(Somewhat Delayed) Five Year Anniversary

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testing765
Posts: 316
Joined: Tue Aug 19, 2014 9:41 am

(Somewhat Delayed) Five Year Anniversary

Postby testing765 » Fri Jul 24, 2020 6:14 pm

Hi. I was diagnosed with stage 3b colon cancer in the fall of 2014. I had colon resection surgery and finished folfox chemotherapy in the spring of 2015. I have had three colonoscopies and at least annual ct scans since then. As I was approaching my five year anniversary, ct scans revealed a cyst on one of my kidneys and a cyst on the left and right dome of my liver. So my annual ct scans continued passed the five year mark. I will see my oncologist next Friday, but I had a ct scan on Wednesday and I reviewed the radiologist report- a stable scan of lungs, abdomen and pelvis. I am not sure whether my oncologist will officially release me next Friday. I am very grateful for this outcome.

The most recent colonoscopy that I had was in the fall of 2018. No polyps or any other problems. The gastroenterologist suggested another colonoscopy at 3 to 5 years. I am leaning toward 3 and that would mean I would get another in the fall of 2021.

This site was so helpful to me as I dealt with the colon cancer. I just wanted to offer encouragement to people who are dealing with colon cancer now. Thank you all for sharing your experience, strength and hope.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9

Lee
Posts: 6057
Joined: Sun Apr 16, 2006 4:09 pm

Re: (Somewhat Delayed) Five Year Anniversary

Postby Lee » Fri Jul 24, 2020 6:54 pm

Congratulation on your 5 year mark. That is a MAJOR milestone. I was scoped earlier this year, and yes they found a precancerous polyp. Surprise, surprise, surprise, NOT!!! I'm with you 3 year mark is fine with me.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

User avatar
cptmac
Posts: 1195
Joined: Mon Nov 19, 2007 3:15 pm
Facebook Username: Dorothy McGrath

Re: (Somewhat Delayed) Five Year Anniversary

Postby cptmac » Fri Jul 24, 2020 8:33 pm

Congratulations!!!
cptmac
As long as you're alive, there is hope.
dx 7/04 stage IV
colon resection 8/04
liver resection 9/04 with HAI pump installed
Stage II trial w irinotecan as systemic and FUDR for direct chemo to liver via HAI pump
Cured since 9/04

User avatar
ANDRETEXAS
Posts: 646
Joined: Fri Feb 14, 2014 11:01 am
Location: Austin, Texas (University of Tennessee alumnus)

Re: (Somewhat Delayed) Five Year Anniversary

Postby ANDRETEXAS » Sat Jul 25, 2020 2:25 am

I'm glad you have done so well. I know you were worried, as we all were, at the time of diagnosis, but you've done it ! Stay positive, exercise and help inform others. Congratulations ! Andre
P. S. I had a colonoscopy after one year, three years after that...and will have another in five years after the last - in 2023).
2014
2/10 - Colon resect
2/13 - DX- Stage IIIb
6 of 18 lymph nodes cancerous
3/7 - Port placed
3/11 - FOLFOX (12 rds w/full oxi)
8/14 - Chemo finish
8/25 - CT- Inc
9/5 - clean PET
12/10- clean CT
2015
3/2 - Clean colonoscopy & port removed
3/4- clean CT
9/21- clean CT
2016
3/23- clean CT
2017
2/22- clean CT
2018
3/21 - clean CT
4/11 - clean colonoscopy
2019
3/11 - clean CT
9/23 - Five-year release - Annual visits now !
Next colonoscopy - 2023

ONE DAY AT A TIME !

DarknessEmbraced
Posts: 3471
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: (Somewhat Delayed) Five Year Anniversary

Postby DarknessEmbraced » Sat Jul 25, 2020 9:57 am

Congratulations! That's wonderful! :)
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

testing765
Posts: 316
Joined: Tue Aug 19, 2014 9:41 am

Re: (Somewhat Delayed) Five Year Anniversary

Postby testing765 » Mon Aug 03, 2020 11:17 am

Hey all. So I met with my oncologist on Friday, 7/31/20. My colon resection surgery took place in the fall of 2014 and I finished 6 months of folfox in the spring of 2015. I had the stable ct scan in July of 2020. I was a little surprised that my oncologist told me that I still had a chance of colon cancer recurrence. I believe he said that I had a less than 10 percent chance of colon cancer recurrence. I guess I had assumed that if I made it to 5 years without a recurrence, that I would be completely out of the woods.

He thinks that the likelihod of me getting a new spontaneous case of colon cancer is low, assuming I keep up with colonoscopy schedule.

I will no longer receive ct scans for surveillance. I will only meet with him once a year, and I think my colon cancer monitoring will be limited to blood work including cea. Unfortunately, cea was not a sensitive marker for me when I was first diagnosed with cancer.

I did ask the oncologist about tcDNA, but he did not believe it would be helpful for me at this time. If I understood him correctly, tcDNA is potentially helpful for people who have more recently had colon resection surgery and have more recently finished chemotherapy.
male-age 44 at diagnosis
8/14-clnscopy
8/14-CT scan,no mets
9/14-left colectomy,CEA 2.2 before surgery
pT2pN2bpM0
3 cm tumor in dscnding colon
7/23 pos LNs
low grade MSI stable
10/14-start folfox
1/15-CT & PET scan and sigmdoscopy- no mets
3/15-finish folfox
9/15- clnscopy- 3 polyps removed
10/15- CT scan, NED
10/16- CT scan, NED, CEA 1.6
10/17- clnscopy- 4 polyps removed, CT scan NED, CEA 1.8
10/14 1.9; 4/15 2.8; 5/15 2.4; 9/15 2.8; 12/15 3.1; 1/16 3.0; 4/16 2.5; 7/16 2.5; 10/16 1.6; 1/17 1.9


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