Has Anyone Any Experience With The Joe Tippens Protocol?

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prayingforccr
Posts: 57
Joined: Sun Jun 28, 2020 4:44 pm

Has Anyone Any Experience With The Joe Tippens Protocol?

Postby prayingforccr » Tue Jul 28, 2020 6:14 pm

Either for maintenance or treatment?

I. Protocol
a. Tocotrienol and Tocopherol forms (all 8) of Vitamin E (400-800mg per day, 7 days a week). A product called Gamma E by Life Extension or Perfect E are both great.
b. Bio-Available Curcumin (600mg per day, 2 pills per day 7 days a week). A product called Theracurmin HP by Integrative Therapeutics is bioavailable.
c. CBD oil (1-2 droppers full [equal to 25mg per day] under the tongue, 7 days a week)
d. Panacur C, The above three items every day (7 days per week) and the canine medicine
(1 GRAM PER DAY FOR 3 CONSECUTIVE DAYS) per week. Take 4 days off and repeat each week. Each gram of Panacur C has approximately 222 mg of Fenbendazole, in case you are trying a different branded product

I plan on following this for the rest of my life should God grant me a cancer free opportunity.

Thoughts/input will be much appreciated.
Nov 2020: colonoscopy
Dec 2020: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2021: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2021: anoscopy confirmed tumor/scar 3.7cm with significant tumor necrosis but some persistent disease
July 2021: began 8 treatmentsFOLFOX
August 2021: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2021: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy scheduled first week of december.

texazgal
Posts: 157
Joined: Fri Sep 28, 2007 4:40 pm
Location: central Texas

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby texazgal » Wed Jul 29, 2020 3:49 pm

I have used just the fenben when not doing chemo. For about 9 weeks. Can't say it did anything for me. Just started on Keytruda and
If that fails, I'll try it again. If you do Facebook, there is a large group of users on https://www.facebook.com/groups/429159131252194/ you could join.
DX rectal cancer Aug 04
Surgery Sept 04, perm ostomy, "BarbieButt" Sept 23, 04.
Dad passed '93 CC
DD 42 yo/w/2 polyps removed
June 2019 stage 3 esophageal cancer
Aug. 2019 28 radiations, 5 chemo
Nov. PET shows original tumor and mets resolved, 2 new mets in liver and bone.
May 2020 port installed, started Folfox hope to do 12 rounds, cure not expected

prayingforccr
Posts: 57
Joined: Sun Jun 28, 2020 4:44 pm

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby prayingforccr » Wed Jul 29, 2020 4:13 pm

The fenben alone won’t work.

Need the full suite of ingedients from what Ive researched.

After my FOLFOX is finished (completed 3/8), I am going to try it and beg the doctors to let me try keytruda, if appropriate.

God bless you, and I hope your treatment is a success.
Nov 2020: colonoscopy
Dec 2020: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2021: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2021: anoscopy confirmed tumor/scar 3.7cm with significant tumor necrosis but some persistent disease
July 2021: began 8 treatmentsFOLFOX
August 2021: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2021: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy scheduled first week of december.

4us4
Posts: 19
Joined: Tue Aug 13, 2019 2:58 pm
Location: Oregon USA

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby 4us4 » Thu Jul 30, 2020 3:39 pm

I am trying it... no good results to report yet, but no harm either :)
DX@39yo in April19: Stage 4 Sigmoid Mets to peritoneum, ovaries, spleen
June-Oct 2019: FOLFOX, Avastin, 5FU (9 infusions)
Nov19: Cytoreductive+HiPEC at UCSD, PCI score= 8
Jan20: FOLFOX, Avastin, 5FU (3 infusions)
April,June,Aug2020: watching several small growing lung nodules

Married w/ two sons (5,1). Oregon coast-USA. Solid in my faith & firmly believe WHATEVER the future holds, God is with us & THAT is enough...while praying my socks for full recovery & chance to raise my kids to adulthood.

prayingforccr
Posts: 57
Joined: Sun Jun 28, 2020 4:44 pm

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby prayingforccr » Thu Jul 30, 2020 10:21 pm

How long have you been doing it?

Joe thinks it takes about 8 weeks to see results.

God bless you. I hope it works.
Nov 2020: colonoscopy
Dec 2020: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2021: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2021: anoscopy confirmed tumor/scar 3.7cm with significant tumor necrosis but some persistent disease
July 2021: began 8 treatmentsFOLFOX
August 2021: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2021: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy scheduled first week of december.

