Solitary common iliac recurrence

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Dennyp
Posts: 8
Joined: Thu Oct 29, 2020 9:28 pm

Solitary common iliac recurrence

Postby Dennyp » Thu Oct 29, 2020 9:40 pm

Hey all, just wondering if anyone had a recurrence to 1 common iliac lymph node? Diagnosed May of 2019 with Stage 3C sigmoid tumor. Diagnosed September with stage 4 because of recurrence to one lymph node. Started Folfiri 4 rounds then CT scan and then determine next steps after scan. Has anyone had a similar experience, I can’t find much on line about this kind of recurrence.
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node

Lee
Posts: 6200
Joined: Sun Apr 16, 2006 4:09 pm

Re: Solitary common iliac recurrence

Postby Lee » Fri Oct 30, 2020 7:23 pm

Sorry, I don't have an answer to your question.

Rather . . . Can the medical professional remove the lymph node? Might be something a serious cancer center can address.

Good luck,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Dennyp
Posts: 8
Joined: Thu Oct 29, 2020 9:28 pm

Re: Solitary common iliac recurrence

Postby Dennyp » Fri Oct 30, 2020 11:00 pm

That is the plan. If the node shrinks, I’ll have surgery to remove.
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node

stu
Posts: 1441
Joined: Sat Aug 17, 2013 5:46 pm

Re: Solitary common iliac recurrence

Postby stu » Sat Oct 31, 2020 12:50 pm

Hi ,

There is some research on Cyberknife treatment for iliac node recurrence. I read on a different forum of someone who had it and was reasonable to go through .

Might be worthy of a read . Hope you get significant shrinkage and it’s quickly dealt with .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Dennyp
Posts: 8
Joined: Thu Oct 29, 2020 9:28 pm

Re: Solitary common iliac recurrence

Postby Dennyp » Sat Oct 31, 2020 4:26 pm

Thanks! I will research that!
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node

Dennyp
Posts: 8
Joined: Thu Oct 29, 2020 9:28 pm

Re: Solitary common iliac recurrence

Postby Dennyp » Wed Dec 09, 2020 9:45 pm

Update. After my 4th round of FOLFIRI the tumor has shrunk. I will have surgery in January to remove the lymph node.
They are now treating a local recurrence.
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node

User avatar
beach sunrise
Posts: 369
Joined: Thu Mar 05, 2020 7:14 pm

Re: Solitary common iliac recurrence

Postby beach sunrise » Sat Dec 12, 2020 1:16 am

That is great news!!!
8/19 RC CEA 82.6 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
12/20 CEA 8's & 9's
ADAPT+++ TM drug. Adding Everolimus soon.
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

stu
Posts: 1441
Joined: Sat Aug 17, 2013 5:46 pm

Re: Solitary common iliac recurrence

Postby stu » Sat Dec 12, 2020 4:18 am

Excellent news !

Thank you for the update . Great for others to learn from too.
Wishing you every success with your surgery and onwards to NED !
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

prayingforccr
Posts: 70
Joined: Sun Jun 28, 2020 4:44 pm

Re: Solitary common iliac recurrence

Postby prayingforccr » Sat Dec 12, 2020 8:10 am

Dennyp wrote:Update. After my 4th round of FOLFIRI the tumor has shrunk. I will have surgery in January to remove the lymph node.
They are now treating a local recurrence.



Ablation?
Nov 2019: colonoscopy
Dec 2019: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2020: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2020: sigmoidosvopy confirmed tumor/scar 3.7cm with significant tumor necrosis but some persistent disease
July 2020: began 8 treatmentsFOLFOX
August 2020: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2020: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy negative for cancer.

Dennyp
Posts: 8
Joined: Thu Oct 29, 2020 9:28 pm

Re: Solitary common iliac recurrence

Postby Dennyp » Sun Dec 13, 2020 9:32 am

prayingforccr wrote:
Dennyp wrote:Update. After my 4th round of FOLFIRI the tumor has shrunk. I will have surgery in January to remove the lymph node.
They are now treating a local recurrence.



