Onc appt

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Rikimaroo
Posts: 436
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Onc appt

Postby Rikimaroo » Fri Sep 04, 2020 5:01 pm

Hi Beach,

Overall very tolerable. The only issue I seem to have is stomach cramps/gas. It's not major, but can be a bit uncomfortable at times, but overall, feeling good. I just did blood work today for my avastin infusion next week, and also to check everything, I do this every 3 weeks. Maybe they can add avastin regimen to your xeloda, never heard of just xeloda only, but I am not sure.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
LAR/Liver Resect 4/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
CEA 40 right now, but was 57, so folfiri to beat it back down.
Lots of chemo for the past 4 years.

User avatar
beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Re: Onc appt

Postby beach sunrise » Sat Sep 05, 2020 12:21 am

Good cramps/gas are not to bad, but of course that is a guy thing to say, ha.
I take multi-symptom imodium right before xeloda to avoid it. I would be so embarrassed to pass gas in front of anyone. I would have to blame it on my kids or husband.
I am on the ADAPT protocol plus extras (supplements) as of now. The xeloda is a game changer compared to the ole bag (nickname for the pump).
I hope your bloodwork results are great!
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test


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