Complementary opinions

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beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Complementary opinions

Postby beach sunrise » Fri Jul 03, 2020 5:53 pm

Hi, I have contacted 2 different centers for consults but probably due to covid19 I haven't heard back yet. Contacted Lexington Natural Health Center this morning and they emailed back to set up appt with them Monday. I am excited to get an opinion on cancer and chemo and wondering if anyone else has consulted with them and/or used them as complimentary to chemo?
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
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rachelfromnyc
Posts: 60
Joined: Fri Oct 04, 2019 11:32 am

Re: Complementary opinions

Postby rachelfromnyc » Fri Jul 10, 2020 10:23 am

Were you able to do a consult with them? I am also interested in complementary therapies as I undergo chemo so definitely interested in your thoughts/experience with this practioner. Thanks!
Dx May '19, one month after 37th bday
5/19: 3.4 cm tumor in transverse colon, distant lymph nodes, innumerable lung nodules
Moderately differentiated invasive adenocarcinoma
MSS, TMB 7.9, BRAF/KRAS wild
6/19 - 9/19: Folfox
10/19 - 2 new tumors in liver, switch to Folfiri w/ Avastin
3/20 - liver tumors no longer seen, primary tumor 0.9 cm, continue Folfiri w/ Avastin
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beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Re: Complementary opinions

Postby beach sunrise » Fri Jul 10, 2020 11:54 am

Hi Rachel, 2 forum members let me know about Lexington Natural Health in MA and Naturopathic Specialist in AZ. I sent in paperwork for consult with Lexington this morning and now lining up a consult with Naturopathic also. I will definitely let you know how it goes. I hope you are doing well!
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
Top
NHMike
Posts: 2555
Joined: Fri Jul 21, 2017 3:43 am

Re: Complementary opinions

Postby NHMike » Fri Jul 10, 2020 5:09 pm

One of my sisters speaks highly of Lexington (she lives in the town where they are located). She has two close friends that had stage 4 cancer (not CRC but I don't remember the types) and they were alive longer and doing better than expected. She mentioned them to me in 2017 - I have not asked about her two friends since then. Oncologists are more about the treatments and less about nutrition. There was a guy at Dana Farber that did this kind of work as well but he became head of Yale's Oncology Department and moved away.

So you're getting a third-hand recommendation from me.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT
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User avatar
beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Re: Complementary opinions

Postby beach sunrise » Sat Jul 11, 2020 12:57 am

:D Thank you for the third hand recommendation, Mike! I truly appreciate it. Gives me more confidence I am on the right track with consults.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
Top
User avatar
beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Re: Complementary opinions

Postby beach sunrise » Tue Jul 28, 2020 7:07 pm

Hi Rachel, consult is Aug 17th with Lexington. I will let you know. Its took a minute with them and they are busy apparently.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
Top
rachelfromnyc
Posts: 60
Joined: Fri Oct 04, 2019 11:32 am

Re: Complementary opinions

Postby rachelfromnyc » Fri Aug 14, 2020 9:44 am

Hi beach sunrise,

Wanted to let you know that after reading your initial messages, I went ahead and contacted Lexington Natural Health for an appointment. Looks like I got in ahead of you (I was there yesterday). I had a phone consult a couple of days before that and my main purpose in coming in was to have blood drawn for specialized labs. I also did labwork for tests that could be done at LabCorp near me and some results were ready so we went through those. He also started me on some supplements. Overall I thought the office staff were very nice and the doctor very knowledgable. He treats all sorts of conditons but said that 95% of the people coming through the door are dealing with cancer and that he has a real passion for it. He is a long term cancer survivor himself.

Thanks,
Rachel
Dx May '19, one month after 37th bday
5/19: 3.4 cm tumor in transverse colon, distant lymph nodes, innumerable lung nodules
Moderately differentiated invasive adenocarcinoma
MSS, TMB 7.9, BRAF/KRAS wild
6/19 - 9/19: Folfox
10/19 - 2 new tumors in liver, switch to Folfiri w/ Avastin
3/20 - liver tumors no longer seen, primary tumor 0.9 cm, continue Folfiri w/ Avastin
Top
User avatar
beach sunrise
Posts: 1041
Joined: Thu Mar 05, 2020 7:14 pm

Re: Complementary opinions

Postby beach sunrise » Fri Aug 14, 2020 1:01 pm

Hey Rachel, that is wonderful!!! What bloodwork did he want (if you don't mind me asking)?
I am excited for consultation on Monday.
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test
Top
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