 3588
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby DarknessEmbraced » Tue Dec 01, 2020 12:22 pm

Thank you shaina! :) I really appreciate the support. :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

DarknessEmbraced
Posts: 3588
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby DarknessEmbraced » Thu Dec 10, 2020 5:39 pm

My GI still hasn't called me. I will probably have to wait several months to hear back from him. I still haven't heard from my family doctor regarding my blood test results. I called her office after hours only to hear a message saying that her office won't reopen until Tuesday. If the blood tests are normal I won't hear from her at all. She just has her receptionist place the results in my file. They still use paper files. I wish they had online portals for test results. If the results are normal then I'm unsure what other testing my family doctor would order.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Lee
Posts: 6203
Joined: Sun Apr 16, 2006 4:09 pm

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby Lee » Thu Dec 10, 2020 6:31 pm

(((DE)))

I hope you hear something soon. I am sorry you have to go through all of this hassle.

Thinking of you,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

roadrunner
Posts: 109
Joined: Sun Jan 12, 2020 8:46 pm

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby roadrunner » Thu Dec 10, 2020 7:36 pm

It appears that your doctors now have access to your blood test results, but you don’t. That suggests that nothing of significance showed up. But of course, this assumes your doctors are responsible, and your tone (e.g., “I probably won’t hear for several months”) suggests that you are not confident that they are, or at the least are very frustrated with them. Perhaps you could call the GI practice (which presumably answers the phone) and basically beg them to send you the results at least. That wouldn’t, of course, resolve your desire to be seen, but it may give you some peace of mind and potentially important information that could influence next steps (see below).

Beyond that, the apparent lack of responsiveness may suggest it’s time to breakup with these doctors. IMHO, it’s just not acceptable to get this kind of delay and non-responsiveness when you’re a cancer patient or survivor, even if it’s been a few years. And especially with these symptoms, which may well not be a worst case scenario, but are worth noting in a cancer survivor. Sadly, doctors often write off patients (and women more than men) as anxious malingerers. I’m male and pretty engaged with my care decisions, and whenever I get even so much as a whiff of that I’m out the door.

But of course, this is just my opinion and view on how I would address this. I’m not a patient person, and less so when it comes to this kind of thing.
7/19: Rectal cancer: Initially staged as IIIA, T2N1M0
Initially approx 4.25 cm, low/mid rectum, mod. well diff. adenocarcinoma
8/22 -10/14 4 rounds FOLFOX neoadjuvant, 3 w/Oxiplatin (lots of side effects/reduced size est. 70-75%)
Switched to neoadjuvant chemorad in 11/19 (Xeloda and approx. IMRT, 60 Gy, 33 fractions)
Trying to achieve cCR.

Lee
Posts: 6203
Joined: Sun Apr 16, 2006 4:09 pm

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby Lee » Thu Dec 10, 2020 7:50 pm

roadrunner wrote:I

Beyond that, the apparent lack of responsiveness may suggest it’s time to breakup with these doctors. IMHO, it’s just not acceptable to get this kind of delay and non-responsiveness when you’re a cancer patient or survivor, even if it’s been a few years. A


Don't know if you understand, DE lives in Canada. Depending upon where you live, that is not always an option, getting new doctors. I'm sure she will respond. Butt for many people, this is standards care.

Thinking of you DE,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

roadrunner
Posts: 109
Joined: Sun Jan 12, 2020 8:46 pm

Re: Rectal bleeding(Maybe a tear or hemorrhoid)

Postby roadrunner » Thu Dec 10, 2020 10:26 pm

I did not know that, and I have zero knowledge of the Canadian health care system. Thanks for the correction.
7/19: Rectal cancer: Initially staged as IIIA, T2N1M0
Initially approx 4.25 cm, low/mid rectum, mod. well diff. adenocarcinoma
8/22 -10/14 4 rounds FOLFOX neoadjuvant, 3 w/Oxiplatin (lots of side effects/reduced size est. 70-75%)
Switched to neoadjuvant chemorad in 11/19 (Xeloda and approx. IMRT, 60 Gy, 33 fractions)
Trying to achieve cCR.


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