Sigmoid colon large tumor

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Lilly2020
Posts: 1
Joined: Thu Oct 08, 2020 1:28 am
Facebook Username: don't have one

Sigmoid colon large tumor

Postby Lilly2020 » Thu Oct 08, 2020 1:54 am

Hi Everyone,
I've recently found out I have a cancerous mass in or on or around the Signoid Colon area, no measurements were given. When the colonospy was done one month ago today they couldn't get past the mass with the instrument, at this stage I do not know what stage its at or what type of surgery is needed as they said they are unsure until the day, or even if I will need a stoma bag, I'm not even sure about Chemo yet. My surgery is on Monday! and I am terrified, there is so much I don't know. I have been a mess for the past month and cannot seem to focus. I'm going to try and concentrate on one thing at a time, so for now it's the operation and that is very much freaking me out. Please help me put my mind at ease as I fear I will go crazy soon. Thanks Lilly.

Claudine
Posts: 433
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Signoid colon large tumor

Postby Claudine » Thu Oct 08, 2020 10:13 am

Welcome to the forum, Lilly2020. No one ever wants to be here, but it's provided many with support and comfort in difficult times, and answers to many questions.
All I want to say is - as scary as the surgery you're about to undergo may feel, focus on the positive: you will have answers afterwards, and the mass will be out of your body! My husband had 3 surgeries so far, and all went very well.
Sending good vibes your way for Monday - please keep us posted XXXXX
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 24.1
Scan 03/19: Multiple small lung nodules up to 5mm
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20
Scan 09/20: nothing to report

sdino
Posts: 84
Joined: Tue Mar 28, 2017 5:32 pm

Re: Signoid colon large tumor

Postby sdino » Thu Oct 08, 2020 11:13 am

Hi Lily – My Wife just had a Colonoscopy last week. She has a large sigmoid colon mass located approx. 15cm from her anal verge. Due to the size of tumor and surrounding edema, they were unable to advance the scope pass the tumor.

With this all being said, National Institute of Health took out a 5cm tumor from her bottom left lung also last week. Once she recovers from lung surgery, they will then go after the colon tumor. So… the tumor being up 15cm from the anal verge, they feel there will be no need for a colostomy bag at all. (So a bag requirement depends where the tumor is located and how much damage the tumor did and can be seen on the colon itself). It's a case by case basis.
Caregiver for Wife 54 yrs old
DX:11/16-CC sigmoid colon
Lung Mets: 25+ Bilateral ranging 4mm-5.0cm
MSS, KRAS-G12D; TP53
iTCR TIL Trial NCT03412877 4/19 to 7/19 Off trial, - Sept. 2019 TIL trial NCT01174121
CT Scans: 7/2020 lung met shrinkage 36%, 3 lung mets left, two Liver mets destroyed by TILs
Brain tumor removal 3/2020
CEA:16-11/16; 5 -9/18; 63 -8/19; 1 -1/20; 0.8-5/20

DarknessEmbraced
Posts: 3499
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Sigmoid colon large tumor

Postby DarknessEmbraced » Sat Oct 10, 2020 8:15 am

I'm sorry for your diagnosis and I hope your surgery goes well.*hugs* My best word of advice is to walk as much as possible after surgery because it helps to get the bowels working again.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

utahgal7
Posts: 14
Joined: Fri Sep 11, 2020 12:04 pm

Re: Sigmoid colon large tumor

Postby utahgal7 » Sat Oct 10, 2020 12:08 pm

Hi Lilly,

I am sorry to hear you have been diagnosed with cancer and it is causing you anxiety. I am not really the person to be giving advice about anxiety, but I can try to help. Have confidence in your surgeon and the medical staff. If you can find an activity to distract you, perhaps it would take your mind off things for a bit. I don't know if you like to watch movies or enjoy reading. If you are able to leave the house, a brisk walk works wonders. Sometimes a drive in the car can help.

Hope this helps! Do you know what type of surgery you are having? I did have a ileostomy bag. Once I got over the initial shock of it, I realized it wasn't a big deal.

There are some wonderful people on this forum. If you have questions, please reach out to the folks on here.

Have a great weekend! Sending a hug!
02/20 Rectal Cancer Diagnosis
03/20 CEA 2.7 ST Radiation - 25Gy over 5 days
04/20 LAR surgery w/ ileostomy (only 6 lymph nodes retrieved)
04/20 T3N1M0
05/20 CAPOX (had to discontinue because Oxaliplatin caused temporary blindness in left eye)
06/20 CEA 0.9
08/20 Ileostomy reversal
09/20 CEA 1.4, CT chest/abdomen/pelvis; suspicious areas in liver
10/20 MRI liver; dx hemangioma

missnattlebee
Posts: 4
Joined: Tue Oct 06, 2020 11:30 am
Facebook Username: Natalie.Jeffers

Re: Sigmoid colon large tumor

Postby missnattlebee » Mon Oct 12, 2020 12:05 am

Aloha Lilly!
I'm so sorry to hear about your diagnosis. I had a sigmoidectomy in mid July. I did not end up having any bag. I was out of the hospital in 4 days. The staging will be done when they retrieve information on how its penetrated your walls and if there's any metastasis and after checking the lymph nodes in the area. Hoping all is well thus far, we all are here to support you!
40yr old single mom of 5
Diagnosed with stage IV cancer (Adenocarcinoma) in mid July due to metastases in the liver.
Sigmoidectomy on 7/28
3 of 17 lymph nodes tested positive and were removed
Malignancy - Negative
MSI - Negative
pT3
pN1B
Stage IIIB if M0 but of course it had metastasized in the liver which bumped me to Stage IV.
BRAF - Not Detected
KRAS - Not Detected
NRAS - Not Detected
Last CEA 8/20 - 7.5
Chemo Meds - Folfox (Oxaliplatin, Leuvovorin, 5FU) & MVASI

shaina
Posts: 3
Joined: Mon Oct 12, 2020 11:11 am
Facebook Username: shaina.leskin

Re: Sigmoid colon large tumor

Postby shaina » Mon Oct 12, 2020 11:52 am

Hi, I'm also new to this site (unfortunately!) I was diagnosed with stage IV b adenocarcinoma two years ago. I started with chemo then went to surgery.

You just have to trust in your doctors and nursing specialists. If you're religious, pray! Also, if you can lean on your GP, so much the better. Get hold of a local support group if you can. Ask questions and if necessary, take a pen and paper and write down the answers (I found I was in too much of a state to take in the information they were throwing at me). Take advantage of anything "extra" that anyone offers you, and don't be afraid to ask for help (rides to hospital, someone to sit with you during chemo, someone to visit you after the operation, meals at home, whatever your situation demands). Be specific when people offer help (I hate, 'anything I can do, just let me know!')

Remember, no situation lasts forever. Things will change (please God, for the better!) Wishing you much luck with your surgery, please post how it goes.


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