Clear colonoscopy...I go every 3 years now!

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AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Clear colonoscopy...I go every 3 years now!

Postby AmyG » Mon Aug 10, 2020 3:34 pm

This seems like such a milestone and one I'm so grateful to have reached!! I will be cancer free for an entire year at the end of this month. I have another CT/labs at the beginning of September. I'm fine with going every 3 months, I like my oncologist a lot. :lol:

Hope you are all doing well!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Annmont
Posts: 9
Joined: Thu Jun 04, 2020 2:00 pm

Re: Clear colonoscopy...I go every 3 years now!

Postby Annmont » Mon Aug 10, 2020 9:26 pm

That is wonderful news! So happy for you!
DH diagnosed August 21, 2018 with colorectal cancer
6 weeks chemo/radiation
Surgery December 2018/ileo
4 Months Chemo pump
July 1, 2019 Ileo reversal
two clear scans then boom June 2020 mass in liver
Liver resection July 1, 2020, scheduled to start Xeloda

stu
Posts: 1614
Joined: Sat Aug 17, 2013 5:46 pm

Re: Clear colonoscopy...I go every 3 years now!

Postby stu » Tue Aug 11, 2020 3:19 am

Brilliant news . Could not be happier for you .
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

DarknessEmbraced
Posts: 3817
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Clear colonoscopy...I go every 3 years now!

Postby DarknessEmbraced » Sat Aug 15, 2020 10:35 am

Wonderful news! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

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CRguy
Posts: 10474
Joined: Sun Feb 10, 2008 6:00 pm

Re: Clear colonoscopy...I go every 3 years now!

Postby CRguy » Sat Aug 15, 2020 2:16 pm

Best wishes moving forward !

Cheers on the Journey
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Clear colonoscopy...I go every 3 years now!

Postby Gravelyguy » Wed Aug 19, 2020 6:44 am

Awesome news Amy!

I did not mind going every 3 months either. Now I am at 6 month intervals and talk of yearly if nothing shows up on the next scans in December.

What does your onc suggest for long term follow up?

Dave

We also started cross country this week. I was wondering if your daughter is out again this year?
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Clear colonoscopy...I go every 3 years now!

Postby AmyG » Wed Aug 19, 2020 11:24 am

Hey Dave!

We lost our high school coach to another district. I know one of our track coaches is trying to keep the team going, but communication has been lacking. We're doing school online and there's been nothing about getting her to campus in the mornings for before school practice. No idea how meets will be held safely.

But my runner wants to run, so we're going to work with whatever they give us!

She's a sophomore and I really don't want her to miss a season if we can help it. Gotta keep everyone healthy though. Has your district looked in to virtual meets? That seems like it might be a decent option. Better than nothing anyway!

Good luck this season!!
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Clear colonoscopy...I go every 3 years now!

Postby Gravelyguy » Wed Aug 19, 2020 2:50 pm

It is a strange time for sports!

In MN we are limited to only local meets and duals or triangulars. I have a very large team so following the protocols to keep everyone safe has been a challenge but glad we can compete.

Bummer on losing your coach. I have a new assistant that is a 2:20 marathoner so I let him run with the varsity. Not that I couldn’t :roll: !

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

User avatar
cecioboe
Posts: 597
Joined: Mon Oct 17, 2011 9:08 pm
Facebook Username: Ceci Lagarenne (Higgins)
Location: Texas

Re: Clear colonoscopy...I go every 3 years now!

Postby cecioboe » Thu Aug 20, 2020 10:38 pm

That's great!! Jim is on the three year plan now too!
Wife to Jim Stage IV RC w/liver mets
DX 9/16/11
T3N1M1
Oct - Dec 2011 chemo/rad
1/04/12 ileo
1/16/12 LAR, liver resection
2/29/12 blockage, emer surg, ileo rev
4/16/12- 9/16/12 chemo
NED since 10/22/12
De-ported 6/24/16


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