Longer term lodgings in Rochester, MN

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Unitool78
Posts: 8
Joined: Thu Jun 13, 2019 1:47 am

Longer term lodgings in Rochester, MN

Postby Unitool78 » Fri Jul 24, 2020 7:50 pm

Just had a pretty encouraging visit to Mayo. CT still shows the enlarged problem nodes, and I've developed an incisional hernia, but the PET scan showed NO areas of uptake.

We're stopping chemo and I'll be starting a 5 week course of radiation at Mayo in the next couple weeks.

They're trying to get me a spot at the ACS Hope Lodge, but they're running at around 20% capacity due to COVID so who knows if that'll happen. Looking for other options.

Anybody deal with a similar situation there?

Thinking of finding furnished apartment that do a 1 month lease. Maybe Airbnb? Open to suggestions of things to look for.

TIA
Stage 3 diagnosis Oct '17
Signet ring
12" sigmoid resection Nov '17
5 positive nodes
8 rounds CAPOX
NED June '18
Liver mets + Peri node found Oct '18
7 rounds FOLFIRI + Avastin for 5
PVE followed by right hepatectomy April '19
Significant Portal hypertension w/ large volume ascites (personal recorded 9.4 liters drained at once)
Resumed FOLFIRI June '19
Add'l lymph node involvement Oct '19
As of June '20 total of 32 rounds chemo, 2 major surgeries, lost count of minor procedures.

Punky44
Posts: 441
Joined: Mon Oct 01, 2018 4:29 pm

Re: Longer term lodgings in Rochester, MN

Postby Punky44 » Sun Jul 26, 2020 11:40 pm

You could check out the Residence Inn Marriott—it’s attached to the hospital through the underground walkways and my mom stayed their during her radiation (though hers was short course so only 5 days vs 5 weeks). I’m not sure if they have different “extended stay” pricing but they have a fully furnished kitchenette in each room.
Caregiver to my amazing mom (68 at dx)
10/1/18 DX with rectal cancer; CEA 17
T3N2M0
Total neoadjuvant therapy:
8 rounds Folfox 11/5/18 - 2/11/19
Short course radiation 3/14/19 - 3/20/19
Robotically assisted laparoscopic LAR 3/21/19
Pathology report says yT2N0M0 with 0/38 nodes
6/28/19 Reversal and port out
CEA 2.1; 1.9; 2.6; 2.8; 2.3
Latest update: 6/20–Clear CT, normal CEA

Me: 34, first colonoscopy 11/16/18—normal! Come back in 5 years.


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