AlexandraZ
Posts: 178
Joined: Fri Aug 23, 2019 8:25 am

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby AlexandraZ » Fri Jul 31, 2020 12:01 pm

I don't want to scare anyone, but I think it's important to mention that quite a few people have experienced progression in liver mets while on this protocol. It seems to work well for lung cancer in some cases, and possibly other cancers. But for anyone with liver mets, I would be careful and do my research first.
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!

prayingforccr
Posts: 57
Joined: Sun Jun 28, 2020 4:44 pm

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby prayingforccr » Fri Jul 31, 2020 11:19 pm

Good to know.

Thank you.

I’m almost sorry I started the thread now.
Nov 2020: colonoscopy
Dec 2020: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2021: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2021: anoscopy confirmed tumor/scar 3.7cm with significant tumor necrosis but some persistent disease
July 2021: began 8 treatmentsFOLFOX
August 2021: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2021: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy scheduled first week of december.

AlexandraZ
Posts: 178
Joined: Fri Aug 23, 2019 8:25 am

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby AlexandraZ » Sat Aug 01, 2020 2:11 pm

prayingforccr wrote:Good to know.

Thank you.

I’m almost sorry I started the thread now.


Don't be! Lots of people have had success with it. It's up to everyone to do their own research.
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!

prayingforccr
Posts: 57
Joined: Sun Jun 28, 2020 4:44 pm

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby prayingforccr » Sat Aug 01, 2020 2:48 pm

I am planning on using it once I’m cancer free as a maintenance protocol.
Nov 2020: colonoscopy
Dec 2020: diagnosed with stage 3 rectal cancer 6+cm tumor
Jan-mar 2021: 20 sessions of radiation, mon-fri capecetibine, mon-fri clinical trial drug m3814
Apr 2021: anoscopy confirmed tumor/scar 3.7cm with significant tumor necrosis but some persistent disease
July 2021: began 8 treatmentsFOLFOX
August 2021: ct scan reveals scarbed reduced to 2.7cm CEA is 1.5
Nov 2021: Primary tumor had complete response. Possible tumor deposits on latest mri. Biopsy scheduled first week of december.

User avatar
ginabeewell
Posts: 464
Joined: Wed Oct 24, 2018 10:30 am

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby ginabeewell » Sat Aug 01, 2020 11:42 pm

AlexandraZ wrote:I don't want to scare anyone, but I think it's important to mention that quite a few people have experienced progression in liver mets while on this protocol. It seems to work well for lung cancer in some cases, and possibly other cancers. But for anyone with liver mets, I would be careful and do my research first.


I’m just curious where you’ve seen this? I’ve been lurking on a Facebook page where many have tried. I see it works for some and not others - but thus far haven’t seen anything that suggests it is damaging, unless people are deciding to forgo chemo and try this instead!

I’m still investigating, and I would love any additional insight anyone would have!
45 YO mom of twins (9) and lucky stepmom of 14/17 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
10/18 FOLFOX + Vectibix
12/18 typhlitis (7 days in hospital) but largest met down to 5 cm.
12/18 CEA 4.6
1/18 Resume chemo (#6-8)
3/19 HAI pump placement / colon resection
4/19 Resume chemo (#9-19) FOLFOX (no OX) + Vectibix
5/19 CEA 1.3
7/19 liver resection
10/19 liver resection
1/20 NED! CEA 0.6
3/20 two new liver mets; FOLFIRI (5) and then add Vectibix (5)
8/20 CEA 0.7
Resection next?

User avatar
beach sunrise
Posts: 308
Joined: Thu Mar 05, 2020 7:14 pm

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby beach sunrise » Sun Aug 02, 2020 1:26 am

I don't have any info or advice but do want to tell this story: When my son was little, like 1st grade maybe, he went to play with a neighbor kid alot. Well, one day during the summer after a play date he had a stomach ache. He said his friends grandmother made him and his friend a weird drink. I called the grandmother and asked her about it, telling her about my sons stomach pains. She said she DEWORMED him since he was there and it was time to deworm her grandson. I thought I was going to pass out right then and there. She said the problem with kids sicknesses, attention problems and bad attitudes was because they were full of fungus, worms and parasites. Holy Cow!!! I have to say her husband died a few yrs ago at 90 something yrs old and she is still around pushing 100 yrs old. No health problems their whole life. So, for what its worth dewormer might have some value.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"

AlexandraZ
Posts: 178
Joined: Fri Aug 23, 2019 8:25 am

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby AlexandraZ » Sun Aug 02, 2020 5:17 am

ginabeewell wrote:
AlexandraZ wrote:I don't want to scare anyone, but I think it's important to mention that quite a few people have experienced progression in liver mets while on this protocol. It seems to work well for lung cancer in some cases, and possibly other cancers. But for anyone with liver mets, I would be careful and do my research first.


