Postby Rikimaroo » Tue Oct 27, 2020 1:18 pm
Hi Guys,
Just an update, Cycle 4 just completed and CEA gradually keeps going up, I hate CEA....from 5.0 to 6.1 to 8.1 now. Oncologist said that let's see what CT Scan shows and if we have to throw in some Irinetocan (big boy) to bring it back down. Ugh!! I hate Irinetocan, but I will do it if it brings it down, and then continue the maintenance. But I could be jumping the gun here, so cross fingers that its nothing or something they can just zap with Radiation.
Cancer really sucks. Other issue I have is gas just stuck in my abdomen, lower track and it goes and come, eventually it get's out, but I think when I have a bowel movement is when its better. This usually happens if I don't have a bowel movement for a day, which probably means I am constipated, well I know I am cause the poop is like little balls. For those of you with Colostomy do you have this occasional issue? Does Metamucil help with this or recommend something?
Thanks,
Riki
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.