Diagnosed in twenties

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henny-crc
Posts: 17
Joined: Mon Sep 14, 2020 6:09 pm

Diagnosed in twenties

Postby henny-crc » Mon Sep 21, 2020 2:11 pm

Are there any long term survivors on this forum, who have been diagnosed in their childhood or twenties? Or just cases you know?
I tried to google survival stories of people my age, and almost all of them are dead now. The Adalis Martinez story was actually very similiar to mine, t1 polyp and then the discovery of lymph nodes. Sadly, she became an angel this summer, on the same week with my surgery date.
I am very scared of dying this young, please, give me some hope.
Dx 06/20
23 yo
Stage 3A
T1N2a

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Diagnosed in twenties

Postby Lee » Mon Sep 21, 2020 5:45 pm

Hi and welcome, sorry for the reason you are here.

Yes I know of a few survivors. One was 26, stage IV. that was over 15 years ago. While I did not meet her personally, she is a niece of a good friend of mine. She got treatment at MD Anderson in Houston, TX and would eventually go on to have her 2nd child. They found out after her diagnoses, that colon cancer runs in her family, they just never talked about it. Because of her early diagnoses, they were going to start scooping the kids starting at age 10.

This was another site, a mother had been diagnosed in her 30's. She beat it last I heard over 10 yrs. I believe she is still alive. Anyway because of her, they scooped her 16 yrs son, and found polyps in him. Can't remember how many, butt more than one.

There was a member here a long time ago. I believe her name was "Harley's mom". Her son was diagnosed in his teens. Son had made a comment to her that he sometimes would pass blood. She passed this information along to his doctor, doctor just assumed hemorrhoids. One day she was putting laundry away in son's dresser when she tripped on some heavy blood soaked underwear. Knew then, this was more than hemorrhoids, called the doctor, doctor said take son directly to hospital. Called his school, informed them she was taking her son out of school ASAP, have him ready.

When she got him, informed him what she had found and where he was going. Guess he was relieved. They would do surgery on him, stage I. They felt he was lucky & very much in God's hands. Yes he did beat it. Mom was here for a few years then moved on. I will see if I can find any of her old threads.

I gather you already had surgery. Do you have a stage? Are they doing any chemo?

Good luck, know that you are not alone here.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Diagnosed in twenties

Postby Lee » Mon Sep 21, 2020 6:12 pm

Well the kid's name is Harleyman, his mom's name was Harleymans mom. Here is one thread, I thought he was stage I, guess it was stage IV. May be confusing different survivors.

viewtopic.php?f=1&t=468

Hope this helps.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

henny-crc
Posts: 17
Joined: Mon Sep 14, 2020 6:09 pm

Re: Diagnosed in twenties

Postby henny-crc » Mon Sep 21, 2020 7:44 pm

Thanks for the reply, Lee. Yes, i did have surgery 2 months ago. Stage 3A, and i hope it stays this way.
Dx 06/20
23 yo
Stage 3A
T1N2a

User avatar
beach sunrise
Posts: 1046
Joined: Thu Mar 05, 2020 7:14 pm

Re: Diagnosed in twenties

Postby beach sunrise » Mon Sep 21, 2020 9:29 pm

Hi Henny, congrats on successful surgery. From what I have read 3A is totally beatable. And you have your age on your side. Back read CRguy and rp1954 on this forum for valuable info you won't find anywhere else. I'm cheering for you!!!
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

Lee
Posts: 6207
Joined: Sun Apr 16, 2006 4:09 pm

Re: Diagnosed in twenties

Postby Lee » Tue Sep 22, 2020 1:57 am

henny-crc wrote:Thanks for the reply, Lee. Yes, i did have surgery 2 months ago. Stage 3A, and i hope it stays this way.


I was stage 3C and still alive & kicking today. Know that you are in a better place than I was back 2004 with stage IIIC. One thing I have learned, people who are active with their treatments tend to fair better than the average folk who do not research. Know that you have found a wonderful place for information & support.
Welcome Aboard!!!

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
ANDRETEXAS
Posts: 662
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Diagnosed in twenties

Postby ANDRETEXAS » Wed Sep 23, 2020 1:46 am

Don't read google. That's a waste of time. Your case is not like any other. Things like side effects that affect others, may not affect you and vice versa. Follow your doctor's plan set out for you. I would add that exercise should help you in your recovery. If you have any questions as you go through your journey, there are many people here who can give you good advice.
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT

3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT

3/23/16 - clean CT

2/22/17- clean CT

3/21/18 - clean CT
4/1 - clean colonoscopy

3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !

4/13/23 - clean colonoscopy

ONE DAY AT A TIME !


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