Low key freak out.

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AmyG
Posts: 350
Joined: Tue Dec 25, 2018 8:08 pm

Low key freak out.

Postby AmyG » Tue Sep 08, 2020 8:08 pm

Met my new oncologist today. He's okay.

He is concerned about tissue in my chest, that I could have a thymoma. It's residual thymic tissue that's been noted since my March CT. So there was nothing there in December, something in March, June and September. I'm waiting on a biopsy appointment.

Last time I had a biopsy things didn't work out so well. :roll:

This guy made it sound like having something malignant right in front of my heart was no big deal. I suppose it isn't when it's not your chest cavity? I'm not overly excited about the idea. I totally get it that it could be nothing. But I don't know that yet and I'd like to get my hand wringing out of the way. The way he talked he sounded like he was trying to get me used to the idea of making friends with a thoracic surgeon. Yeehaw.

Very familiar with the saying about when I hear hoof beats to think horses, not zebras.

So, any of yall have something like this come up?
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

michelle c
Posts: 1906
Joined: Wed Dec 02, 2009 3:58 am

Re: Low key freak out.

Postby michelle c » Wed Sep 09, 2020 5:05 am

Never a dull moment, hey?

Did they not raise a concern in March when it first appeared? Has it grown since first reported?

It sucks not knowing and having to wait for appointments, results etc. It’s a scary and unsettling time but it could well be benign. Good that your oncologist is following it up though.

Best wishes to you and hoping and praying, along with you, that it’s benign. Hang in there!
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

Lee
Posts: 6096
Joined: Sun Apr 16, 2006 4:09 pm

Re: Low key freak out.

Postby Lee » Wed Sep 09, 2020 2:53 pm

Can they do a PET scan? Have you ever had one?

I hope it nothing. The waiting is the hardest.

Good luck,

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

AmyG
Posts: 350
Joined: Tue Dec 25, 2018 8:08 pm

Re: Low key freak out.

Postby AmyG » Wed Sep 09, 2020 6:10 pm

Never had a PET, he's going right to biopsy.

In somewhat good news, my CEA is 2.2 and AFP is 3.7, which for our lab, under 9 something is normal. CEA has always been a good indicator for me, idk if AFP is or not.

So, that's a step in the right direction. I'm hoping chemo messed with my thymus and I'm just special because I have extra. :lol:

If not, it will just be another adventure. Woo.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

DarknessEmbraced
Posts: 3486
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Low key freak out.

Postby DarknessEmbraced » Sat Sep 12, 2020 11:03 am

I'm sorry you're going through this and I hope it's benign. *hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

Trying
Posts: 242
Joined: Sun May 13, 2018 10:11 pm

Re: Low key freak out.

Postby Trying » Thu Sep 24, 2020 5:41 pm

Hi Amy,

I have always admired your strength and have no doubt you will come out on top. Sending love and strength

Nicole
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy


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