roadrunner wrote:Your situation is similar to mine. I would ask about (or at least research) TNT (Total Neoadjuvant Therapy). I have not heard of doing radiation, chemo, then surgery, but perhaps it is a form of TNT.
Kevsmets wrote:Thank you! Yes they mentioned after the Radiation therapy most likely Xeloda and probably Oxalpilatin. Due to the location of the tumor, the surgery most likely will result in a permanent bag, but I told them they could strap it on my forehead if it means I get to walk my daughter down the aisle in 20 years
And yes, for our upcoming lil one to have a sibling I’ll most definitely be freezing my sperm!
Once the treatment starts, is it unlikely during treatment it could move from stage 3 to 4? The oncologist is pretty confident that this cancer is curable and seems encouraged.
Thanks again for all the info and support. I honestly don’t know what Id do without you all.
Lee wrote:prayingforccr wrote:.
I’m unwilling to go through a life of terrible suffering with a bag.
Okay, I have to ask, what are you talking about???
Please enlighten us and me?? What is the "terrible suffering" you are referring to with a colostomy bag??
Have to ask, how old are you?
Lee
FightCRC wrote:
The most tragic cases, to me, are those who started out as Stage III, but progress to Stage IV because they refuse the surgery. And every time, that patient admits "I f***** up." Whatever horror they imagined about the bag doesn't compare to the reality of Stage IV.
It's an extremely emotional time for most when the patient can least afford to be emotional. My sympathies.
prayingforccr wrote:I would end my life by breathing in helium gas before ever progressing to that misery.
Kevsmets wrote:I finally got my MRI results and while I was told it was Stage 3 and hasn’t spread which was a relief, the report back on MyChart mentions I’m at “MX” not “M0” - is that foreboding? My CT scans MRI scans were clear of a distant spread but MX has me worried.
Here’s my full report - again my CT scans came back negative and this is the bottom of my MRI report for pelvic area:
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