CEA on the rise ... PET scan scheduled

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Monimom
Posts: 20
Joined: Wed Jan 08, 2020 6:15 pm

CEA on the rise ... PET scan scheduled

Postby Monimom » Wed Jun 24, 2020 7:56 am

Hello,
My DH's CEA has gone up the last month twice, from 433 to 534 and last week 582... they are doing a PET scan tomorrow, to see "whats going on"... oddly enough this rise began right after they stopped the Oxaliplatin, could there be a connection??? I am concerned as the CT scan he had last month notated a streaky opacity on his lung, but did mention it was likely focal scarring vs a nodule... I have been scrounging through google and did see sometimes if cancer is dying off the CEA could rise ... praying for that .. any one with experience with this please chime in... thanks soo much
Moni
Oct 2019 56 yo Husband DX'd
Stage 4 MCC
Colon thickening w/ apple core 3.9 cm area
Liver mets both lobes 10.4 x 7.6 cm & 9.3 x 7.7cm
innumerable small lesions
Oct 2019 Liver Biopsy
CEA Dec '19 . 3,028
Dec 2019-present 5FU, Avastin & Oxaliplatin
Jan '20. CEA 1861.8
Feb '20 CT mets 9.4cm x 6.5 & 8.0 x 6.7 cm
April '20 CEA 411.1
May '20 CT mets 8.6cm x 6.3 & 5.7 x 6.1 cm
Colon unchanged

Rikimaroo
Posts: 297
Joined: Tue Dec 20, 2016 8:48 pm
Location: Florida

Re: CEA on the rise ... PET scan scheduled

Postby Rikimaroo » Wed Jun 24, 2020 12:29 pm

Sorry to hear this. CEA always makes me nervous and causes so much anxiety. My CEA was once 600 and went down doing FolFox. Eventually my oncologist decided that FolFiri is the next step for me and put me on that and it made a big impact on reducing my CEA. Has your husband Oncologist tried FolFiri on him?
RC T3N1M0 12/16
MSS - NRAS Mutation
Chemo Rad, CCR - W&W 5/2017
Recurrence 11/2017
CT Scan 11/2017 Liver Met 5.5cm Stable, Stage IV
Port Scheduled for 12/2017, folfox - avastin 12/2017
LAR/Liver Resect 4/2018
Chemo Finish 8/2018
Reversal 10/18
CEA highest 500, lowest .8 throughout process, waiting for latest
Recurrence left vesical/pelvic sidewall - 10/7/2019 resect perm bag,
FolFiri 11/6 - 5 rounds
CEA rise Feb/May 3.7, 8.8, 30, Recurrence in Pelvic
Maintenance Chemo begin 6/3/20 FolFiri

Monimom
Posts: 20
Joined: Wed Jan 08, 2020 6:15 pm

Re: CEA on the rise ... PET scan scheduled

Postby Monimom » Mon Jun 29, 2020 7:56 am

Hi,
We are going today for the PET results, not knowing why the increase as of right now, his Dr. mentioned changing his regimen if the 5FU Avastin stopped working... I think she mentioned Xeloda... he is not going back on Oxaliplatin, hes had numb feet for 3 weeks now.. praying for the best news today... I will post back later
Thank you for replying... seems like getting replies is hit or miss... so I appreciate it.
Moni
Oct 2019 56 yo Husband DX'd
Stage 4 MCC
Colon thickening w/ apple core 3.9 cm area
Liver mets both lobes 10.4 x 7.6 cm & 9.3 x 7.7cm
innumerable small lesions
Oct 2019 Liver Biopsy
CEA Dec '19 . 3,028
Dec 2019-present 5FU, Avastin & Oxaliplatin
Jan '20. CEA 1861.8
Feb '20 CT mets 9.4cm x 6.5 & 8.0 x 6.7 cm
April '20 CEA 411.1
May '20 CT mets 8.6cm x 6.3 & 5.7 x 6.1 cm
Colon unchanged


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