I got a call to go right to the ER

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Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

I got a call to go right to the ER

Postby Trying » Fri Oct 02, 2020 5:40 pm

I got a call yesterday morning to go straight to the closestER. My numbers were showing I must have something trapped in my bile duct. I was there all day yesterday. My poo started to turn white which they said it would. My urine is brown which I thought was from new vitamins I was taking. They did an ultrasound which showed a dialated duct with something in it. I am to take it easy until tuesday when I go for a camera scope. I'm pretty sure its cancerous. They said that is their concern too. I just feel so scared and alone even though I have a supportive family. All sorts of worst case scenarios are running through my head. Please pray or send healing and strength to me. For my little boy. He needs his momma. I'm so emotionally weak I'm having trouble keeping my head up right now. Inspirational words welcome too.
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Lee
Posts: 6134
Joined: Sun Apr 16, 2006 4:09 pm

Re: I got a call to go right to the ER

Postby Lee » Fri Oct 02, 2020 7:51 pm

BOY, are you going to be in my thoughts & prayers!! For a speedy recovery.

Something that rang true around here a few years ago, "breath in, breath out", REPEAT!!!

One step at a time.

One thing that really helped me get through some of my darkest days. On a daily basis, I figured if I was learning something new each day, I was not going to be dying anytime soon. It worked for me. Learned some pretty strange stuff :shock: .

One day I was reading about "mourning" jewelry, popular during the civil war through the early 20th century when someone dies. One day at a church thrift store/auction house, I thought I had found one of those "mourning" jewelry along with some pure junk jewelry. Old tin type photo on one side, human hair on flip side. Knew I had & started talking about it. Women behind the counter pretty much dropped her jaw. How do I know this, my friend came up, stated she (me) likes to learn some pretty strange info at times. Anyway, I was going to place a bid on item, women behind counter said no, you take it home today. These items have been here for 2 weeks, you are the 1st person to know what it was. It's going to a good home. I still have it today.

The other thing I am going to pass along. When you get beyond this new medical crisis ( & know in your heart, you will), every few weeks, hook up with a friend, do something you enjoy, one day you do not think about cancer, a normal day. That also helped me.

Know this is just another challenge in your cancer journey, you will overcome this. As a mother to school age kids, you will find strength you did not know you had.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: I got a call to go right to the ER

Postby Trying » Fri Oct 02, 2020 8:33 pm

Thank you Lee. Your words are always a comfort.
Nicol
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

Punky44
Posts: 446
Joined: Mon Oct 01, 2018 4:29 pm

Re: I got a call to go right to the ER

Postby Punky44 » Fri Oct 02, 2020 11:20 pm

Hi Nicole!

You are in my prayers!! I hope you get answers soon <3
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3; 2.4
Latest update: 6/20–Clear CT; 9/22—CEA 2.4

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.

Detox
Posts: 58
Joined: Fri Apr 28, 2017 5:27 pm

Re: I got a call to go right to the ER

Postby Detox » Sat Oct 03, 2020 12:31 am

Sorry to hear about your bile duct. Something I did which helped me was to just forget about tomorrow, I know easier said than done. But since none of us know what will happen tomorrow, we can just try to live for the now and do things we enjoy now.

Keep us posted.

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: I got a call to go right to the ER

Postby Trying » Sat Oct 03, 2020 8:24 am

Thank you guys!
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

DarknessEmbraced
Posts: 3499
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: I got a call to go right to the ER

Postby DarknessEmbraced » Sat Oct 03, 2020 9:31 am

I'm so very sorry you're having issues with your bile duct.*hugs* I hope you get answers and feel better soon.
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

boxhill
Posts: 609
Joined: Fri Apr 06, 2018 11:40 am

Re: I got a call to go right to the ER

Postby boxhill » Sat Oct 03, 2020 7:29 pm

Trying, big hugs and healing wishes for you. I wish we could all be there to give you in person hugs.
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Stop Key
8/20 MRI NED

User avatar
Jack&KatiesMommy
Posts: 628
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: I got a call to go right to the ER

Postby Jack&KatiesMommy » Sat Oct 03, 2020 8:35 pm

Stay calm...and remember you are a Mama and you will do what it takes to get through this for your son. I did this....many many rounds of chemo, surgery after surgery, recurrences, trying over and over to hang on for my babies. Set small goals...fight through the fear and keep going and pray....God will guide you and hold you. I will be praying for you for good things. Sometimes when things see their worst...they will get better.

((HUGS))
Cynthia
Cynthia
Mommy to Jack (8) now (17) and Katie (4) now (13)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

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ginabeewell
Posts: 464
Joined: Wed Oct 24, 2018 10:30 am

Re: I got a call to go right to the ER

Postby ginabeewell » Sat Oct 03, 2020 9:37 pm

Jack&KatiesMommy wrote:Stay calm...and remember you are a Mama and you will do what it takes to get through this for your son. I did this....many many rounds of chemo, surgery after surgery, recurrences, trying over and over to hang on for my babies. Set small goals...fight through the fear and keep going and pray....God will guide you and hold you. I will be praying for you for good things. Sometimes when things see their worst...they will get better.

((HUGS))
Cynthia


This is excellent advice. My husband has similarly encouraged me - I have been through lots of tough stuff before, and we deal with it as it comes. So far so good. I say I need to stay alive or who would clip those little fingernails?! Moms gotta survive.

We are with you supporting you and hoping they can quickly get you back into good shape!!
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: I got a call to go right to the ER

Postby Trying » Mon Oct 05, 2020 1:27 pm

Thank you guys for the thoughtful words.
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020

User avatar
Jack&KatiesMommy
Posts: 628
Joined: Wed Dec 21, 2011 1:08 pm
Location: Columbus, OH

Re: I got a call to go right to the ER

Postby Jack&KatiesMommy » Fri Oct 09, 2020 8:43 pm

Just wanted to check in and see how you were doing. Been thinking about you and your sweet son.
Cynthia
Cynthia
Mommy to Jack (8) now (17) and Katie (4) now (13)
(My Most Precious Things)
Dx 8/11 Stage IV CRC (liver mets) CEA 2,600+
9/11 Folfiri 2/12: Failed Liver Resection
5/12 HAI pump/removed primary
4/13 Liver Resection
8/13-12/15 (10) RFAs lungs
5/17: Upper Left Lobe of lung resected.
02/18: 3 new lymph mets lung
05/18: Keytruda (MSS w/Intermediate TMB): NED CEA: 66.4, 39.2, 23.8, 13, 3.5 1.8, 1.0, 2.8 3.9, 5.0, 5.6, 1.5, .8,

Trying
Posts: 250
Joined: Sun May 13, 2018 10:11 pm

Re: I got a call to go right to the ER

Postby Trying » Wed Oct 14, 2020 6:28 pm

Hi cynthia

Not so good. Ijust posted a new post. They are giving me 3 months
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy
Oxy failed- irinotecan as of of Sept 2020


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