Opinions welcome: how old to test?

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ranger
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Opinions welcome: how old to test?

Postby ranger » Sat Aug 29, 2020 2:32 pm

At what age should adult child of colon cancer survivor be tested?
I was dxd at age 58. My kids are in their 30s.
Opinions welcomed.
Thank you
colon resection 3/09
liver resection and takedown 8/09
11 rounds of folfax, avastin. plus AM655 or placebo, completed jan 2010
hernia repair 3/11
http://cancerissofunny.blogspot.com/
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@cancerissofunny
age 69, never thought I'd make it. happy.
NED a long time.
Essential Thrombocytosis, monitoring
still here.

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ginabeewell
Posts: 464
Joined: Wed Oct 24, 2018 10:30 am

Re: Opinions welcome: how old to test?

Postby ginabeewell » Sat Aug 29, 2020 3:02 pm

My doctor told me my kids should be screened at 35 - 10 years before my diagnosis at 45. And earlier if they show any symptoms at all.
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

NHMike
Posts: 2505
Joined: Fri Jul 21, 2017 3:43 am

Re: Opinions welcome: how old to test?

Postby NHMike » Sat Aug 29, 2020 5:49 pm

I think that 35 is reasonable.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

polluxx
Posts: 50
Joined: Thu Jul 10, 2008 9:41 pm

Re: Opinions welcome: how old to test?

Postby polluxx » Sat Aug 29, 2020 10:45 pm

My oncologist and my genetic counselor both said that my kids should get their first colonoscopy at 40.

I was 53 at diagnosis.
Stage 3c
2/2020 Right colon hemicolectomy (invasive adenocarcinoma with micropillary features)
Moderately differentiated
Tumor size: 4.4 in greatest dimension Metastatic Carcinoma in 12 out of 28 lymph nodes
Extranodal extension identified
Margins negative

3/2020 Began 12 rounds of FolFox

Beckster
Posts: 422
Joined: Thu Jan 12, 2017 3:01 pm
Location: New Jersey

Re: Opinions welcome: how old to test?

Postby Beckster » Sun Aug 30, 2020 5:30 pm

I was 58 when diagnosed. Oncologist told me that my son should have one at 40.
57/F
DX:(CC) 10/19/16
11/4/16- Lap right hemi(cecum)
CEA- Pre Op (1.9), Pre Chemo (2.5)
Type: Adenocarcinoma
Tumor size:3.5 cm x 2.5 x 0.7 cm
Grade: G3 (path) G2 (pre-op)
TNM: T3N0M0/IIA
LN: 0/24
LVI present
Surgical margins: clear
MSS
12/27/2016 - Capeox, anaphylactic reaction
1/2/17 to 6/9/17- Xeloda monotherapy
6/17,12/17,6/18,12/18, 6/19, 12/19 CT Scan NED :D
CEA- 6/17- 3.6, 9/17- 2.8 12/17-2.8, 3/18-3.1, 6/18-3.0, 9/18 2.8, 12/18 2.5 3/19 3.1 6/19 3.1 9/19 2.6 12/19 2.8 6/20 3.0
Clear Colonoscopy 10/17, 11/19 :D


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