I’m just curious where you’ve seen this? I’ve been lurking on a Facebook page where many have tried. I see it works for some and not others - but thus far haven’t seen anything that suggests it is damaging, unless people are deciding to forgo chemo and try this instead!

I’m still investigating, and I would love any additional insight anyone would have!


Hi Gina!

Nice to hear from you. I've been thinking of you! I've seen stories here and there in my Facebook groups. I'm not in any Tippens groups, but I'm in several groups for repurposed drugs for cancer treatment. I don't know what the proportions are, as I know a lot of people have had good results. There are two or three women in a Danish group who had liver progression for the first time right after starting fenbendazole. I've seen it in the international group too, enough times to not want my bf on it. He was taking mebendazole until recently, when a scan showed liver progression. That could TOTALLY be a coincidence, but to be safe we have discontinued use of it.
Hope you are doing well, all things considered! Hugs
Boyfriend 28yo dx February 2019, CEA 70,480
Stage 4 CRC with multiple mets to liver & lungs
KRAS, NRAS, BRAF wild type, MSS
12x FOLFIRI + Vectibix
September 2019 CEA 210, 60% reduction in size, chemo break!

jsbsf
Posts: 52
Joined: Sat Aug 24, 2019 6:01 am
Location: San Francisco

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby jsbsf » Tue Aug 11, 2020 12:49 am

We didn’t do the Joe Tippens protocol exclusively, but used bits and pieces of information we found in this forum.

DH started taking Turkey Tail (mainly PSK) and Modified Citrus Pectin early on, starting about a month before chemo. There was no strict rule. He had a 5g scoop daily of MCP and took two turkey tail capsules in the morning, one mid-day, two more at night (usually). I’m not advocating it, but he continued this throughout chemo. I’m even taking turkey tail and MCP, now. I feel pretty good about those 2 supplements and at the time, we would try anything that gave us some hope. His original prognosis was poor.

He also took cimetidine (Tagamet). 4 pills per day. He increased the dosage to 6 around the time of his liver resection. Decreased it to two, and eventually stopped taking it because it seemed to coincide with knee pain.

He took berberine in 2 courses, 6 weeks of 3 per day, a month off, and then he repeated this. We monitored his blood sugar, and his numbers were always good.

He tolerated chemo surprisingly well. He got a slightly reduced dosage for the last four rounds, but only as a precaution.

We tried panacur c, twice. It was a protocol where you take a gram per day for 3 days per week, with a four day break. We did 12g (4 weeks) twice. I think this is Joe Tippens protocol. I’m not sure if it helped. I was most nervous about introducing this into his regimen.

I do know one liver met disappeared and the the other shrunk substantially between November and February. The primary tumor also was reduced from over 5cm to practically nothing by June. We will never know how much of a role any of the supplements played or how the results would have been without them. We like to think we did the right thing.

We do know that before chemo started, the pain from the rectal tumor was less, and more of a discomfort than the excruciating pain it had been for several weeks before. But we also know the liver tumors has increased substantially by around a week after the first chemo treatment, while the primary tumor was about the same size.

He has something called IP6 with Inositol. I think it’s important that it contain both ingredients. He doesn’t take it regularly, but will occasionally have a scoop of it in water. He never took it during the chemo infusion 3 day period, but would occasionally during recovery week on days he felt well. Strangely, it seemed to bring back side effects of chemo.

He just completed a short course of radiation, and the side effects are the same as how he felt a year ago when all this started. So just because of how bad he has felt for the past week, we’ve held back mostly on the supplements, except D3, K2, and L-Reuteri, which he also took all along.
DH 61
2019
8/23 C-scopy, 5+cm mass. CEA:4.1
8/26 CT ~1cm lvr met?
9/6 PET: liver spot
9/16 MSS. MRI: 2 liver mets: 2.7 & 7mm
9/23 Port
9/30 Start FOLFOX 1-6
10/4 Lg lvr met ~3.7cm (raised concern), pri tmr stable.
CEA: 10/13,12.5;10/27-12/8 btw 4.7 & 3.1
11/5 both lvr mets ~ 2/3 smaller.
12/17 PET: sm lvr met gone, remaining tmrs @10% of orig sz & actvty
Chemo break
2020
MWA 2/5, Lap resection 2/11
CEA: 3/1-5/31 btw 2.1&2.9
3/2 start FOLFOX 7-12
7/23-29 radiation
10/2/2020 NED

