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Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Hi everyone

Postby Trying » Sun Jun 21, 2020 4:33 pm

Hi everyone,

I havent posted in a long while. I hope everyone of you are well. An update on me: my scan 2 scans ago had shown some growth so they put me back on oxy. My last scan showed quite a few shrunken lymph nodes but my damn met grew 2mm again! Dr was still happy about it though I had hoped for more. I've started infared saunas. I'm getting emotional support that I need although I still have days like today when I think " oh my goodness its been over 2 years and I'm still on chemo. Others are better by now" i have to remind myself that Everyone's journey is different. I still think of you all and hope for health for all of you. Still praying every night to raise my boy to a man.
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

User avatar
CRguy
Posts: 10179
Joined: Sun Feb 10, 2008 6:00 pm

Re: Hi everyone

Postby CRguy » Sun Jun 21, 2020 11:04 pm

Hey sista'

Sending MEGA POSI VIBES your way

Sometimes all we can do is stay strong and carry on !
Don't retreat ... RELOAD !

With you always
on the Journey
In Harmony
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Re: Hi everyone

Postby Trying » Mon Jun 22, 2020 10:31 am

Thanks CRGuy :D
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

Claudine
Posts: 386
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Hi everyone

Postby Claudine » Mon Jun 22, 2020 12:17 pm

As long as Dr is happy - we're in the same boat, DH was basically diagnosed same time as you, he's been through a lot already but onc is not too worried for now. I've had friends say, "gee you guys have been dealing with this for a long time!" and I know they mean well but I want to say, it's not a broken leg, it will likely be with us for ever (on and off, hopefully). Hang in there and keep fighting, there's so much research going on into CRC treatment right now, I'm optimistic there's a cure right around the corner!
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A
No primary (involuted?)
Lytic tumor L4 vertebrae, EBRT 04/18, SBRT 02/19
Resect small intestine 05/18 (no cancer - Crohn's)
Failed adjuvant Xelox
Folfiri + Avastin 03/19 to 01/20
6.7 cm left adrenal mass 03/19, successful resection 02/20
CEA since 03/19: high 58, low 3.2, now 4.4
Scan 03/19: Multiple small lung nodules up to 5mm
Scan 12/19: one 1mm stable nodule
PET 04/20 uptake by L4
L3-L4-L5 fusion surgery and residual tumor removal 05/20

boxhill
Posts: 555
Joined: Fri Apr 06, 2018 11:40 am

Re: Hi everyone

Postby boxhill » Mon Jun 22, 2020 12:36 pm

Any discussion of treating the met directly with surgery/ablation/et al? I know it might not be "curative," but since it is the only thing not responding to chemo....
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 nodes,5 mesentery nodes
5mm liver met out
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 CT NED
11/18 CT NED
12/18 MRI 5mm liver mass, 2 lymph nodes in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/19 MRI stable/NED
Suspend treatment

Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Re: Hi everyone

Postby Trying » Mon Jun 22, 2020 3:40 pm

Hi ,

For the time no they wont. One of the liver mete is in a bad spot and I also have a peri met
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Re: Hi everyone

Postby Trying » Tue Jun 23, 2020 6:02 pm

Nice to hear from you Claudine!
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

stu
Posts: 1355
Joined: Sat Aug 17, 2013 5:46 pm

Re: Hi everyone

Postby stu » Wed Jun 24, 2020 4:47 pm

Good to hear from you Trying . Think of you a lot and glad to hear you are safe from all that COVID has thrown up and pressing forward .
Take care ,
Stu
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

Trying
Posts: 240
Joined: Sun May 13, 2018 10:11 pm

Re: Hi everyone

Postby Trying » Sat Jun 27, 2020 8:11 pm

It is so nice to hear from you , Stu!
38 yr old single mom of almost 2 year old at the time
April 2018 colon cancer stage IV 10 liver mets and peri met. Folfox and 12 rounds oxyplatin
Fec 2018 Down to 2 mets in liver. 8 dissapeared
July 2019 switched to xeloda pills as I prefer to 3 day infusion. Also on avistan
Oct 2019 emergency colostomy due to perforated bowel. ( unreal pain)
Feb 2020 show 2mm tumor increase.
Plan to go back on oxy

Carboxo
Posts: 17
Joined: Sat Nov 02, 2019 5:10 pm

Re: Hi everyone

Postby Carboxo » Sat Jun 27, 2020 10:00 pm

Sending positive vibrations. Hang in there.
DS: caregiver
42, female
DX: RC, Adenocarcinoma
G2: Moderately differentiated
pT1N1bM0 Stage IIIA
Positive lymph’s:, 2/15
Baseline CEA value 2.5
Tumor invades submucosa
Perineural invasion (PNI) present
Surgical margins: clear
MSS,KRAS/BRAF status: WT
LAR robotic, colectomy, with Ileostomy 9/4/19
Radiation therapy (if any): Chemo/rad scheduled next
Chemotherapy:XELODA,CAPEOX, started 10/28/19

Carboxo
Posts: 17
Joined: Sat Nov 02, 2019 5:10 pm

Re: Hi everyone

Postby Carboxo » Sat Jun 27, 2020 10:01 pm

Sending positive vibrations. Hang in there.
Carmen
DS: caregiver
42, female
DX: RC, Adenocarcinoma
G2: Moderately differentiated
pT1N1bM0 Stage IIIA
Positive lymph’s:, 2/15
Baseline CEA value 2.5
Tumor invades submucosa
Perineural invasion (PNI) present
Surgical margins: clear
MSS,KRAS/BRAF status: WT
LAR robotic, colectomy, with Ileostomy 9/4/19
Radiation therapy (if any): Chemo/rad scheduled next
Chemotherapy:XELODA,CAPEOX, started 10/28/19

DarknessEmbraced
Posts: 3466
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Hi everyone

Postby DarknessEmbraced » Sun Jun 28, 2020 10:51 am

I hope your chemo goes well!*hugs* :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)


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