Complementary opinions

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beach sunrise
Posts: 162
Joined: Thu Mar 05, 2020 7:14 pm

Complementary opinions

Postby beach sunrise » Fri Jul 03, 2020 5:53 pm

Hi, I have contacted 2 different centers for consults but probably due to covid19 I haven't heard back yet. Contacted Lexington Natural Health Center this morning and they emailed back to set up appt with them Monday. I am excited to get an opinion on cancer and chemo and wondering if anyone else has consulted with them and/or used them as complimentary to chemo?
Dx 8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR ostomy - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2 CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
7-16 CEA 10.3 AFP 5.3 CA125 26.6 CA199 8
7-28 CEA 8.8 AFP 7.7 CA125 27 CA199 7
8-6 CEA 7.8 AFP 7 CA125 26.1 CA199 7
MHL1+
PMS2+
MSH2+
MSH6+
Chem-sens test NCI "Test failed, neo adj C/R worked. Not enough ca cells to test"

rachelfromnyc
Posts: 42
Joined: Fri Oct 04, 2019 11:32 am

Re: Complementary opinions

Postby rachelfromnyc » Fri Jul 10, 2020 10:23 am

Were you able to do a consult with them? I am also interested in complementary therapies as I undergo chemo so definitely interested in your thoughts/experience with this practioner. Thanks!
Dx May '19, one month after 37th bday
5/19: 3.4 cm tumor in transverse colon, distant lymph nodes, innumerable lung nodules
Moderately differentiated invasive adenocarcinoma
MSS, TMB 7.9, BRAF/KRAS wild
6/19 - 9/19: Folfox
10/19 - 2 new tumors in liver, switch to Folfiri w/ Avastin
3/20 - liver tumors no longer seen, primary tumor 0.9 cm, continue Folfiri w/ Avastin

User avatar
beach sunrise
Posts: 162
Joined: Thu Mar 05, 2020 7:14 pm

Re: Complementary opinions

Postby beach sunrise » Fri Jul 10, 2020 11:54 am

Hi Rachel, 2 forum members let me know about Lexington Natural Health in MA and Naturopathic Specialist in AZ. I sent in paperwork for consult with Lexington this morning and now lining up a consult with Naturopathic also. I will definitely let you know how it goes. I hope you are doing well!
Dx 8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR ostomy - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2 CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
7-16 CEA 10.3 AFP 5.3 CA125 26.6 CA199 8
7-28 CEA 8.8 AFP 7.7 CA125 27 CA199 7
8-6 CEA 7.8 AFP 7 CA125 26.1 CA199 7
MHL1+
PMS2+
MSH2+
MSH6+
Chem-sens test NCI "Test failed, neo adj C/R worked. Not enough ca cells to test"

NHMike
Posts: 2464
Joined: Fri Jul 21, 2017 3:43 am

Re: Complementary opinions

Postby NHMike » Fri Jul 10, 2020 5:09 pm

One of my sisters speaks highly of Lexington (she lives in the town where they are located). She has two close friends that had stage 4 cancer (not CRC but I don't remember the types) and they were alive longer and doing better than expected. She mentioned them to me in 2017 - I have not asked about her two friends since then. Oncologists are more about the treatments and less about nutrition. There was a guy at Dana Farber that did this kind of work as well but he became head of Yale's Oncology Department and moved away.

So you're getting a third-hand recommendation from me.
6/17: ER rectal bleeding; Colonoscopy
7/17: 3B rectal. T3N1bM0. 5.2 4.5 4.3 cm. Lymphs: 6 x 4 mm, 8 x 6, 5 x 5
7/17-9/17: Xeloda radiation
7/5: CEA 2.7; 8/16: 1.9; 11/30: 0.6; 12/20 1.4; 1/10 1.8; 1/31 2.2; 2/28 2.6; 4/10 2.8; 5/1 2.8; 5/29 3.2; 7/13 4.5; 8/9 2.8, 2/12 1.2
MSS, KRAS G12D
10/17: 2.7 2.2 1.6 cm (-90%). Lymphs: 3 x 3 mm (-62.5%), 4 x 3 (-75%), 5 x 3 (-40%). 5.1 CM from AV
10/17: LAR, Temp Ileostomy, Path Complete Response
CapeOx (8) 12/17-6/18
7/18: Reversal, Port Removal
2/19: Clean CT

User avatar
beach sunrise
Posts: 162
Joined: Thu Mar 05, 2020 7:14 pm

Re: Complementary opinions

Postby beach sunrise » Sat Jul 11, 2020 12:57 am

:D Thank you for the third hand recommendation, Mike! I truly appreciate it. Gives me more confidence I am on the right track with consults.
Dx 8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR ostomy - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2 CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
7-16 CEA 10.3 AFP 5.3 CA125 26.6 CA199 8
7-28 CEA 8.8 AFP 7.7 CA125 27 CA199 7
8-6 CEA 7.8 AFP 7 CA125 26.1 CA199 7
MHL1+
PMS2+
MSH2+
MSH6+
Chem-sens test NCI "Test failed, neo adj C/R worked. Not enough ca cells to test"

User avatar
beach sunrise
Posts: 162
Joined: Thu Mar 05, 2020 7:14 pm

Re: Complementary opinions

Postby beach sunrise » Tue Jul 28, 2020 7:07 pm

Hi Rachel, consult is Aug 17th with Lexington. I will let you know. Its took a minute with them and they are busy apparently.
Dx 8/19 RC CEA 86 T3N0M0
Neoadj 5FU/rad 6 wk
Surg 1-21-20 APR ostomy - margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24/post 5.9
mFOLFOX6 CEA 7
8 rds 6-10 CEA 11.4 4 more no oxa
6-17 CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2 CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
7-16 CEA 10.3 AFP 5.3 CA125 26.6 CA199 8
7-28 CEA 8.8 AFP 7.7 CA125 27 CA199 7
8-6 CEA 7.8 AFP 7 CA125 26.1 CA199 7
MHL1+
PMS2+
MSH2+
MSH6+
Chem-sens test NCI "Test failed, neo adj C/R worked. Not enough ca cells to test"


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