Hi new here - CRC Stage IIIb

Please feel free to read, share your thoughts, your stories and connect with others!
Merci
Posts: 7
Joined: Sat Nov 14, 2020 6:33 am
Location: Czech republic

Hi new here - CRC Stage IIIb

Postby Merci » Sat Nov 14, 2020 7:07 am

I read a lot of stories here. My story started 6 months ago. I was diagnosed with a colon tumor. In stage 3b. I have to admit it was a big shock. At the age of 34, I felt immortal. And suddenly I hear a diagnosis .. Colon cancer. There has never been any cancer in the family. I have two beautiful children. Boy 4 years and born baby girl 2 months. I have to fight for them and try to win my fight. Reading the stories here on the forum gave me the courage to fight. Thanks to you. I'm not English speaking. I apologize for any mistakes in my English.
6/8/20 Male 34y. CT colon cancer resection 5,5cm
tumor. Stage IIIb Colostomi
Lymph nodes 2/32
7/10/20 chemoterapy 8 rounds Xeloda (capecitabine)
+Oxaliplatin
8/8/20 CT - NED.
9/15/20 colonoscopy oscopy one polyp removed (cancer
negative)
11/30/20 waiting on PET CT
Will update..

prayingforccr
Posts: 56
Joined: Sun Jun 28, 2020 4:44 pm

Re: Hi new here - CRC Stage IIIb

Postby prayingforccr » Sat Nov 14, 2020 3:40 pm

Contact Dr Paul Romessar at memorial sloan kettering in ny and see if you can get into a clinical trial for m3814.

Then, do chemoradiation/trial drug, take a month off, then do folfox chemotherapy.

This combination melted away a 6cm tumor although I am not out of the woods yet (possible tumor deposits).

You want Total Neoadjuvant Therapy
Nov 2020: colonoscopy
Dec 2020: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2021: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2021: anoscopy confirmed tumor/scar 3.7cm with significant tumor necrosis but some persistent disease
July 2021: began 8 treatmentsFOLFOX
August 2021: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2021: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy scheduled first week of december.

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: Hi new here - CRC Stage IIIb

Postby Lee » Sat Nov 14, 2020 4:57 pm

Hi & welcome, sorry for the reason you are here. Your English is perfect.

I am a 16 yr survivor from stage 3C. Know that you can beat this. Is there a reason they are doing the PET scan now verse 6 months ago when you were 1st diagnosed? Am I correct to assume that you have finished treatment?

Again welcome,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
horizon
Posts: 1570
Joined: Tue Apr 12, 2011 10:10 pm

Re: Hi new here - CRC Stage IIIb

Postby horizon » Sat Nov 14, 2020 6:21 pm

I was in the best shape of my life when I got my diagnosis. I still sometimes can't believe it happened. Keep your head up and keep fighting. You'll get a lot of support here.

Your English skills are superb.
I'm just a dude who still can't believe he had a resection and went through chemo (currently 9 years NED). Is this real life?

Merci
Posts: 7
Joined: Sat Nov 14, 2020 6:33 am
Location: Czech republic

Re: Hi new here - CRC Stage IIIb

Postby Merci » Sun Nov 15, 2020 1:38 am

Lee wrote:Hi & welcome, sorry for the reason you are here. Your English is perfect.

I am a 16 yr survivor from stage 3C. Know that you can beat this. Is there a reason they are doing the PET scan now verse 6 months ago when you were 1st diagnosed? Am I correct to assume that you have finished treatment?

Again welcome,

Lee


Hi and thank you Lee.
It's beautiful to hear about your story. It gives a person more energy. Yes, I have the last round of chemotherapy on December 4th. My doctor wants to do a PET CT scan to see if there are any metastases.
6/8/20 Male 34y. CT colon cancer resection 5,5cm
tumor. Stage IIIb Colostomi
Lymph nodes 2/32
7/10/20 chemoterapy 8 rounds Xeloda (capecitabine)
+Oxaliplatin
8/8/20 CT - NED.
9/15/20 colonoscopy oscopy one polyp removed (cancer
negative)
11/30/20 waiting on PET CT
Will update..

Merci
Posts: 7
Joined: Sat Nov 14, 2020 6:33 am
Location: Czech republic

Re: Hi new here - CRC Stage IIIb

Postby Merci » Sun Nov 15, 2020 2:14 am

horizon wrote:I was in the best shape of my life when I got my diagnosis. I still sometimes can't believe it happened. Keep your head up and keep fighting. You'll get a lot of support here.

Your English skills are superb.


Hi. Thank you for the kind words. I still can't believe it either. It's a big shock when you hear your diagnosis at the age of 34. I'll be fighting. A great wife and two beautiful children give me energy.
6/8/20 Male 34y. CT colon cancer resection 5,5cm
tumor. Stage IIIb Colostomi
Lymph nodes 2/32
7/10/20 chemoterapy 8 rounds Xeloda (capecitabine)
+Oxaliplatin
8/8/20 CT - NED.
9/15/20 colonoscopy oscopy one polyp removed (cancer
negative)
11/30/20 waiting on PET CT
Will update..

Merci
Posts: 7
Joined: Sat Nov 14, 2020 6:33 am
Location: Czech republic

Re: Hi new here - CRC Stage IIIb

Postby Merci » Sun Nov 15, 2020 2:20 am

prayingforccr wrote:Contact Dr Paul Romessar at memorial sloan kettering in ny and see if you can get into a clinical trial for m3814.

Then, do chemoradiation/trial drug, take a month off, then do folfox chemotherapy.

This combination melted away a 6cm tumor although I am not out of the woods yet (possible tumor deposits).

