New to this, don’t know how to “chat”

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Olha
Posts: 1
Joined: Fri Jul 17, 2020 9:25 am
Facebook Username: Olhapelech

New to this, don’t know how to “chat”

Postby Olha » Fri Jul 17, 2020 9:48 am

A little about me: Diagnosis Colon Cancer, stage 3. Had surgery April 4 and a port installed, amid Covid-19. A week ago had my fourth chemotherapy session with 8 more on the horizon. How do you do it? Am in need of some inspiration.

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: New to this, don’t know how to “chat”

Postby claudine » Sat Jul 18, 2020 10:09 am

Welcome to the forum, Olha. I hope it provides support, comfort and answers.
There’s no « recipe »... It’s a steep learning curve, so much thrown at you suddenly, new medical terms, your life doing a 180. A friend described it this way - cancer is like a balloon that will take over your entire horizon. Then slowly, your life starts to grow around it, it stops taking over everything.
One day at a time.
Wishing you the best of luck, and strength on this journey no one undertake willingly....
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: New to this, don’t know how to “chat”

Postby NHMike » Wed Aug 05, 2020 2:33 pm

My GI doc said that it won't be easy but just put one foot in front of the other and keep going. I have a long thread where I describe what I'm going through if you want to see a narration on what I went through. I was also stage 3.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

Capri
Posts: 80
Joined: Thu Apr 19, 2018 5:59 pm

Re: New to this, don’t know how to “chat”

Postby Capri » Thu Aug 13, 2020 7:14 pm

My son was Dx'd stage 3 colon cancer 12/17. Had a bowel resection and 12 rounds, of FOLFOX. How he worked every day, I don't know, but he did. One day at a time, one foot in front of the other. Some days were much better than others. Had a clear colonoscopy last fall--now on a every 3 yr plan. Now he is 25 months since finishing chemo and doing very well, Thank God. It was a rough road to travel but he did it--and is still working, keeping busy. I don't think I will exhale until at least 5 yr have passed.
I wish you all the best!
Mom to son 46 yo at Dx (2017)
1/18 Robotic resection, sigmoid adenocarcinoma, Stg. IIIA T3 N1 MX, mod. differentiated, margins clear
2/18 - 7/30/18 Port placed; completed 12 cycles of FOLFOX
6/18 Put on Early surveillance CT,PET scan-normal. Neuropathy has started.
11/18 Clean colonoscopy; 11/20 CT normal.
2019 to 7/22 colonoscopies, CTs neck to groin have been normal.


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