3 months left of life

[Trying]

So the stunt they put in my liver last week didnt work. I was back at the hospital ttoday with jaundice that hasn't left and yellow eyes. We talked to my oncologist who said my liver has been taken over by cancer almost completely. There's no point in chemo as mu body wont handle it. I always thought of an alternative route but if even vitamins aren't getting through I dont see which alternative route to take. This is it. Jm terrified and praying for a miracle. The dr said j will just become more jaundice and tired and that I will pass. I already had another opinion but with the liver the way it is there is nothing they can do. Sorry for my family. My poor little boy! You have all been such a support in 2.5 years. Thank you all

Nicole

[ginabeewell]

Ugh, I am so sorry. Not sure what to say or how best to be helpful. I know I’ve been reading about fenben protocol, and it’s something I might choose to try if I get to the point where traditional chemo isn’t helping.

What about trials? Are you eligible for anything?

I hope you have someone who is supporting you tonight in real life. But hopefully folks here will be of some comfort.

[Hopepray]

Sorry you're going through this. You are in my prayers and I pray that you get out of this. I have read a lot of ppl do get out of tough situations like this. Just speak to your docs and get few more options and try it you never know what might work.

[AmyG]

Well that's awful. I have no words of wisdom, just wanted you to know I'm thinking of you. I realize that doesn't help you or you liver. but I do hope you have a real life support system.

How old is your son now?

[Claudine]

Dear Nicole,

I apologize if anything I write is inappropriate, or callous, or very unhelpful - our western society is so disconnected with the end of life, we (or at least I) do not know how to deal with it, talk about it... But, a few thoughts...

This may be totally stupid, but have there ever been liver transplants for people with cancer? Would that be an option?

I would also say - they give you 3 months, but from what I've heard from others, it is often a worst-case scenario (they do not want to give false hope, I guess) and you may have more time with your son than this. During this time, do not give up - keep researching possibilities, keep abreast of current research, there is a lot happening with cancer treatments these days. How about alternative treatments - as long as they're not a financial drain?

And unlike sudden events like heart attacks or car crashes, at least with a progressing disease one has time to make preparations - get things in order, make plans - you are a single mom but hopefully you have a good support network, relatives, close friends who can help you now, but also help your son in the event you are now longer able to take care of him? I read somewhere about mom who wrote many letters to the children she would leave behind, to be opened at special times along their lives (birthdays, graduations, etc), so a little bit of her would always be there and accompany them throughout their lives. If you have the strength and energy to do so, of course.

Again, I really apologize if what I wrote is upsetting to you, I feel powerless in the face of what you are going through...

[Claudine]

It looks like liver transplant is actively studied: https://www.hindawi.com/journals/cjgh/2018/9531925/

[utahgal7]

This is terrible and I am very sorry. I will say a prayer for you. Although, I don't know you...I wish I could give you a hug.

[Trying]

Thank you all for the kind words. A liver transplant is a great suggestion but since its spread to other parts they wont touch it. I appreciate of your kind responses and prayers.

Nicole

[Lee]

Trying, words can not express the sadness I feel for this latest news. I hope & pray you still have good days ahead.

One thing I am going to recommend, write letters, special cards of special event to your son, experiences he will have in his life, especially growing up. Do it now & give to a special friend to give to him when those times come. Like special birthdays, special events like graduations, marriage, etc. Let him know how much you love him, that you are with him in spirit. Speak from the heart. While you may not be there in the physical world, you are there with him in the spiritual world.

You and your family are not far from my thoughts and prayers.

Lee

[CRguy]

Hey Nicole

I AM sending you prayers, best wishes
Love, Peace and Harmony

Doctors can be wrong
with guesstimates and estimates
and
Hope is always on the table

Whatever you need from us
your online family
just ask
we are here for you
and will be here with you

Namasté
" the light within me, honours the light within you "

CRguy

[Monimom]

Reading this breaks my heart for you, I don't have any advice medically as this is a new journey for us as well, please don't be offended, but one thing that jumped out at me that I really would like to say is, don't be afraid, I know that sounds so irresponsible of me to say, and I don't know if I will be admonished for saying this, but there is a God in heaven who knows you , and your situation, if you haven't or don't already , please reach out to him, I will pray for you to feel his peace with everything going on, as well as your son, again i apologize if this is offensive , but I have personally experienced the power of god, and feel compelled to share.

(((Hugs))) & many prayers,
Moni

[stu]

Hi Trying ,
So sad to hear this news . I was hoping so much for better news for you and your family . Still praying for you and your family and holding you all in our hearts .
Stu

[boxhill]

Dear Nicole,

I'm so very sorry to hear this news. My first thought was the possibility of transplant, since I know it has worked for some, but I gather it is not to be. Is it too late to consider the HAI pump? Trials?

I know there is a balance one has to achieve between those kind of measures and quality of life that enables one to do the work of achieving acceptance and right relationship with loved ones that will endure. I love the suggestions that others have made of writing cards and notes to be delivered to your child in the future, so that s/he feels your love and caring.

I hope that you achieve the peace and love that you and your loved ones deserve.

Janet

[NHMike]

Sorry to hear this. I also thought of transplant but I guess you'd need a donor and I don't know how that works. I would look at trying to do the most with remaining time. This is what I was thinking about after diagnosis not realizing that I could survive.

[DarknessEmbraced]

I'm so very sorry.*hugs*