You want Total Neoadjuvant Therapy


Thank you for your message. NY is very far from my country. I am from the Czech Republic which is in Europe. I have the last round of chemotherapy in December. Oxaliplatin + Xeloda (Capecitabine) 8 rounds.
6/8/20 Male 34y. CT colon cancer resection 5,5cm
tumor. Stage IIIb Colostomi
Lymph nodes 2/32
7/10/20 chemoterapy 8 rounds Xeloda (capecitabine)
+Oxaliplatin
8/8/20 CT - NED.
9/15/20 colonoscopy oscopy one polyp removed (cancer
negative)
11/30/20 waiting on PET CT
Will update..

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: Hi new here - CRC Stage IIIb

Postby Lee » Sun Nov 15, 2020 1:45 pm

Merci wrote:
Lee wrote:Hi & welcome, sorry for the reason you are here. Your English is perfect.

I am a 16 yr survivor from stage 3C. Know that you can beat this. Is there a reason they are doing the PET scan now verse 6 months ago when you were 1st diagnosed? Am I correct to assume that you have finished treatment?

Again welcome,

Lee


Hi and thank you Lee.
It's beautiful to hear about your story. It gives a person more energy. Yes, I have the last round of chemotherapy on December 4th. My doctor wants to do a PET CT scan to see if there are any metastases.


Good luck with your upcoming PET scan.

Keep us posted.

All the best,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

henny-crc
Posts: 7
Joined: Mon Sep 14, 2020 6:09 pm

Re: Hi new here - CRC Stage IIIb

Postby henny-crc » Sun Nov 15, 2020 1:57 pm

Stay strong, mr Merci. I was diagnosed with stage 3 too, a month later then you, so i know how just how terrible it feels. Was even younger than you also. But i believe we will get through this, together.
Been in czech republic 3 times, beautiful country.
Dx 06/20
23 yo
Stage 3A
T1N2a

Merci
Posts: 7
Joined: Sat Nov 14, 2020 6:33 am
Location: Czech republic

Re: Hi new here - CRC Stage IIIb

Postby Merci » Mon Nov 16, 2020 9:52 am

Lee wrote:
Merci wrote:
Lee wrote:Hi & welcome, sorry for the reason you are here. Your English is perfect.

I am a 16 yr survivor from stage 3C. Know that you can beat this. Is there a reason they are doing the PET scan now verse 6 months ago when you were 1st diagnosed? Am I correct to assume that you have finished treatment?

Again welcome,

Lee


Hi and thank you Lee.
It's beautiful to hear about your story. It gives a person more energy. Yes, I have the last round of chemotherapy on December 4th. My doctor wants to do a PET CT scan to see if there are any metastases.


Good luck with your upcoming PET scan.

Keep us posted.

All the best,

Lee


Thank you so much dear Lee. As far as I know, I will write the result. I will hope to come up with good news.

All the best to you Lee.
6/8/20 Male 34y. CT colon cancer resection 5,5cm
tumor. Stage IIIb Colostomi
Lymph nodes 2/32
7/10/20 chemoterapy 8 rounds Xeloda (capecitabine)
+Oxaliplatin
8/8/20 CT - NED.
9/15/20 colonoscopy oscopy one polyp removed (cancer
negative)
11/30/20 waiting on PET CT
Will update..

Merci
Posts: 7
Joined: Sat Nov 14, 2020 6:33 am
Location: Czech republic

Re: Hi new here - CRC Stage IIIb

Postby Merci » Mon Nov 16, 2020 9:59 am

henny-crc wrote:Stay strong, mr Merci. I was diagnosed with stage 3 too, a month later then you, so i know how just how terrible it feels. Was even younger than you also. But i believe we will get through this, together.
Been in czech republic 3 times, beautiful country.


Hi Henny

I'm so sorry you're going through a disease like me. You're really young. I hold my fists to handle everything and stay strong. I believe we can handle it well. Can I ask about your treatment?
The Czech Republic is beautiful. When you were here for the fourth time. Let me know :)

Take care of yourself.
6/8/20 Male 34y. CT colon cancer resection 5,5cm
tumor. Stage IIIb Colostomi
Lymph nodes 2/32
7/10/20 chemoterapy 8 rounds Xeloda (capecitabine)
+Oxaliplatin
8/8/20 CT - NED.
9/15/20 colonoscopy oscopy one polyp removed (cancer
negative)
11/30/20 waiting on PET CT
Will update..

henny-crc
Posts: 7
Joined: Mon Sep 14, 2020 6:09 pm

Re: Hi new here - CRC Stage IIIb

Postby henny-crc » Mon Nov 16, 2020 5:00 pm

My treatment is pretty much the same as your. Surgery, then 8 cycles of CAPOX/XELOX. On 6th cycle now, and it will probably be my last one with oxali due to side effects. I also take some additional supplements i learned from this forum, psk, aspirin, vit d3 and curcumin.
Dx 06/20
23 yo
Stage 3A
T1N2a

boxhill
Posts: 641
Joined: Fri Apr 06, 2018 11:40 am

Re: Hi new here - CRC Stage IIIb

Postby boxhill » Tue Nov 17, 2020 12:19 pm

I am glad that things are going well so far.

Regarding getting into trials, if you are NED you will probably not qualify. One has to have measurable cancer for most of them. (I was also NED after surgery, and fell into the same category, that some people joking call Not Enough Disease. :) )

Best of all would be for you to remain NED after your adjuvant chemo, and just be able to go forward with regular scans. It happens to plenty of Stage III cases. :)

Good luck with your PET scan. Let us know what happens.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: Ehut and 6 guests