Stage 4 in 2011 still NED in 2020

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cecioboe
Posts: 597
Joined: Mon Oct 17, 2011 9:08 pm
Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Stage 4 in 2011 still NED in 2020

Postby cecioboe » Fri Nov 13, 2020 2:18 pm

Jim had his colonoscopy today and was all clear. Not a single polyp in sight!
Keep up the good fight, friends.
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16

Ehut
Posts: 225
Joined: Wed Sep 26, 2012 4:24 pm
Location: Algonquin, IL

Re: Stage 4 in 2011 still NED in 2020

Postby Ehut » Fri Nov 13, 2020 3:05 pm

Congrats! I'm only a couple months behind you.
Dx 12/11 rectal stage IV w/ 6 mets to liver, age 35
4 cycles FOLFOX 12/11 to 2/12
short course radiation 2/12
rectal/liver resection 3/12, temp ileostomy
8 cycles FOLFOX/FOLFIRI 4/12 to 8/12
ileostomy reversal 10/12
port out 10/13
NED for 8+ years and counting!

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Green Tea
Posts: 238
Joined: Mon Oct 24, 2016 10:48 am
Location: Nusa Tenggara

Re: Stage 4 in 2011 still NED in 2020

Postby Green Tea » Fri Nov 13, 2020 3:15 pm

Congratulations!
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CRguy
Posts: 10245
Joined: Sun Feb 10, 2008 6:00 pm

Re: Stage 4 in 2011 still NED in 2020

Postby CRguy » Fri Nov 13, 2020 6:29 pm

Mega CHEERS !
Keep on truckin'

CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: Stage 4 in 2011 still NED in 2020

Postby Lee » Fri Nov 13, 2020 7:10 pm

AWESOME!!!!!

:D :D :D

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

stu
Posts: 1396
Joined: Sat Aug 17, 2013 5:46 pm

Re: Stage 4 in 2011 still NED in 2020

Postby stu » Sat Nov 14, 2020 4:21 am

Lovely news .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Siti
Posts: 180
Joined: Thu Aug 01, 2019 10:58 am

Re: Stage 4 in 2011 still NED in 2020

Postby Siti » Sat Nov 14, 2020 10:14 am

Thank you for sharing the good news :)
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

Merci
Posts: 7
Joined: Sat Nov 14, 2020 6:33 am
Location: Czech republic

Re: Stage 4 in 2011 still NED in 2020

Postby Merci » Mon Nov 16, 2020 10:33 am

That's AWESOME!!!! :)
6/8/20 Male 34y. CT colon cancer resection 5,5cm
tumor. Stage IIIb Colostomi
Lymph nodes 2/32
7/10/20 chemoterapy 8 rounds Xeloda (capecitabine)
+Oxaliplatin
8/8/20 CT - NED.
9/15/20 colonoscopy oscopy one polyp removed (cancer
negative)
11/30/20 waiting on PET CT
Will update..

utahgal7
Posts: 26
Joined: Fri Sep 11, 2020 12:04 pm

Re: Stage 4 in 2011 still NED in 2020

Postby utahgal7 » Mon Nov 16, 2020 12:13 pm

That's wonderful. Do you have any tips as to how he was able to prevent a recurrence (i.e. diet, supplements, etc.)?
02/20 Rectal Cancer Diagnosis
03/20 CEA 2.7 ST Radiation - 25Gy over 5 days
04/20 LAR surgery w/ ileostomy (6 lymph nodes retrieved, 1 node positive for cancer)
04/20 T3N1M0; MSS
05/20 CAPEOX (had to discontinue because Oxaliplatin caused temporary blindness in left eye)
06/20 CEA 0.9
08/20 Ileostomy reversal
09/20 CEA 1.4, CT chest/abdomen/pelvis; suspicious areas in liver
10/20 MRI liver; dx hemangioma

boxhill
Posts: 641
Joined: Fri Apr 06, 2018 11:40 am

Re: Stage 4 in 2011 still NED in 2020

Postby boxhill » Tue Nov 17, 2020 12:46 pm

Great news!
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

DarknessEmbraced
Posts: 3523
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Stage 4 in 2011 still NED in 2020

Postby DarknessEmbraced » Tue Nov 17, 2020 1:16 pm

Congratulations! That's wonderful! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

mariane
Posts: 683
Joined: Sun Sep 13, 2015 6:16 pm

Re: Stage 4 in 2011 still NED in 2020

Postby mariane » Sun Nov 22, 2020 10:57 pm

Congrats!!!!
mom of now 11 years old twins, dx @ 40 in 6/2015 with upper rectal cancer, 10+ liver mets, CEA 140
chemo: 8/2015 - 10/2016 - 4xFOLFIRINOX, 2xFOLFOX, 8xFOLFIRI, 10x5FU, HAI pump -12xFUDR
4 surgeries, complete pathological response
CEA<2 since 10/2015
NED since May 2016

I praise God for every day with my family!


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