To my CC family

Please feel free to read, share your thoughts, your stories and connect with others!
jep
Posts: 256
Joined: Sun Jun 11, 2017 7:45 pm
Location: New England, USA

To my CC family

Postby jep » Sun Sep 13, 2020 12:06 am

This is the post I never wanted to write....my beautiful, perfect, amazing husband Tim went Home Thursday night after being diagnosed as stage 4 nearly three and a half years ago. I can not articulate what this group has done for me, for my husband, and for my loved ones. Thank you all, and God bless you.
Jill
Stage IV CC 5/16/17
Loc: recto-sig
Type: Adenocarcinoma
Size: 7.4 cm
Grade: G3
TNM: T3N2M1
LNs: 8/20
BL CEA: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps
PET 10/17/18: 3 pos LNs
Irino + Vecti (11/18)
CEA: 1.7 (2/19)
Xel + rad (5/19)
Surgery: 8/21/19 (aborted)
P1 Trial 10/19 - 12/19
Bypass 12/6/19
Folfox + vecti 1/2/19 - 4/3/20
Kid Fail 5/1/20
Folfiri + Avastin 5/20 - 6/20
bypass 6/29/20
Stivarga 7/18/20 -
Home 9/10/20

jep
Posts: 256
Joined: Sun Jun 11, 2017 7:45 pm
Location: New England, USA

Re: To my CC family

Postby jep » Sun Sep 13, 2020 12:14 am

I forgot to tell you that today is his birthday....he would have been 51...
Stage IV CC 5/16/17
Loc: recto-sig
Type: Adenocarcinoma
Size: 7.4 cm
Grade: G3
TNM: T3N2M1
LNs: 8/20
BL CEA: .9
LVI: present
Perineural invasion: present
LAR margins: clear (w/in microns)
Folfox (8/17-1/18)
Scope 6/18 - CLEAR! - 2 polyps
PET 10/17/18: 3 pos LNs
Irino + Vecti (11/18)
CEA: 1.7 (2/19)
Xel + rad (5/19)
Surgery: 8/21/19 (aborted)
P1 Trial 10/19 - 12/19
Bypass 12/6/19
Folfox + vecti 1/2/19 - 4/3/20
Kid Fail 5/1/20
Folfiri + Avastin 5/20 - 6/20
bypass 6/29/20
Stivarga 7/18/20 -
Home 9/10/20

stu
Posts: 1376
Joined: Sat Aug 17, 2013 5:46 pm

Re: To my CC family

Postby stu » Sun Sep 13, 2020 3:46 am

So sad to read that Jep!

Hope you are surrounded by love and support.

Thinking of you ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

AmyG
Posts: 350
Joined: Tue Dec 25, 2018 8:08 pm

Re: To my CC family

Postby AmyG » Sun Sep 13, 2020 11:50 am

I am so very sorry.

I wish I had more to offer, but you're in my thoughts.

Happy birthday Tim.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

lovelife789
Posts: 160
Joined: Thu Aug 24, 2017 5:28 am

Re: To my CC family

Postby lovelife789 » Sun Sep 13, 2020 12:09 pm

I'm so sorry :( my thoughts and prayers are with you.
At least, we know he is at peace, no more sufferings.

Hugz.

Lovelife
F/38 - Dx 8 Mar 17, CEA 189.5
Stage IV Sig. Colon, Liver mets, T3N0M1a, KRAS NRAS Wild
3/17- 6/17 - 6 x FOLFOX + Erbitux
7/17 - 1st & 2nd Liver resec
9-12/17' - 13 x FOLFOX
1-6/18 - NED
6/18 - PET SCAN showed a 0.8mm lung nodule, VATs
8/18 - 4/19 - NED
5/19 - recurrence 1 x PALN, 1x common iliac
FOLFIRI + Avastin x 12 - complete response, SBRT
12/19-5/20 - NED
5/20 - recurrence in LNs, tiny liver spots x 2, W n W due to COVID
8/20 - LNs very slightly increased, liver stable, one new liver spot

