Apprehensive about round three tomorrow
Apprehensive about round three tomorrow
I’ve been lurking here since my diagnosis was confirmed in July. Today I decided to join the fray. I’m beginning round three tomorrow and I’m feeling anxious. I know there’s nothing any one can do to make it go well or not. I just pray. Round two I had three hospitalizations. One for pulmonary embolism, thank goodness it wasn’t bigger and kill me, two for severe dehydration. They gave me 10 liters of iv fluids over two and a half days. And three was for a temp over 100.5. They couldn’t find the source but assume it was from an esophageal sore. I think I just need your well wishes.
F Age 62
2/2020 Tentative Dx with Cologuard Test
Colonoscopy rescheduled twice due to Covid-19
7/2020 Dx confirmed
Stage 3a colon cancer, T2N1M0
Adenocarcinoma 5cm in sigmoid colon
CAT scan negative
CEA 2.0 before surgery
4 rounds CAPEOX over three months recommended
9/17/2020 Port placed
9/23/2020 CAPEOX started
10/14/20. Hospitalized PE
10/20/20 hospitalized severe dehydration
10/22/20. Hospitalized fever
2/2020 Tentative Dx with Cologuard Test
Colonoscopy rescheduled twice due to Covid-19
7/2020 Dx confirmed
Stage 3a colon cancer, T2N1M0
Adenocarcinoma 5cm in sigmoid colon
CAT scan negative
CEA 2.0 before surgery
4 rounds CAPEOX over three months recommended
9/17/2020 Port placed
9/23/2020 CAPEOX started
10/14/20. Hospitalized PE
10/20/20 hospitalized severe dehydration
10/22/20. Hospitalized fever
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Maggie Nell
- Posts: 1151
- Joined: Wed May 27, 2015 1:57 am
- Location: Central Highlands, Victoria, Oz
Re: Apprehensive about round three tomorrow
Wishing you a gentle process for round three with no nasty surprises.
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.
35mm poorly diff. tumour, incidental finding following emergency R. hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX
Stage II CRC, no adjuvant chemo required.
Re: Apprehensive about round three tomorrow
I hope it goes well for you this week.
husband (age 41 at dx):
8/20 CRC Stage 4. Mets to lungs, liver, distant lymph nodes
MSS, KRAS wild
CEA 713 at dx
Folfox (12 rounds)
Liver, colon and node resection 4/21
New lung mets, Vectibix monotherapy started 6/21
Stop Vectibix lungs stable about 6 months; all other areas stable
Start Folfiri + avastin 1/22
Stop Folfiri (lungs stable 6 mos); start Vectibix 7/22
Stop Vectibix 12/22 (lungs stable 5 mos this time)
SBRT on lung Mets scheduled for 1/22, will restart Folfiri
8/20 CRC Stage 4. Mets to lungs, liver, distant lymph nodes
MSS, KRAS wild
CEA 713 at dx
Folfox (12 rounds)
Liver, colon and node resection 4/21
New lung mets, Vectibix monotherapy started 6/21
Stop Vectibix lungs stable about 6 months; all other areas stable
Start Folfiri + avastin 1/22
Stop Folfiri (lungs stable 6 mos); start Vectibix 7/22
Stop Vectibix 12/22 (lungs stable 5 mos this time)
SBRT on lung Mets scheduled for 1/22, will restart Folfiri
Re: Apprehensive about round three tomorrow
Hello,
I’m sorry you had to join this club, but it is a great place for info and support.
I am thinking of you, and hope that you have a smoother round.
Ksue
I’m sorry you had to join this club, but it is a great place for info and support.
I am thinking of you, and hope that you have a smoother round.
Ksue
Dx: 6/2017 stage 3 CC
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan
Sigmoid, 2 nodes
CEA at dx: 6.1
Sigmoid Colectomy/folfox (last chemo (1/31/18)
CEA 4/2018: 2.4
CEA 7/2018: 3.7
Colonoscopy 8/18 clean
PET scan 8/20/18 NED
CEA 11/2018: 3.8
CEA 2/2019: 3.2
CT NED 6/18/19 / CEA : 3.4
CEA 10/21/19: 3.2
CEA 3/9/20: 3.8
CT NED /CEA 6/17/20: 3.8
CEA 11/4/20 4.6 <——— whyyyy? (will retest in a few weeks)
CT NED 12/1/20 CEA: 3.5
CEA 5/21 4.2
CEA 10/21 3.4
colonoscopy 10/21 10mm polyp
CEA 4/22 3.7
CEA 7/22 3.8
CEA 12/22 4
CEA 1/22 3.2 and NED 5yr scan
Re: Apprehensive about round three tomorrow
Best wishes from a 4-round CAPEOX survivor...
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roadrunner
- Posts: 465
- Joined: Sun Jan 12, 2020 8:46 pm
Re: Apprehensive about round three tomorrow
I wish you well! I will add that I’m a veteran of multiple chemo (FOLFOX not CAPEOX) hospitalizations. Three also, if I recall right, in my first 4 rounds. One was for a “massive” UE-DVT (though thankfully not a PE); one for arrhythmias and passing out (Good times!). I can’t even recall what the third was about. It was a bumpy ride, for sure. But it really evened out for my last 4. Just went and did ‘em. Had side effects, but nothing too horrible. The coagulation issue at least should now be managed with anti coagulation meds, and I hope and trust you’ve got a good hydration strategy, so you have a reasonable shot of having a similar experience to mine. Good luck!
