3 months left of life

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I_will_fight
Posts: 45
Joined: Mon Jun 29, 2020 3:38 pm

Re: 3 months left of life

Postby I_will_fight » Sun Oct 18, 2020 11:37 pm

So sorry to hear this Nicole.

My father was a young doctor, still completing his training as traumatologist, he was 26. He had two little kids ages 1.5 (my sister) and 2.5 (myself)

One day he felt some pressure in his chest, he had some checks done, nothing showed up. The next day he suffered a heart attack and passed on, nothing could be done to help him.

I guess I am trying to say we are all on borrowed time. All we have is a lifetime, it may be shorter or longer, nobody really knows.

I hope you far outlive those three months, and I hope you enjoy good times with your son.

Best wishes and hugs.

Javi
46 yo male at DX from Spain
June 2020 - 6 cm T3N0M0 cancer on left colon
No evidence of liver mets, two milimetric dots in lung, 3 and 4 mm (currently not considered mets)
lymph nodes 0/37
MSH6 non expressed, other MMR proteins present
KRAS mt G13D
Vascular invasion: absent
LNI: absent
PNI: present
July 8th 2020 - 50 cm colon and spleen removed, clean margins, optimistic surgeon.
Aug 2020 - start of XELOX regime, four cycles.

Punky44
Posts: 453
Joined: Mon Oct 01, 2018 4:29 pm

Re: 3 months left of life

Postby Punky44 » Tue Oct 20, 2020 1:02 am

It hurts my heart to read this update and I feel inadequate with words for what you are going through. I hope you can get a small bit of comfort knowing many people across the world including myself, though we’ve never met you, are touched by your story and are thinking of and praying for you and your son.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Lee
Posts: 6165
Joined: Sun Apr 16, 2006 4:09 pm

Re: 3 months left of life

Postby Lee » Tue Oct 20, 2020 6:22 pm

You continue to be in my thoughts & prayers,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
Maggie Nell
Posts: 1142
Joined: Wed May 27, 2015 1:57 am
Location: Central Highlands, Victoria, Oz

Re: 3 months left of life

Postby Maggie Nell » Thu Oct 22, 2020 4:26 am

Well, that sucks..........

DOESN'T ANYBODY SWING CHICKENS IN HERE NO MORE .........................


Image
DX April 2015, @ 54
35mm poorly diff. tumour, incidental finding following emergency r.j hemicolectomy
for ileo-colic intussusception.
Lymph nodes: 0/22
T3 N0 MX

Sorbitol is the Devil
Ordained Dudeist Priest at Dudeism, the Church of the Latter-Day Dude 8)

michelle c
Posts: 1910
Joined: Wed Dec 02, 2009 3:58 am

Re: 3 months left of life

Postby michelle c » Wed Oct 28, 2020 2:21 am

Not the news anyone wants to hear.

I know that you must be concerned about your son. Sending strength, love and peace to you and your loved ones. You and your son and family remain in my thoughts and prayers ❤️
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

stu
Posts: 1396
Joined: Sat Aug 17, 2013 5:46 pm

Re: 3 months left of life

Postby stu » Wed Oct 28, 2020 3:03 pm

Still in my thoughts too !
Much love ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

User avatar
Atoq
Posts: 388
Joined: Wed Oct 25, 2017 9:31 am

Re: 3 months left of life

Postby Atoq » Wed Oct 28, 2020 4:02 pm

I am really sorry, I wish I could do more than just sending a big hug.

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

User avatar
beach sunrise
Posts: 298
Joined: Thu Mar 05, 2020 7:14 pm

Re: 3 months left of life

Postby beach sunrise » Fri Oct 30, 2020 12:12 pm

Hi Trying, I am crying with you. It is the most devastating news. I hope and pray you are able to feel good and enjoy Thanksgiving and Christmas with your lil boy and family. I am praying hard for you that you will have the strength for those really good days to make more memories.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

Nordy1
Posts: 44
Joined: Tue Oct 02, 2018 11:45 pm

Re: 3 months left of life

Postby Nordy1 » Thu Nov 12, 2020 10:20 pm

My heart is breaking for you and your family. I am so sorry for your little one.

