Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

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Rikimaroo
Posts: 297
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Postby Rikimaroo » Thu Jun 25, 2020 2:10 pm

Hello All,

Question regarding this pouch. I love the pouch and how easy it is to remove and snap back on. My only question is I feel this pouch is much more bulky in regards to sticking out. I know Lee uses it and not sure who else, but what have you done to make it less noticeable. I don't have a big gut. When I wear white T-shirts Large the outline of the pouch always shows. If I am going out of course I wear button up short sleeves shirt and it doesn't show as much, but I want to make it less conspicuous.

All advice is appreciated :)

Best
Riki
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri

User avatar
beach sunrise
Posts: 118
Joined: Thu Mar 05, 2020 7:14 pm

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Postby beach sunrise » Thu Jun 25, 2020 7:02 pm

Hi Riki, look up ostomy wraps for men maybe. I wear pretty ones for women made by simply beautiful. You might could even email simply beautiful to see if they make them for men. The lady who started the company has an ostomy or used to have a temp ostomy.
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surg 1-21-20 APR ostomy, neg margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
presurg cea 24/post 5.9
Adj mFOLFOX6, cea 7
8 rds 6-10 CEA 11.4, 4 more no oxa
6-17: CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2: CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
MHL1+
PMS2+
MSH2+
MSH6+
Chemo sensitivity test NCI "Test failed, neo-adj chemorad did its job. Not enough ca. cells to test."

Rock_Robster
Posts: 507
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Postby Rock_Robster » Fri Jun 26, 2020 2:56 am

Stealth Belt!

www.stealthbelt.com

I used to use the one-piece system of this pouch. Great product but yes it does need a wrap or belt or similar.

Good luck,
Rob
38M Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9, Jun-20=2.1
11/18 FOLFOX x6
3/19 Liver resect
5/19 25x pelvic VMAT radiation; complete met. response
07/19 Robot ULAR w ileo, 1/27 LN+
08/19 Found liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resect #2
02/20 Ileo reversed
03/20 NED (PET+MRI)
06/20 NED (CT+MRI)
07/20 Clear scope

Lee
Posts: 6051
Joined: Sun Apr 16, 2006 4:09 pm

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Postby Lee » Fri Jun 26, 2020 8:56 am

Rikimaroo wrote:Hello All,

. . . . I know Lee uses it and not sure who else, but what have you done to make it less noticeable. . . .

All advice is appreciated :)

Best
Riki


I wear a NuHope Ostomy belt specially designed for those people who have hernia around the stoma. The belt has an special ring that you put your bag through. Does not stick out.

Hope this helps, good luck.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Rikimaroo
Posts: 297
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Postby Rikimaroo » Sat Jun 27, 2020 10:20 am

I assuming on the ostomy wraps you wear it only when your going out? Doesn't it feel constricting when your stoma is going to be active obviously this is unpredictable, so how do you work around that?

I think I wrap is a good idea as well. I just don't want the thing to show lol.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri

Lee
Posts: 6051
Joined: Sun Apr 16, 2006 4:09 pm

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Postby Lee » Sat Jun 27, 2020 6:36 pm

I wear my belt from the time I get up in the morning till the time I go to bed at night. I do that because it helps my hernia.

The ring on the belt is slightly larger than the ring on your wafer.

Here is there website.

https://www.nu-hope.com/

Check it out.

Lee
rectal cancer - April 2004
46 yrs old at diagnoses
stage III C - 6/13 lymph positive
radiation - 6 weeks
surgery - August 2004/hernia repair 2014
permanent colostomy
chemo - FOLFOX
NED - 16 years and counting!

Rock_Robster
Posts: 507
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Postby Rock_Robster » Sat Jun 27, 2020 11:11 pm

Rikimaroo wrote:I assuming on the ostomy wraps you wear it only when your going out? Doesn't it feel constricting when your stoma is going to be active obviously this is unpredictable, so how do you work around that?

I think I wrap is a good idea as well. I just don't want the thing to show lol.

I wore the stealth belt 24/7, I just loosened it for sleeping. In the end I felt naked without it. It has a hole for the stoma and appliance to pass through and then a cover over it, so the pressure is around the connection, not on it. It doesn’t intervene at all with stoma movements as long as you aren’t wearing anything extremely tight (and it would have to be VERY tight to do that!) or have it tucked into your waistband (I had an ileostomy so I wore it over my waistband with a longer t-shirt over the top).
38M Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9, Jun-20=2.1
11/18 FOLFOX x6
3/19 Liver resect
5/19 25x pelvic VMAT radiation; complete met. response
07/19 Robot ULAR w ileo, 1/27 LN+
08/19 Found liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resect #2
02/20 Ileo reversed
03/20 NED (PET+MRI)
06/20 NED (CT+MRI)
07/20 Clear scope

Rikimaroo
Posts: 297
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Postby Rikimaroo » Sun Jun 28, 2020 10:28 am

Rock did you get the vertical stealth or the one that you have to move your bag horizontal? How are you doing Rock since Ileo reversal? Glad to see your 6 months scans are good as well.

I am debating getting the stealth belt. I just want to conceal it a bit more, just this particular bag brand sticks out more.
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri

Rock_Robster
Posts: 507
Joined: Thu Oct 25, 2018 5:27 am
Location: Melbourne, Australia

Re: Coloplast SenSura Mio Click Two-Piece Closed Pouch 6211413

Postby Rock_Robster » Mon Jun 29, 2020 12:31 am

Rikimaroo wrote:Rock did you get the vertical stealth or the one that you have to move your bag horizontal? How are you doing Rock since Ileo reversal? Glad to see your 6 months scans are good as well.

I am debating getting the stealth belt. I just want to conceal it a bit more, just this particular bag brand sticks out more.

Hi Riki,

I did get the vertical version (“Stingray”); my nurse suggested this as ileostomies really need to remain vertical (unlike colostomies). It’s a great product but not especially cheap - if we happen to have similar sizing I’d be happy to send you mine (well washed!) to try out!

Going very well thanks - yes I was very pleased with the scan results! Everything else is good - I’m 4 months post-reversal and generally have a pretty decent lifestyle. I’ve made a number of adjustments to my routine to make things workable, and about 80% of the time is seems to work. I must say working from home due to Covid has made things a lot easier in that regard.

Hope things are going well for you!

Cheers
Rob
38M Australia
10/2018 Dx 3.5cm RC adenocarcinoma, 12cm high
Mod diff, EMVI+ LVI+. 4 liver mets
pT3N1aM1a Stage IVa. MSS NRAS G13R
CEA: Oct-18= 12; Nov-18= 14, Mar-19= 2.4, Aug-19 <2.0, Mar-20=2.2, May-20=1.9, Jun-20=2.1
11/18 FOLFOX x6
3/19 Liver resect
5/19 25x pelvic VMAT radiation; complete met. response
07/19 Robot ULAR w ileo, 1/27 LN+
08/19 Found liver spot
08/19 FOLFOX x1, FOLFOXIRI x1, FOLFIRI x5
12/19 Liver resect #2
02/20 Ileo reversed
03/20 NED (PET+MRI)
06/20 NED (CT+MRI)
07/20 Clear scope


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