Hi Monimom- I don't have experience with Panitumumab but know that it's somewhere down the line for me. My oncologist explained that side effects are worse, as others have described, and therefore she's holding onto it until needed. Regarding your husband's liver tumors, is he on avastin currently like me? I have some lung nodules where something similar is happening. It was explained as: since avastin is a VEGF inhibitor, the blood vessels on the inside have been cut off and therefore have less access to nurtients in the bloodstream compared to the outside of the tumor. In my case, it looks like little holes in the middle of the nodules.
No progression is always good. I am also trying to figure out this CEA business. When mine started increasing, I would ask to take it every time I was there which was stressful. I asked two oncologists what the appropriate frequency is to look at it. One answer was once per month and the other was evertyime time you have a scan since that number alone won't be used to make a decision. It has to be looked at with the scan.
37 at dx May '19, one month after my bday
5/19: 3.4 cm mass in transverse colon, enlarged distant lymph nodes, innumerable lung nodules; CEA 13.2 ng/mL
5/19: FNA of supraclavicular lymph nodes positive for disease
6/19 to 9/19: 6 cycles of FOLFOX; CEA 3.9 ng/mL
7/19: CEA 4.3 ng/ml
10/19: CT scan shows primary tumor stable, lymph nodes shrinking and disease progression in liver; CEA 4.8 ng/mL
10/19: Start FOLFIRI with Avastin, planned 6 rounds