We as a society are so removed from death and have had it so sanitized in our modern world that it makes coming to terms with it harder for everyone involved. Even speaking of death or impending death makes people so uncomfortable that they can’t begin to even think about it - let alone talk about it.

The idea left earlier about cards and videos left with someone for your son is tremendous, although it would be incredibly hard to do.

Wishing you peace and love
Nordy
jan 2018 emergency room via ambulance rectal bleeding event
dx Feb 2018 sigmoid adenocarcinoma 2.5 cm, 3 small extranodal foci resected march 2018
stage 3A T1 n1c
multiple indeterminent nodes in liver, lungs and kidney
11 rounds folfox with oxyplatin stopped with full nephropathy of hands and feet
currently waiting next scan in Feb. 2019

utahgal7
Posts: 26
Joined: Fri Sep 11, 2020 12:04 pm

Re: 3 months left of life

Postby utahgal7 » Fri Nov 13, 2020 11:53 am

Nicole,

I am still thinking of you and your son. I will continue to pray for you.

Hugs,

Paige
02/20 Rectal Cancer Diagnosis
03/20 CEA 2.7 ST Radiation - 25Gy over 5 days
04/20 LAR surgery w/ ileostomy (6 lymph nodes retrieved, 1 node positive for cancer)
04/20 T3N1M0; MSS
05/20 CAPEOX (had to discontinue because Oxaliplatin caused temporary blindness in left eye)
06/20 CEA 0.9
08/20 Ileostomy reversal
09/20 CEA 1.4, CT chest/abdomen/pelvis; suspicious areas in liver
10/20 MRI liver; dx hemangioma

Kekeg
Posts: 184
Joined: Mon Oct 01, 2012 12:31 am
Location: Arkansas

Re: 3 months left of life

Postby Kekeg » Mon Nov 16, 2020 11:42 pm

So very sorry for your situation. Others have suggested writing cards or letters to your child and I highly recommend you do this. Writing him will be something you can do for him now and will be so meaningful to him as he grows up. God bless you and your family.
KeKeG age 58
Colon cancer - adneocarcinoma dx 5/2011
Stage III b
T3N1Mx
Rt colectomy 5/2011
Chemotherapy 6/2011 -2/2012
5FU, leukovorin, irrintocan
PET clear 2012
Lung nodules on chest CT 8/2012, unchanged 12/2012
CT 4/9/2013 NED, nodules unchanged
CT 4/2014 NED, nodules unchanged
CT 4/2015 NED nodules both lungs, unchanged size
CT 5/2016 NED 5 year survivor of Stage IIIB!!

boxhill
Posts: 641
Joined: Fri Apr 06, 2018 11:40 am

Re: 3 months left of life

Postby boxhill » Sun Nov 22, 2020 4:57 pm

Nicole,

Still thinking of you, as I am sure all here are.

Peace and blessings to you and your family.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

User avatar
CRguy
Posts: 10245
Joined: Sun Feb 10, 2008 6:00 pm

Re: 3 months left of life

Postby CRguy » Mon Nov 23, 2020 12:15 am

Hey Nicole
like all of us here,

continuing to send you prayers

Love Peace and Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Punky44
Posts: 453
Joined: Mon Oct 01, 2018 4:29 pm

Re: 3 months left of life

Postby Punky44 » Tue Nov 24, 2020 6:19 pm

You continually cross my mind. Thinking of you and your family.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

User avatar
beach sunrise
Posts: 298
Joined: Thu Mar 05, 2020 7:14 pm

Re: 3 months left of life

Postby beach sunrise » Wed Nov 25, 2020 1:42 am

I am praying hard that you are having good days for special time with your lil boy and family. I like to think of yall snuggled up enjoying shows and telling stories, ect. You are always in my thoughts and I pray hard every day.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"


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