How often do you get scanned after treatment?

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Mugenabe
Posts: 16
Joined: Sat May 30, 2020 6:38 am

How often do you get scanned after treatment?

Postby Mugenabe » Thu Jul 30, 2020 2:48 pm

Hey everyone, just curious how often you get scanned. I asked my oncologist what happens after treatment (I go to MSK), and he told me that I well get a CEA check every 6 months and a CT scan yearly. Seems a bit lax to me. His rational was scans causes more anxiety and radiation exposure so he likes to do it once a year. Am I over worrying about this?
5/13/20 colonoscopy, CT Scan - 5cm tumor found in sigmoid colon, no evidence in other organs, confirmed cancer
5/21/20 colectomy (partial resection) - waiting for staging
6/2/20 Pathology results 7/25 nodes positive Stage 3C T4aN2b
6/25/20 CAPOX 4 rounds CEA 2.5

4us4
Posts: 16
Joined: Tue Aug 13, 2019 2:58 pm
Location: Oregon USA

Re: How often do you get scanned after treatment?

Postby 4us4 » Thu Jul 30, 2020 3:34 pm

CT every three months for me for the first two years
DX@39yo in April 2019: Stage 4 Sigmoid-spread to peritoneum, both ovaries, spleen
June-Oct 2019: FOLFOX, Avastin, 5FU (9 infusions)
Nov 2019: Cytoreductive+HiPEC at UCSD, PCI score= 8
Jan2020: FOLFOX, Avastin, 5FU (3 infusions)
Next: LIVE!

Married w/2 boys 4yo & 1yo, Live at the Oregon Coast, Solid in my faith & firmly believe that WHATEVER the future holds, God is with me & THAT is enough... while praying my socks for full recovery & chance to raise my kids to adulthood.

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beach sunrise
Posts: 157
Joined: Thu Mar 05, 2020 7:14 pm

Re: How often do you get scanned after treatment?

Postby beach sunrise » Thu Jul 30, 2020 3:50 pm

Mine is a bit unusual. I am experimenting with xeloda for a while longer but plan is at my insistence CT (chest abdomen pelvis) every 3 months, MRI once a yr, CEA every 3 weeks. Onc agreed. If you feel CEA needs checked more often you can get it done yourself thru lab corp. I believe it is $21.00 but they run sales on it every now and then.
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surg 1-21-20 APR ostomy, - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
Adj mFOLFOX6, cea 7
8 rds 6-10 CEA 11.4, 4 more no oxa
6-17: CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2: CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
7-16: CEA 10.3 AFP 5.3 CA125 26.6 CA199 8
7-28 CEA 8.8 AFP 7.7 CA125 27 CA199 7
MHL1+
PMS2+
MSH2+
MSH6+
Chemo sensitivity test NCI "Test failed, neo-adj chemorad did its job. Not enough ca. cells to test."

Mugenabe
Posts: 16
Joined: Sat May 30, 2020 6:38 am

Re: How often do you get scanned after treatment?

Postby Mugenabe » Thu Jul 30, 2020 4:18 pm

My CEA levels have never been high so I'm not even sure if it's a good test for me. I heard about possibly CtDNA tests, like Signatera, which I heard was pretty good with testing for recurrence, but I believe it's still in trials so some oncologists do not recommend it. I was thinking of asking the oncologist to at least have CT scans every 6 months or something for the first 2 years. Yearly just seems like so much time between scans.
5/13/20 colonoscopy, CT Scan - 5cm tumor found in sigmoid colon, no evidence in other organs, confirmed cancer
5/21/20 colectomy (partial resection) - waiting for staging
6/2/20 Pathology results 7/25 nodes positive Stage 3C T4aN2b
6/25/20 CAPOX 4 rounds CEA 2.5

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CRguy
Posts: 10205
Joined: Sun Feb 10, 2008 6:00 pm

Re: How often do you get scanned after treatment?

Postby CRguy » Thu Jul 30, 2020 5:23 pm

The full schedule record of all my tests and follow ups are in the topic post, listed in my signature,
Review of my Journey so far
which should give you some idea of a moderately aggressive regimen.

