Surgery or no?

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beach sunrise
Posts: 250
Joined: Thu Mar 05, 2020 7:14 pm

Re: Surgery or no?

Postby beach sunrise » Thu Oct 01, 2020 10:25 pm

Great point, Siti! Team Rachel would be a good idea probably. I wouldn't have had such a smooth/ less life stress recovery without the people around me willing to help out (mainly the never ending laundry and grocery shopping :)
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

rachelfromnyc
Posts: 57
Joined: Fri Oct 04, 2019 11:32 am

Re: Surgery or no?

Postby rachelfromnyc » Sun Oct 04, 2020 11:55 am

There are many team Rachel supporters :) I've been getting lots of help up to this point. My favorite is getting help with changing sheets as changing the duvet is one of my least favorite chores. My parents retired last year and are in Florida and won't be here until Thanksgiving. However my brother lives in the city and I have many friends who will check in on me throughout the recovery.

Last Friday, I completed the presurgical testing. It consisted of an EKG, labs, speaking with the anesthesia NP, etc. In addition the regular labs, they measured clotting factors and some other things but long story short, I'm cleared for surgery. My CEA dropped two points also. Since April, my CEA has been rising. It's leveled off in the last three months but still high and this is the first time it's been lower by more than one point. Oncologist says it should drop after surgery. Even though my scans have been stable, I can't help but wonder if they're just missing something. Last thing I need to do is see the stoma nurse which I will do tomorrow to get marked but otherwise, I just have to wait for surgery day and take care of myself until then.

If this is of any encouragement at all, my husband’s lymph nodes were noticeably smaller post surgery. He did a CT scan 5 weeks after his surgery and right before chemo.


This is definitely encouraging! I have enlarged nodes that have been stable so I just figured they've reached the limit of how much they can shrink. I wonder why, if he didn't have chemo between the surgery and the post surgery scan, the nodes shrank? Regardless, hope I'll have the same result.
Dx May '19, one month after 37th bday
5/19: 3.4 cm tumor in transverse colon, distant lymph nodes, innumerable lung nodules
Moderately differentiated invasive adenocarcinoma
MSS, TMB 7.9, BRAF/KRAS wild
6/19 - 9/19: Folfox
10/19 - 2 new tumors in liver, switch to Folfiri w/ Avastin
3/20 - liver tumors no longer seen, primary tumor 0.9 cm, continue Folfiri w/ Avastin

Siti
Posts: 177
Joined: Thu Aug 01, 2019 10:58 am

Re: Surgery or no?

Postby Siti » Thu Oct 08, 2020 3:07 pm

Happy to read your positive post, Rachel. You’re so lucky to get help with the sheets! I’ve watched so many YouTube videos on how to get it right but I always end up fighting with the duvet regardless. LOL!

And to your question — yes, his oncologist personally compared the scan together with the radiologist and it was noted in his report as smaller but still present. We chose not to see the report until my husband finished 2 cycles because either way, the outcome would mean chemo so we preferred to not know until his next scan :)

Keep us posted on your recovery :)
Wife of DH (54) DX on 5/7/19
Sigmoid | Adenocarcinoma | Grade: G3 | LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 7
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!! 20/12/19 Last round of Ox (NED)
1/2020 Maintenance: Cap + Avastin
4/2020 Maintenance: switch to Teysuno (S-1) + Avastin due to bad HFS side effects.


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