Reversal anxiety

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annieliz
Posts: 56
Joined: Fri Jul 26, 2019 5:13 pm

Reversal anxiety

Postby annieliz » Fri Jul 10, 2020 11:38 am

So, I am scheduled for my ileostomy reversal this Tuesday. I think I have done everything I can to prepare - reading posts in this forum and following links to additional information regarding tips for managing varying degrees of LARS, which of course I am hopeful that I will not experience (wishful thinking!)
Thank you to everyone in this forum for being so generous with your time and expertise.

annieliz
66 Female
7/15/19 Colonoscopy
7/26/19 DX: Rectal Adenocarcinoma
CEA 8/8/19-1.9, 12/6/19-2.3, 2/28/20-1.7, 11/27 - 1.9, 2/10/21 - 1.5
8/16/19 - 11/23/19 FOLFOX - 8 rounds
10/9 flex sig ~30% shrinkage 11/27/19-a bit more shrinkage
Neulasta 9/29/19, 10/27/19, 11/24/19
25 days Xeloda and radiation 12/17/2019 - 1/22/20
Robotic LAR 4/14/20 - clear margins - 0/15 nodes
Temp ileostomy - Reversal 7/15 - minor LARS
10/19/20 - clear colonoscopy
2/10/21 - clear CT

jts
Posts: 58
Joined: Sat Aug 24, 2019 3:07 pm

Re: Reversal anxiety

Postby jts » Fri Jul 10, 2020 4:28 pm

I'm still recovering from adjuvant chemo and have not tried to schedule a reversal yet, but I totally agree. Having the ileostomy has its hassles and limits activity somewhat, but at least it's predictable and I have control. I'm kinda dreading the reversal. I plan to at least enjoy the summer and get back some fitness before I undertake that mess.

Good luck! I'll be following soon enough. lol.
Male 42 — stage IV RC
NRAS mutant - KRAS, BRAF wt
08/2019 DX 6 cm long tumor
09-10/2019 Chemo-radiation
12/2019 TME Surgery, clear margins, 7/16 nodes positive
Pathology: ypT3 ypN2b M0
01-06/2020 - FOLFOX
CEA only goes up during chemo: 2.4 --> 6.2
07/2020 6 mm tumor in lung, was growing fast during chemo
09/2020 VATS
01/2021 new 5mm cyst in liver, CEA continues to increase --> 8
06/2021 CEA down to 6. Cyst not visible anymore.
05/2023 CEA fluctuates between 4 and 6. Scans have been clear.

NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Reversal anxiety

Postby NHMike » Fri Jul 10, 2020 5:02 pm

I think that knowing ahead of time what could happen is really helpful as you (or someone else) can bring supplies to deal with problems. I wasn't really prepared for what happened but I did learn. I think that things are a bit harder these days with tighter visitor policies in hospitals.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

annieliz
Posts: 56
Joined: Fri Jul 26, 2019 5:13 pm

Re: Reversal anxiety

Postby annieliz » Fri Jul 10, 2020 9:53 pm

Agree, jts, that the ileostomy is kind of a drag, but it's great having the predictability and control. And I was also getting quite good at the fine art of changing the bag! Enjoy the rest of the summer and good luck with your reversal.

And NH Mike, you can be sure I took note of all of the advice in your posts — particularly the emergency kit. You also inspired me to keep up with yoga as I recovered from chemo and surgery. The standing balance poses really helped the awkward feeling in my feet due to a bit of neuropathy. Keeping up with the practice really helped my balance and overall strength and flexibility.

Thanks again, and have a good night!
66 Female
7/15/19 Colonoscopy
7/26/19 DX: Rectal Adenocarcinoma
CEA 8/8/19-1.9, 12/6/19-2.3, 2/28/20-1.7, 11/27 - 1.9, 2/10/21 - 1.5
8/16/19 - 11/23/19 FOLFOX - 8 rounds
10/9 flex sig ~30% shrinkage 11/27/19-a bit more shrinkage
Neulasta 9/29/19, 10/27/19, 11/24/19
25 days Xeloda and radiation 12/17/2019 - 1/22/20
Robotic LAR 4/14/20 - clear margins - 0/15 nodes
Temp ileostomy - Reversal 7/15 - minor LARS
10/19/20 - clear colonoscopy
2/10/21 - clear CT


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