Eight years and counting ...

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O Stoma Mia
Posts: 1602
Joined: Sat Jun 22, 2013 6:29 am

Eight years and counting ...

Postby O Stoma Mia » Tue Oct 13, 2020 11:42 am

Just a short note to let y'all know that I have now completed my 8th year in remission.

That's about all the news for now.

Warm wishes to all. Take care, and keep safe!
Last edited by O Stoma Mia on Tue Oct 20, 2020 1:55 pm, edited 1 time in total.

JLD13
Posts: 7
Joined: Sun Feb 05, 2017 12:20 am

Re: Eight years and counting ...

Postby JLD13 » Tue Oct 13, 2020 12:29 pm

Congrats!! That’s amazing! Love reading those kind of posts! Wishing you continued health!

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Jack&KatiesMommy
Posts: 628
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: Eight years and counting ...

Postby Jack&KatiesMommy » Tue Oct 13, 2020 2:21 pm

How wonderful!!!!! So happy to see and hear this! Please fill out your signature with your diagnosis and what you have gone through so that others looking for hope can see that this is possible!!!
Cynthia
Cynthia
Mommy to Jack (8) now (17) and Katie (4) now (13)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

boxhill
Posts: 609
Joined: Fri Apr 06, 2018 11:40 am

Re: Eight years and counting ...

Postby boxhill » Tue Oct 13, 2020 6:47 pm

So happy to hear that, and also so grateful for all of the excellent information you have dispensed over the years. :)
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

Claudine
Posts: 438
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Eight years and counting ...

Postby Claudine » Wed Oct 14, 2020 10:15 am

Fantastic :D :D :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 24.1
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 09/20: nothing to report

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Atoq
Posts: 387
Joined: Wed Oct 25, 2017 9:31 am

Re: Eight years and counting ...

Postby Atoq » Wed Oct 14, 2020 11:18 am

Congratulations! :D

Best

Claudia
1972, 2 kids
Dx rectal cancer 10.2017
T3N2aMX (suspect met left lung 8 mm)
Lynch neg
CEA 1.8
Neoadjuvant chemoradio Xeloda + 25x2 Gy
05.12.17 laparotomic surgery for blockage, colostomy
25.01.18 laparotomic lar, hysterectomy, ileostomy
05.03.18 core needle lung biopsy , stage IV
07.05.18 CAT scan, lung met 11 mm
04.06.18 ileo reversal
26.06.18 wedge VATS
24.08.18, 31.02.19 CAT scan
12.09.18, 06.02.19 scope, CEA 1.6
19.11.18 colonscopy
20.08.19 CAT, eco
13.09.19 scope, CEA 1.2
18.03.20 CAT, eco, scope, NED

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beach sunrise
Posts: 250
Joined: Thu Mar 05, 2020 7:14 pm

Re: Eight years and counting ...

Postby beach sunrise » Wed Oct 14, 2020 2:45 pm

I am so happy for you!
You have been such a good supporter of everyone here. I have learned alot from you. Thank you for that.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

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horizon
Posts: 1548
Joined: Tue Apr 12, 2011 10:10 pm

Re: Eight years and counting ...

Postby horizon » Wed Oct 14, 2020 4:03 pm

Congrats!
I'm just a dude who still can't believe he had a resection and went through chemo (currently 8 years NED). Is this real life?

Lee
Posts: 6134
Joined: Sun Apr 16, 2006 4:09 pm

Re: Eight years and counting ...

Postby Lee » Wed Oct 14, 2020 4:38 pm

AWESOME JOB!! Keep it up

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
O Stoma Mia
Posts: 1602
Joined: Sat Jun 22, 2013 6:29 am

My CRC Journey

Postby O Stoma Mia » Thu Oct 15, 2020 4:16 am

Thanks to everyone for the kind, encouraging comments.

For those who would like to see my signature, here is an abridged version.  It doesn't contain everything, but it covers most of the essentials:

=================

2012 - Colonoscopy: DX, Rectal Cancer: very large, invasive, obstructing tumor found; colonoscope was unable to proceed past the blockage; impossible to examine the rest of the colon. Colonoscopy biopsy: Adenocarcinoma, moderately differentiated.

2012 - Initial bloodwork and scans: CEA normal; initial scans, ultrasounds and xrays showed no lymph node involvement and no distant (liver or lung) involvement.

2012 - LAR + ileostomy surgery (long, extensive open surgery, 8 hours in operating room, followed by one day in the ICU)

2012 - Pathology report: T4bN0M0. Mid- and upper rectum removed; recto-sigmoid junction removed; part of sigmoid colon removed, and parts of several adjacent organs also removed due to T4b tumor invasion. Altogether, two different tumors removed, one in upper rectum and another one in lower sigmoid colon. No genomic or genetic testing ever done.

2012 - Five weeks of post-surgery, adjuvant chemo-radiation beginning one month after surgery.

2013 - Four months of XELOX adjuvant chemotherapy commencing 5 weeks after completion of the adjuvant chemo-radiation regimen above (Xeloda + Oxaliplatin via peripheral IV to vein in hand).

2013 - Ileostomy reversal surgery performed 5 weeks after completion of XELOX regimen.

2013 - Discovered Colon Club in June and registered under screen name of "O Stoma Mia "

2013 - Started five-year surveillance period that required quarterly bloodwork and annual CT scans.

2018 - Completed five-year surveillance period. All quarterly CEA measurements over five years turned out normal and less than 1.5 ng/ml. None of the  annual CT scans or PET/CT scans showed any evidence of a recurrence.

2019 - Discharged by oncologist. No more quarterly bloodwork; no more annual CT scans.  Any scans and bloodwork required in the future to be ordered by family doctor.

2020 - My 19-year old orange tabby cat died of old age.  He had been my constant companion throughout all my months of treatment and recovery.

=================
Last edited by O Stoma Mia on Fri Oct 16, 2020 2:43 am, edited 2 times in total.

Paradise2020
Posts: 12
Joined: Mon Jul 13, 2020 1:05 pm

Re: Eight years and counting ...

Postby Paradise2020 » Thu Oct 15, 2020 7:41 am

Congrats! Your story gives a lot of people hope. So happy for you!

Claudine
Posts: 438
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Eight years and counting ...

Postby Claudine » Thu Oct 15, 2020 10:15 am

2020 - My 19-year old orange tabby cat died of old age. He had been my constant companion throughout all my months of treatment and recovery.


Aww sorry about losing your pet - 19 years, what a long life! We recently had to say goodbye to our sweet Gali, she was 16; and now are the happy parents of two 6-month-old black kittens that definitely bring a lot of energy to the house! I have been slowly trying to prepare myself mentally for many losses - my aging parents are still doing really well, but they won't be with us forever; and of course my beloved husband, I am an eternal optimist but also trying to be lucid in the face of stage 4 cancer. So, kittens to bring new life into the house, and accompany us along the way, now that our human children have left the nest :)
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 24.1
Scan 03/19: Multiple small lung nodules, now gone
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and partial corpectomy 05/20
Scan 09/20: nothing to report

User avatar
CRguy
Posts: 10235
Joined: Sun Feb 10, 2008 6:00 pm

Re: Eight years and counting ...

Postby CRguy » Thu Oct 15, 2020 9:46 pm

thanks for checking back in OSM !

Cheers and best wishes moving forward on your Journey
HEY don't be a stranger around here !!!!

AND ... I belive you will know how I feel about fur buddies,
so I am sending my sympathies over you losing yours.

In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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