Ablation?


I’m not sure, I’m meeting with the surgeon this Thursday. Things are moving fast, which I’m fine with!
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node

Dennyp
Posts: 8
Joined: Thu Oct 29, 2020 9:28 pm

Re: Solitary common iliac recurrence

Postby Dennyp » Mon Jan 25, 2021 9:08 pm

Update 2. I had surgery to remove the lymph node on 1/15. They got everything, pathology shows cancer was only in that one lymph node. Because this type of recurrence is pretty rare I’m not sure of my prognosis but I choose to believe it’s pretty good and none of my doctors disagree so I’m going with that! :P
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node

stu
Posts: 1441
Joined: Sat Aug 17, 2013 5:46 pm

Re: Solitary common iliac recurrence

Postby stu » Tue Jan 26, 2021 4:06 am

I with you . Good news all the way ! So pleased you are doing well .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Brearmstrong
Posts: 100
Joined: Sun Mar 26, 2017 3:24 pm
Location: CT

Re: Solitary common iliac recurrence

Postby Brearmstrong » Wed Jan 27, 2021 5:30 pm

Congrats on a successful surgery. I too had distant nodes in my first recurrence but in more than one. Wondering if your team is suggesting any follow up treatment or just scans? Thanks for your feedback.

Brenda
48 F Jan 17 2 sons
tumor appendix/colon
Muc Adeno 4cm
mod diff G2 T4aN2
nodes 8/50
CEA 4.6 after surgery <.05
KRAS G12D MSS
FOLFOX Apr-sep 17
Clean CT Jul 2017, oct 17, CEA 3.4, 8.1. May 18 2.3,1.0,1.3, 1.3, 1.0, 2.3, 2.2, 2.1,2.2,1.6,1.4,1.5,2.8,2.2
Oct 2017 clean CT
Nov 17 PET para aortic nodes Stage IV
Folfori w/avastin Dec 17
May 18- surgery on nodes xeloda continues
Aug 18-CT NED Clear CT's Nov 18-May 20
July 20- it’s back! Rt ovary Full hysterectomy CEA 1.7 chemo break

Dennyp
Posts: 8
Joined: Thu Oct 29, 2020 9:28 pm

Re: Solitary common iliac recurrence

Postby Dennyp » Sat Jan 30, 2021 11:51 pm

I had chemo before surgery, so the plan now is to wait and watch.
5/19 IIIC sigmoid cancer 2/25 lymph nodes positive
5/19 surgery
7/19 FOLFOX 6 months
9/20 recurrence to single lymph node
10/20 FOLFIRI 5 rounds
1/21 surgery to remove lymph node

Brearmstrong
Posts: 100
Joined: Sun Mar 26, 2017 3:24 pm
Location: CT

Re: Solitary common iliac recurrence

Postby Brearmstrong » Sun Jan 31, 2021 7:24 pm

Thank you for responding. I am in the same situation although had a positive signatera test after surgery so I am on a watch and wait that unfortunately is just that, not if but when it shows up. Best of luck to you!
48 F Jan 17 2 sons
tumor appendix/colon
Muc Adeno 4cm
mod diff G2 T4aN2
nodes 8/50
CEA 4.6 after surgery <.05
KRAS G12D MSS
FOLFOX Apr-sep 17
Clean CT Jul 2017, oct 17, CEA 3.4, 8.1. May 18 2.3,1.0,1.3, 1.3, 1.0, 2.3, 2.2, 2.1,2.2,1.6,1.4,1.5,2.8,2.2
Oct 2017 clean CT
Nov 17 PET para aortic nodes Stage IV
Folfori w/avastin Dec 17
May 18- surgery on nodes xeloda continues
Aug 18-CT NED Clear CT's Nov 18-May 20
July 20- it’s back! Rt ovary Full hysterectomy CEA 1.7 chemo break


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