7/19: RC: Staged IIIA, T2N1M0
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp benign)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy for radio resistant met 7/7/23
approx 4.25 cm, low/mid rectum, mod. well diff.; lung micronodule
8/19-10/19 4 rds.FOLFOX neoadjuvant, 3 w/Oxiplatin (reduced 70-75%)
neoadjuvant chemorad 11/19
4 rounds FOLFOX July-August 2020
ncCR 10/20; biopsies neg
TAE 11/20, tumor cells removed
Chest CT 3/30/21 growth in 2 nodules (3 and 5mm)
VATS 12/8/21 sub-pleural met 7mm.
SBRT nodule 1/22
6/20/22 TAE rectal polyp benign)
NED from 3/22 - 3/23
4 cycles FOLFIRI
LUL VATS lobectomy for radio resistant met 7/7/23
Re: Apprehensive about round three tomorrow
I'm thinking of you today and hope you are feeling well. My best days were the two or three after infusion.. The steroids gave me an appetite! The end is in sight....you got this!
Hugs, margie
Hugs, margie
Dx CC 12/2015, age 57 at Dx
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/2017 and 1/2020
CT 10/3/17 clear
CT 10/17/18 clear
CT 10/17/19 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2
Stage IIIb: T3N1b
Adenocarcinoma, sigmoid colon, 2.5 cm - low grade, moderately differentiated
3/6 positive lymph nodes
laparoscopic colectomy 1/20/2016
Capox started 3/4/16 - Six rounds
CT-suspicious lymph 2/22/16
PET scan 2/24/16 clear
CT 6/8/16 clear
Clear Colonoscopy 3/2017 and 1/2020
CT 10/3/17 clear
CT 10/17/18 clear
CT 10/17/19 clear
CEA 12/17 1.7
5/16 3.8
7/16 1.9
3/17 1.3
10/17 1.2
4/18 1.6
11/18 1.2
Re: Apprehensive about round three tomorrow
Thank you all for your well wishes. It sure means a lot to know I'm in a forum with people who are willing to share their hope, strength and experience with those of us who need it. I have found so much of that just from lurking but now I feel like a full fledged member. I'll let you know how round three goes.
F Age 62
2/2020 Tentative Dx with Cologuard Test
Colonoscopy rescheduled twice due to Covid-19
7/2020 Dx confirmed
Stage 3a colon cancer, T2N1M0
Adenocarcinoma 5cm in sigmoid colon
CAT scan negative
CEA 2.0 before surgery
4 rounds CAPEOX over three months recommended
9/17/2020 Port placed
9/23/2020 CAPEOX started
10/14/20. Hospitalized PE
10/20/20 hospitalized severe dehydration
10/22/20. Hospitalized fever
2/2020 Tentative Dx with Cologuard Test
Colonoscopy rescheduled twice due to Covid-19
7/2020 Dx confirmed
Stage 3a colon cancer, T2N1M0
Adenocarcinoma 5cm in sigmoid colon
CAT scan negative
CEA 2.0 before surgery
4 rounds CAPEOX over three months recommended
9/17/2020 Port placed
9/23/2020 CAPEOX started
10/14/20. Hospitalized PE
10/20/20 hospitalized severe dehydration
10/22/20. Hospitalized fever
Re: Apprehensive about round three tomorrow
I hope this round is going better.
One of the advantages of folfox can be that on the day one goes in to get the pump unhooked many people also stay long enough to get a bag of fluids infused. It makes them feel a lot better. I only did this once--ironically my LAST round was the only one where I had a bad reaction--but some people do it often.
Perhaps you should go back to your infusion center for some extra fluids on Tuesday or Wednesday?
One of the advantages of folfox can be that on the day one goes in to get the pump unhooked many people also stay long enough to get a bag of fluids infused. It makes them feel a lot better. I only did this once--ironically my LAST round was the only one where I had a bad reaction--but some people do it often.
Perhaps you should go back to your infusion center for some extra fluids on Tuesday or Wednesday?
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED
Re: Apprehensive about round three tomorrow
On November 8th, CarolN36 wrote:... I'll let you know how round three goes.
So, how did round three go? This week it's time for round four.
Re: Apprehensive about round three tomorrow
Green Tea wrote:On November 8th, CarolN36 wrote:... I'll let you know how round three goes.
So, how did round three go? This week it's time for round four.
Bumping this up. Hoping for a response
Re: Apprehensive about round three tomorrow
Carol,
I hope your subsequent rounds of chemo get easier. Although I don't know you, I wish that I could give you a hug. Please know that you are not alone in the cancer battle. I will say a prayer for you.
Best wishes,
Paige
I hope your subsequent rounds of chemo get easier. Although I don't know you, I wish that I could give you a hug. Please know that you are not alone in the cancer battle. I will say a prayer for you.
Best wishes,
Paige
02/20 Rectal Cancer dx - 4 cm mass; located 9 cm from AV
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
1.9; 2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
03/20 CEA 2.7; 0.9; 1.4; 0.9; 0.9; 1.2; 1.0; 0.8; 1.1; 1.0; 1.1; 1.7; 1.8; 1.8
1.9; 2.4; 2.3; 2.8; 2.2, 2.8, 3.2; 3.0; 1.6; 2.0; 1.2
04/20 ST Radiation; 04/20 LAR surgery w/ileostomy; ypT3N1bM0; MSS, KRAS G12A
05/20 CAPEOX; 08/20 Ileostomy reversal
12/20 CT scan; lung nodules (watch and wait);
11/22 lung nodule biopsy positive for RC met;
1/23 VATS right lower lobe wedge resection
FOLFIRI 10 cycles
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