If this is of any encouragement at all, my husband’s lymph nodes were noticeably smaller post surgery. He did a CT scan 5 weeks after his surgery and right before chemo.
rachelfromnyc wrote:Looking for thoughts on my current situation. To recap, my long term treatment plan is to do chemotherapy for life and that’s all I’ve had since diagnosis. I still have the primary tumor, lymph nodes and lung nodules. My scan from June showed everything stable except some lymph nodes. My latest scan from a week ago is stable. However I had abdominal cramping from the previous day on the morning of the scan so the scan picked up the issue. It was a stasis of contents of the bowel starting in the ascending colon up to the tumor in the transverse colon. Report said "incompetent ileocecal valve". The tumor did not grow so my oncologist thinks it shifted somehow and contributed to the partial blockage. It eventually resolved and I’m able to go to the bathroom normally. She wants to continue on with chemotherapy.
But then over the weekend, it happened again. Cramps Monday night but resolved by morning. I saw my second oncologist who thinks I should have a surgery at this point to avoid future issues but with the understanding that it won’t be curative. Better to have a planned surgery than an emergency intervention when I’m feeling really bad and it may not be the best time to have surgery. For example, next treatment is tomorrow which means I’ve been off Avastin for two weeks now and everything else is stable according to the scans.
So I went back to my primary oncologist who scheduled a surgical consult for me next week. In the meantime, I’m trying to decide if I really want this surgery/how much to advocate for it. Will it improve my condition and outlook? I’m doing ok with chemo in that I’ve gotten a handle on the side effects, except fatigue, and it’s keeping things stable. Any ideas here? Or even just questions to ask the surgeon next week to help in the decision making would be helpful.
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