Apple1291
Posts: 68
Joined: Mon Jul 04, 2011 2:14 pm

Re: To my CC family

Postby Apple1291 » Sun Sep 13, 2020 2:48 pm

I have been thinking of you. I was following your husband’s story because it reminded me of some of the things my dad went through. I’m so very sorry to find out that he’s passed away. Wishing you comfort in the days ahead. May your husband Rest In Peace.
Daughter to Dear Father 57 years old at diagnosis
T4N0MO July/11
12 rounds folfox completed March/12
Recurrence June/16 peritoneal carcinomatosis
12 rounds folfiri and avastin completed November/16
Many more rounds of chemo and 12 tx radiation

Lee
Posts: 6096
Joined: Sun Apr 16, 2006 4:09 pm

Re: To my CC family

Postby Lee » Sun Sep 13, 2020 3:37 pm

(((jep)))

I am so sorry for your loss, he was way to young. You will be in my thoughts & prayers

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

boxhill
Posts: 589
Joined: Fri Apr 06, 2018 11:40 am

Re: To my CC family

Postby boxhill » Sun Sep 13, 2020 4:03 pm

So very sorry. Wishing strength, healing, and peace to you and your family
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Suspend treatment

Gravelyguy
Posts: 318
Joined: Thu Jul 05, 2018 6:03 pm

Re: To my CC family

Postby Gravelyguy » Sun Sep 13, 2020 9:18 pm

So sorry for your loss,Jill.

Praying for you through this tough time.

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 clear scans, CEA .9 still NED!
6/11/19 clear scans CEA 1.0
12/19/19 clear scans CEA 1.0 still NED!
6/17/20 clear scans CEA 1.1 still NED!

User avatar
CRguy
Posts: 10230
Joined: Sun Feb 10, 2008 6:00 pm

Re: To my CC family

Postby CRguy » Sun Sep 13, 2020 11:25 pm

Sending Love Peace and Harmony to you and your family on your healing Journey

We are still here for you my friend
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Siti
Posts: 171
Joined: Thu Aug 01, 2019 10:58 am

Re: To my CC family

Postby Siti » Tue Sep 15, 2020 1:47 pm

So so sad to hear the news. I am so sorry. I sincerely wish I could give you a hug. Sending you and your family lots of strength during this very difficult time.
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.

Claudine
Posts: 399
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: To my CC family

Postby Claudine » Tue Sep 15, 2020 4:17 pm

I haven't been here much lately and popping in quickly, I see posts that sadden me greatly. I am so sorry about your loss, Jep. There are no words... Like Stu said, I hope that you are surrounded by loved ones in this so very difficult moment.
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 4.4
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20

User avatar
ginabeewell
Posts: 452
Joined: Wed Oct 24, 2018 10:30 am

Re: To my CC family

Postby ginabeewell » Tue Sep 15, 2020 10:38 pm

I am so sorry to read this. It is so unfair.

Sending all my best to you and your family - that you may have the strength and grace to keep moving forward. We will be here for you, please come back as you find you need us.
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

Carboxo
Posts: 25
Joined: Sat Nov 02, 2019 5:10 pm

Re: To my CC family

Postby Carboxo » Wed Sep 16, 2020 2:01 am

Sending love and hugs your way.
DS: caregiver
48, female
DX: RC, Adenocarcinoma
G2: Moderately differentiated
pT1N1bM0 Stage IIIA
Positive lymph’s:, 2/15
Baseline CEA value 2.5
Tumor invades submucosa
Perineural invasion (PNI) present
Surgical margins: clear
MSS,KRAS/BRAF status: WT
LAR robotic, colectomy, with Ileostomy 9/4/19
Radiation therapy (if any): Chemo/rad scheduled next
Chemotherapy:XELODA,CAPEOX, started 10/28/19

I_will_fight
Posts: 36
Joined: Mon Jun 29, 2020 3:38 pm

Re: To my CC family

Postby I_will_fight » Wed Sep 16, 2020 3:04 am

So sorry, 51 is too young.

Ánimo!
46 yo male at DX from Spain
June 2020 - 6 cm T3N0M0 cancer on left colon
No evidence of liver mets, two milimetric dots in lung, 3 and 4 mm (currently not considered mets)
lymph nodes 0/37
MSH6 non expressed, other MMR proteins present
KRAS mt G13D
Vascular invasion: absent
LNI: absent
PNI: present
July 8th 2020 - 50 cm colon and spleen removed, clean margins, optimistic surgeon.
Aug 2020 - start of XELOX regime, four cycles.


Return to “Colon Talk - Colon cancer (colorectal cancer) support forum”



Who is online

Users browsing this forum: No registered users and 5 guests