Tests at Dx

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beach sunrise
Posts: 121
Joined: Thu Mar 05, 2020 7:14 pm

Tests at Dx

Postby beach sunrise » Thu Jun 18, 2020 3:54 pm

Hi, some good advice from past posts on here. The chemo sensitivity testing on your live cancer cells is a promising "insurance policy" especially if you can have it done up front during the biopsy or surgery stage before chemo/rad. In my case I didn't know about it until half way through neo-adjuvant chemo/rad but took a shot at it anyway as part of surgery for upcoming adjuvant chemo. Because radiation did its job up to 75%+, there was not enough live cancer cells to test for me. But, it was worth a shot anyway just to see.
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surg 1-21-20 APR ostomy, neg margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
presurg cea 24/post 5.9
Adj mFOLFOX6, cea 7
8 rds 6-10 CEA 11.4, 4 more no oxa
6-17: CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2: CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
MHL1+
PMS2+
MSH2+
MSH6+
Chemo sensitivity test NCI "Test failed, neo-adj chemorad did its job. Not enough ca. cells to test."

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CRguy
Posts: 10179
Joined: Sun Feb 10, 2008 6:00 pm

Re: Tests at Dx

Postby CRguy » Fri Jun 19, 2020 10:49 pm

I think this falls into my mindset of
"you miss more for not looking than not knowing"

I agree :
get as much info as you can up front, tests, referrals, follow ups etc.

there is WAY more available now than when I was at Dx and early Tx phase
I had pCR from chemorad so NO tissue to check at resection. All we had to go on was the initial biopsy.

At this point in time, if doing it all again ( NO thanks anyway !!! :shock: )
I would absolutely bank samples and have tests done.

Thanks for sharing here
Cheers
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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