Aguilito
Posts: 1
Joined: Fri Nov 20, 2020 5:21 pm

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby Aguilito » Fri Nov 20, 2020 6:04 pm

June 2019

annual checkup blood tests done but review scheduled for August due to holidays. Later followup shows cancer in full swing.
Mid August

acute abdominal pain --> A&E .. CT scan .. cancer suspected

September

colonoscopy .. confirmed adenocarcinoma ascending colon .. Stage II T2a
Various scans later and biopsy results .. BRAF V600E .. no hereditary factors

October

failed resection, anastomosis in. Stage III T4a

Start chewing mebendazole after review of Joe Tippens.
Discover Jane McClelland.
Book CoC Appointment.

November

Full CoC protocol mark l (alt mbz/Doxycycline) plus full Joe Tippens (as outlined at thread start). Unable to tolerate full Metformin.

20th Dec

Folfoxfiri #1

Adding Berberine to the cocktail

13 Jan 2020

Folfoxfiri #2

27/1

Folfoxfiri #3

February

CoC protocol mk II 200 mg mbz, alternating months Doxycycline
(To this day). Decide to stick with half Metformin (500 mg/day) as BRAF and Metformin are good friends and I don't want them to get chummy. BRAF feeds on the by product of ketone energy production (Acetate) and therefore Keto diet or too much suppression of glucose power is lethal. Indeed I was for the first time doing Keto diet Jan 2019-June 2019 and this probably accelerated my cancer in to full steam ahead.

April 7th

Full resection of tumour, part liver, gallbladder. Clean edges, no liver invasion.

Restaged pT3N0M0

May

CT concerns anastomosis

June

PET concerns liver
MRI liver cleared, anastomosis concerns remain

July to August

Folfox #1
Folfox #2
Folfox #3

Stopped chemotherapy due to bradycardia. Enough.

New scans

Liver cleared. Anastomosis concerns still remain but unlikely cancerous

September

Colonoscopy .. clear N.E.D

October

New MRI
New PET

November this week

Results in.

Radiology free.

N.E.D.

.....

In June/July I added IV Vitamin C 75g x 2 with one clinic but they were a bit far away for me so I stopped.

Then I found a nearer one and in July/August in between and after chemo I did another 6x IV Vitamin C 75g. So about half a kilo of the stuff. Never slept better. Couldn't keep eyes open.

I called a bit with Melatonin thereafter but not much.

I found a medical report of the only full remission of a mCRC patient with a similar profile to me except no BRAF. Deep in the report for one the patients own protocol was disclosed. Some familiar stuff. Francinsense (didn't try). There wort (didn't try). Chaga. What is Chaga? Did some research and thought this sounded interesting so got some of that. So from late August I added that.

Because the surgery was of course quite extensive I still suffered some pain around the wound. Read and for interested in Green Lipped Mussel. Got some of that again from August and wow. What an anti inflammatory. The next day I felt nothing. No pain or anything.

Now around June time I read the research about testosterone treatment discoveries in prostate cancer. My earlier research plus that led me to conclude that cancer likes certainty and routine so I decided to keep the CoC protocol as base but drop in and out of the now rather long list of stuff in my repertoire of funky stuff.

This means I could take a week with full on everything and other times I dropped out berberine, theracurmin and CBD ... Sometimes for weeks.

Plans ahead

1)
Stick with CoC protocol as is. Plus Vitamins. Plus occasional runs of CBD, Berberine and Theracurmin but I'm not very regular at all with these. I do journal it all though on a monthly sheet to keep a visual view of what I'm doing as after a while you don't remember what you did or when.

2)
Enjoy life.

I would like to wish all of you out there good luck and hope you found this site up useful.

If you have any questions please let me know.

Over and it from London UK.

User avatar
beach sunrise
Posts: 308
Joined: Thu Mar 05, 2020 7:14 pm

Re: Has Anyone Any Experience With The Joe Tippens Protocol?

Postby beach sunrise » Sat Nov 21, 2020 11:48 pm

Thanks for posting Aguilito! I will have to research some of your findings.
8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1/20 APR - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
FOLFOX
8 rds 6-10 CEA 11.4 4 more no oxa
7/20 CEA 11.1, 8.8
8/20 CEA 7.8
9/20 CEA 8.8, 9, 8.6
10/20 CEA 8.1
11/20 CEA 8's
MHL1+
PMS2+
MSH2+
MSH6+
POLD1
Chem-sens test NCI "Test failed, neo adj CR worked. Not enough ca cells to test"


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