Anytime I had concerns or received equivocal information I PUSHED for more info and more imaging / testing.

Cheers and best wishes
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

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beach sunrise
Posts: 157
Joined: Thu Mar 05, 2020 7:14 pm

Re: How often do you get scanned after treatment?

Postby beach sunrise » Thu Jul 30, 2020 7:05 pm

Since CEA isn't a good marker for you I would insist on CA19-9, AFP and LDH for sure. Like CRguy said PUSH for what you feel you need. Be your own advocate!
Let us know and good luck!
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surg 1-21-20 APR ostomy, - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
Adj mFOLFOX6, cea 7
8 rds 6-10 CEA 11.4, 4 more no oxa
6-17: CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2: CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
7-16: CEA 10.3 AFP 5.3 CA125 26.6 CA199 8
7-28 CEA 8.8 AFP 7.7 CA125 27 CA199 7
MHL1+
PMS2+
MSH2+
MSH6+
Chemo sensitivity test NCI "Test failed, neo-adj chemorad did its job. Not enough ca. cells to test."

Mugenabe
Posts: 16
Joined: Sat May 30, 2020 6:38 am

Re: How often do you get scanned after treatment?

Postby Mugenabe » Thu Jul 30, 2020 8:14 pm

beach sunrise wrote:Since CEA isn't a good marker for you I would insist on CA19-9, AFP and LDH for sure. Like CRguy said PUSH for what you feel you need. Be your own advocate!
Let us know and good luck!


I’ve never heard of those. Thanks, I’ll read up on them. Another thing I was told by another CRC patient, even if I take all these different tests, if they don’t find anything on a scan, there are no treatment options?
5/13/20 colonoscopy, CT Scan - 5cm tumor found in sigmoid colon, no evidence in other organs, confirmed cancer
5/21/20 colectomy (partial resection) - waiting for staging
6/2/20 Pathology results 7/25 nodes positive Stage 3C T4aN2b
6/25/20 CAPOX 4 rounds CEA 2.5

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beach sunrise
Posts: 157
Joined: Thu Mar 05, 2020 7:14 pm

Re: How often do you get scanned after treatment?

Postby beach sunrise » Thu Jul 30, 2020 8:25 pm

Valuable information if you search past posts by rp1954 and also read CRguy.
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surg 1-21-20 APR ostomy, - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
Adj mFOLFOX6, cea 7
8 rds 6-10 CEA 11.4, 4 more no oxa
6-17: CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2: CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
7-16: CEA 10.3 AFP 5.3 CA125 26.6 CA199 8
7-28 CEA 8.8 AFP 7.7 CA125 27 CA199 7
MHL1+
PMS2+
MSH2+
MSH6+
Chemo sensitivity test NCI "Test failed, neo-adj chemorad did its job. Not enough ca. cells to test."

Mugenabe
Posts: 16
Joined: Sat May 30, 2020 6:38 am

Re: How often do you get scanned after treatment?

Postby Mugenabe » Thu Jul 30, 2020 8:28 pm

beach sunrise wrote:Valuable information if you search past posts by rp1954 and also read CRguy.


Thanks. I’ll read up on them.
5/13/20 colonoscopy, CT Scan - 5cm tumor found in sigmoid colon, no evidence in other organs, confirmed cancer
5/21/20 colectomy (partial resection) - waiting for staging
6/2/20 Pathology results 7/25 nodes positive Stage 3C T4aN2b
6/25/20 CAPOX 4 rounds CEA 2.5

NHMike
Posts: 2458
Joined: Fri Jul 21, 2017 3:43 am

Re: How often do you get scanned after treatment?

Postby NHMike » Sun Aug 02, 2020 6:55 pm

I'm two years out from treatment. Bloodwork every three months 7 times and then switch to every six months.

Chemo finished June 2018, CT June 2018, MRI July 2018, Reversal July 2018. I think CTs annually - didn't have them every six months.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT


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