One year into cancer battle

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beach sunrise
Posts: 216
Joined: Thu Mar 05, 2020 7:14 pm

One year into cancer battle

Postby beach sunrise » Sun Aug 16, 2020 3:01 am

One year ago I was planning the day with my mom. It is my sisters birthday ( she had CF and passed when she was 20 yrs old). She was my moms first born so mother to mother I felt that plus the fact that I lost my oldest sister, the coolest girl on the block that I looked up to. Not a day goes by I don't think of her and miss her terribly. Not knowing how the day would end, I started feeling sick and was in serious pain from hemorrhoids that my gp diagnosed 1 1/2 yrs before. Spent the day with my mom and didn't not let on that I felt bad. As soon as I got home I went to bed and fever started. It lasted until I went to ER on the 19th of August. Bam, cancer dx. Now, one year later I am hoping I am still stage III. I am working hard to throw everything at it that I have found to help chemo move some markers in a favorable direction to kill it. Still a long way to go as its a slow process to find what works. Anyways, this is the short story so far one year into it.
This year I am sending lemon lavender cupcakes over to my moms house and she is coming by after church. Strange that we will sit on the porch 6 ft apart.
Anyway, I am grateful for all of you on this forum. There is hope and support here.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

stu
Posts: 1376
Joined: Sat Aug 17, 2013 5:46 pm

Re: One year into cancer battle

Postby stu » Sun Aug 16, 2020 11:06 am

What a life changing year ! You have come so far . So strange it was on your sisters birthday you started to feel so unwell .

Enjoy your time with your mum !

Take care ,

Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

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beach sunrise
Posts: 216
Joined: Thu Mar 05, 2020 7:14 pm

Re: One year into cancer battle

Postby beach sunrise » Sun Aug 16, 2020 3:12 pm

Thank you, Stu! I have often thought about how strange it was too. I'm inclined to believe divine intervention because I had been misdiagnosed for so long.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

User avatar
CRguy
Posts: 10230
Joined: Sun Feb 10, 2008 6:00 pm

Re: One year into cancer battle

Postby CRguy » Sun Aug 16, 2020 11:49 pm

beach sunrise wrote: I am working hard to throw everything at it that I have found to help chemo move some markers in a favorable direction to kill it. Still a long way to go as its a slow process to find what works. Anyways, this is the short story so far one year into it.

This year I am sending lemon lavender cupcakes over to my moms house and she is coming by after church. Strange that we will sit on the porch 6 ft apart.
Anyway, I am grateful for all of you on this forum. There is hope and support here.

I LOVE the vibe of your post my friend AND ...
I am coming over for the lemon lavender cupcakes sista' !!!

remembering
rejuvenating
reflecting
re-energizing
REAFFIRMING

= WORD ! to me

Love Peace and Harmony on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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beach sunrise
Posts: 216
Joined: Thu Mar 05, 2020 7:14 pm

Re: One year into cancer battle

Postby beach sunrise » Mon Aug 17, 2020 4:11 pm

Thank you, CRguy!
Any time come on down to my neck of the woods for lemon lavender cupcakes :)
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

mrcytech
Posts: 71
Joined: Mon Dec 08, 2014 7:39 am
Location: Massachusetts

Re: One year into cancer battle

Postby mrcytech » Thu Aug 20, 2020 6:22 am

Here's to lemon lavender cupcakes for decades!!!

You've got this!!
Dx 12/12 Stage 3B sigmoid crc T3N1M0
2/13 resection w/ temp Iliost, port insert. Reversal 5/13.
6/13-12/13 Folfox 12 sessions. Oxi stopped @ session 4.
9/14 CT shows 1.2CM nodule on upper lobe of left lung.
3/15 wedge resection left lung (stage 1A lung cancer) no chemo.
9/16 CT/PET shows node activity (SUV 10.6), CEA extremely elevated. Mets from colon. Upgraded to stage 4.
11/16-4/17 Begin Folfiri w/Avastin 8 sessions.
4/19-9/19 endobronchial activity lung mets.
1/20 Stivarga (palliative).

User avatar
beach sunrise
Posts: 216
Joined: Thu Mar 05, 2020 7:14 pm

Re: One year into cancer battle

Postby beach sunrise » Thu Aug 20, 2020 3:10 pm

Thank you so much for the encouragement! I hope you all are doing well!
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

User avatar
juliej
Posts: 3114
Joined: Thu Aug 05, 2010 12:59 pm

Re: One year into cancer battle

Postby juliej » Fri Aug 21, 2020 4:23 pm

You had me at "lemon lavender cupcakes" :D :D :D

How can a girl get ahold of some of those??? Will you be opening a bakery soon???

It sounds like you are doing what needs to be done. Be strong. Be proactive. It can seem like a long haul at times, but that's why they call it a marathon and not a sprint. We're here any time you need us!

xo,
Juliej
Stage IVb, liver/lung mets 8/4/2010
Xelox+Avastin 8/18/10 to 10/21/2011
LAR, liver resec, HAI pump 11/2011
Adjuvant Irinotecan + FUDR
Double lung surgery + ileo reversal 2/2012
Adjuvant FUDR + Xeloda
VATS rt. lung 12/2012 - benign granuloma!
VATS left lung 11/2013
NED 11/22/13 to 12/18/2019, CEA<1

User avatar
beach sunrise
Posts: 216
Joined: Thu Mar 05, 2020 7:14 pm

Re: One year into cancer battle

Postby beach sunrise » Fri Aug 21, 2020 9:57 pm

Thank you so much, juliej! Your experience in this is so amazing.
The cupcakes come from our local bakery, totally natural ingredients, glutan free...they are the bomb!!!
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

michelle c
Posts: 1906
Joined: Wed Dec 02, 2009 3:58 am

Re: One year into cancer battle

Postby michelle c » Fri Sep 04, 2020 8:04 pm

Mmmmm lemon lavender cupcakes...they sound delish.

So sorry that you lost your sister....20 is so young. Feeling unwell on her birthday is very strange. Wishing you the best and love to your mom too.
25 May 09 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
3 Jun 09 LAR - Stage III 3/10 lymph nodes
6 Jul - 10 Dec 09 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 12 port removed & hernia repair

User avatar
beach sunrise
Posts: 216
Joined: Thu Mar 05, 2020 7:14 pm

Re: One year into cancer battle

Postby beach sunrise » Sat Sep 05, 2020 12:25 am

Thank you for the sweet note, michelle c!
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

DarknessEmbraced
Posts: 3486
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: One year into cancer battle

Postby DarknessEmbraced » Sat Sep 05, 2020 11:52 am

I'm so very sorry for the loss of your sister!*hugs* I hope you enjoyed the time with your Mom and that you'll remain stage III!*hugs*
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

User avatar
beach sunrise
Posts: 216
Joined: Thu Mar 05, 2020 7:14 pm

Re: One year into cancer battle

Postby beach sunrise » Mon Sep 07, 2020 1:15 am

Thank you Darkness Embraced! We did have a good time together. Got to tell this on my mom though. We were porch sitting and talking. A wasp flew towards her head and she half way lost her Sunday wig. It was hilarious!!!
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1
7-2 CEA 11.1
7-16 CEA 10.3
7-28 CEA 8.8
8-11 CEA 7.8
9-1 CEA 8.8
9-8 CEA 9
9-16 CEA 9
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"


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