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Posted: Mon Nov 09, 2020 4:51 pm
by Dori W
I had stage 3c colon cancer in 2008 and I was a semi-frequent poster here. A few years after my diagnosis, I had genetic testing done and there was no sign of Lynch syndrome or any other known genetic abnormality.

Last week I was diagnosed with endometrial cancer and I just met with the gyn oncologist for the first time today. She said that testing was done on the tumor that showed Lynch syndrome, but then there was an addendum to the report saying they retested and there was no Lynch syndrome?! My doctor said that (especially given that I've had both colon and endometrial cancer) she is highly suspicious of the second, negative result. She referred me to a geneticist.

I'll be having surgery for this new cancer in the next couple of weeks (surgery is not scheduled yet), and I'll know my stage a week or two after that. The tumor is grade 1 (low grade), which is really good news and ups my odds for the cancer being early stage (but of course we won't know till we know).

Re: Lynch?

Posted: Mon Nov 09, 2020 6:29 pm
by Koreysue
That is very strange. May i ask- how you discover the new type of cancer? I’ll be thinking of you as you navigate this, and hoping for a low stage as you said.
My family is full of cancer :cry: and I was supposedly lynch neg. but man i wonder sometimes.

Re: Lynch?

Posted: Mon Nov 09, 2020 7:03 pm
by Dori W
I had some light bleeding on a couple of occasions. That's it.

Re: Lynch?

Posted: Tue Nov 10, 2020 9:46 am
by henry123
Dori, best wishes for you. If there are multiple members in your family Who are suffering from various types of cancer especially cologne and endometrial then Lynch is a definite possibility.
Try to get the test done from reliable cancer centre or the bottle has these tests are really sensitive.