Update - Stage 3b, nearly done with adjuvant chemo

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Readerokie
Posts: 6
Joined: Wed May 13, 2020 6:12 am

Update - Stage 3b, nearly done with adjuvant chemo

Postby Readerokie » Wed Aug 12, 2020 5:13 pm

Just wanted to pop in and give an update, for those who in future may be searching the forum and in our situation. I searched desperately, in the weeks after my husband's diagnosis, for stories of people who came relatively easily through surgery or chemo. And of course I understand there's a selection bias at work here - those in need of support and help will be the voices more reflected on the board. Just wanted to share our experience.

Hubs is 3 months out from diagnosis and urgent partial colectomy. We were warned he might have a stoma after surgery as he didn't go through prep, but he had eaten and drunk so little for days he was pretty cleaned out, so they were able to avoid one. He was almost immediately able to eat regularly, though he had some 'food fear' lingering after his horrible experiences of digestive pain from before diagnosis. He is still very cautious of new foods, but is now eating his old favorites at a rapid pace and has gained back 20 lbs. At 6-8 weeks after surgery he recovered a lot of his energy and good humor, even while starting 4 rounds of CAPOX. His first round was a bit difficult trying to get a good balance of meds to control nausea, each round his sensitivity to cold drinks has extended by a couple of days (round 1 it was gone after 3 days, round 2 after 5 days, round 3 took over a week). He's had very slight neuropathy in his hands, noticeable only in round 3 (and I assume round 4, which is coming up in 10 days). He's beginning to have some insomnia.

But overall, he's doing GREAT. He's back to doing yardwork and house projects, has lots more energy than before the surgery, and his sense of humor and interest in life has returned. We hadn't realized until it came back how long it had been missing - for years cancer stole it from us! Even though he's still going through chemo, I feel as though I have gotten back the man I married, and am very grateful for his treatments.
5/20 Urgent surgery, blockage.Tumor, upper left colon. 9cc. G2. Adenocarcinoma. Clear margins.
5/20 Dx Stage 3b. T3N1aM0. 1/15 lymph nodes.
6/20 Began 4x CAPOX

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ANDRETEXAS
Posts: 662
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: Update - Stage 3b, nearly done with adjuvant chemo

Postby ANDRETEXAS » Thu Aug 13, 2020 1:07 am

Glad you have some positive news to report. So far, so good. Have your husband keep up the exercise, in whatever form. It's important. And stay hydrated. Sounds like he's back with the right attitude. Best of luck moving forward.
2/10/14 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT

3/2/15 - Clean colonoscopy & port removed
3/4 - clean CT
9/21- clean CT

3/23/16 - clean CT

2/22/17- clean CT

3/21/18 - clean CT
4/1 - clean colonoscopy

3/11/19 - clean CT
9/23 - Five-year release - Annual visits now !

4/13/23 - clean colonoscopy

ONE DAY AT A TIME !

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beach sunrise
Posts: 1044
Joined: Thu Mar 05, 2020 7:14 pm

Re: Update - Stage 3b, nearly done with adjuvant chemo

Postby beach sunrise » Thu Aug 13, 2020 1:13 am

Sounds like he is on upward swing of things. That is good news. For insomnia has he tried melatonin. I finally tried it and it knocks me out for a good nights sleep. I wouldn't hear a tornado coming, lol.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

sunnysideupalways
Posts: 6
Joined: Sat Nov 14, 2020 10:22 am

Re: Update - Stage 3b, nearly done with adjuvant chemo

Postby sunnysideupalways » Tue Dec 01, 2020 10:00 pm

Thank you for sharing! I very much appreciate your outlook on your situation. My husband is also 38 and recently diagnosed. He has his left hemicolectomy tomorrow and I have been in the same boat as you trying to find any stories that match ours and this update is so nice to read. :D


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