Stage 3C n2a, t4b Signet Ring Cell Survivor 4.5 year update

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BeckyH
Posts: 13
Joined: Sat Nov 26, 2016 12:19 pm

Stage 3C n2a, t4b Signet Ring Cell Survivor 4.5 year update

Postby BeckyH » Wed Jun 17, 2020 9:30 pm

Hello to my fellow warriors out there.

Today, I saw my oncologist for my 4.5 year post surgical follow up. I was diagnosed with signet ring cell adenocarcinoma of the sigmoid colon in January, 2016. I had 18 inches of colon removed on 2/8/2016. After 5 weeks of post surgical healing, I received 12 treatments of Folfox every other week which lasted 6 months. I was 48 at the time and my children were 10 and 12 years old.

I found this website years ago when I was having insomnia and terror of having such a very rare diagnosis. I found hope through many members on this board, but specifically Dori. You may not know that sharing your stories and your hopes help someone battling out there but they do.

My CT scan showed no evidence of disease. My blood work was great. My CEA was a 2.0 but for me the CEA is not a reliable indicator because it was never elevated by very much. I will have another scan in 6 months and that will bring me to the 5 year point. After that I will have annual scans/check ups. I am not to the point where my doctor will declare me "cancer free" but with every passing day/week/month I am getting closer. I am a work in progress. The mental piece of this battle is difficult but so important. I hope that anyone who reads this will take advantage of support groups, counseling, or other professional help. I am starting to think it won't be colon cancer that ends my life. Meanwhile, please please please wear your masks and be careful with this pandemic. I spoke with my very skilled and brilliant oncologist regarding this today and she strongly encourages distancing and mask use until a vaccine is available. It would suck for my desire to attend a concert or BBQ without a mask to be the end of me after all I have battled and fought for.

Much love and strength to all my warriors out there. Stay strong.
Stage 3C n2a, t4b 35/56 lymph nodes positive for Signet Ring Cell Adenocarcinoma, Sigmoid Colon
DX: Suspected Colon Cancer January 29, 2016
2/8/16: Removed 17" Colon (Sigmoid area) & 1"Rectum & 58 lymph nodes
2/12/16: CA in 35/58 lymph nodes
Cancer: Stage 3C T3N2B
Path: Signet Ring Cell Adenocarcinoma
Chemo: 12 rounds of FOLFOX, (3/17/16 to August, 2016) Leukovorin DC'd after WBC decrease.
Scans: F/U scans every 3 months; last one 8/2017--All NED.
CEA: Stable b/t 1 and 2

Hopepray
Posts: 14
Joined: Fri Feb 14, 2020 9:48 pm

Re: Stage 3C n2a, t4b Signet Ring Cell Survivor 4.5 year update

Postby Hopepray » Thu Jun 18, 2020 11:15 am

Nice to read such updates. God bless you and may you progress faster to full remission!
Caregiver to mom
54 y, dx 2/20, T3N1B Upper Rectal CA,14 cms from AV
2.5 x 1.3 cm, base 1.5cm
CEA: 2.8 2/10/20;; 2.3 4/20;;1.3 6/20
CT and MRI show the tumour + Ground Glass Nodule Lung + Hemangioma Liver.
Grade 1 Tumor
EMVI absent
Genetics not done
28x/Cap/ CRT 28/Mar/20
MRI- 4/20- no mass seen, a nubbin of a node in peri-rectal space.
Pet/CT 6/20 no nodes or rectal mass, no Glass nodule in lung. Hemangioma.
Flex Sig w/ biopsy: scar tissue remains no obvious mass, biopsy result -ve for active CA cells

Wewillfight
Posts: 26
Joined: Sun Mar 03, 2019 5:27 am

Re: Stage 3C n2a, t4b Signet Ring Cell Survivor 4.5 year update

Postby Wewillfight » Thu Jun 18, 2020 4:56 pm

You've done amazing. Fingers crossed for continued success

May I recommend getting a PET scan as golden standard of imagery for any potential micromets getting into pertineum etc.

Lots of love.
Feb 2017 (35yr) stage IIIc, surgery, colostomy, 2 nodes ( crohns colitis since 17yr
6 months FOLFOX
MSS - low mutation burden, TMB=1
NED
Rejoin June 2018
December 2018 symptoms
March 2019: recurrence , surgery , some spread to pertineum
Jan-June 2019 Folfiri+Cetux
No spread.
August 2019: partial blockage symptoms
Nov 2019: Aborted small bowel resection, venting gastronomy fitted , home TPN
Dec 2019- Jan 2020: Keytruda
Feb 2020: reaction
Feb 2020: treatment ceased, TPN withdrawn
March 18 2020: RIP Brother.

User avatar
CRguy
Posts: 10179
Joined: Sun Feb 10, 2008 6:00 pm

Re: Stage 3C n2a, t4b Signet Ring Cell Survivor 4.5 year update

Postby CRguy » Thu Jun 18, 2020 7:28 pm

Keep kickin' colorectal BUTT !!!!!

CHEERS and Mega Harmony to you
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
13 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far

User avatar
beach sunrise
Posts: 121
Joined: Thu Mar 05, 2020 7:14 pm

Re: Stage 3C n2a, t4b Signet Ring Cell Survivor 4.5 year update

Postby beach sunrise » Sat Jun 20, 2020 3:31 pm

I am so happy for you!!!! I love great news like this.
Dx 8/19, RC, CEA 86, clinical T3N0M0
Neoadj 5FU/rad 6 wks
Surg 1-21-20 APR ostomy, neg margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
presurg cea 24/post 5.9
Adj mFOLFOX6, cea 7
8 rds 6-10 CEA 11.4, 4 more no oxa
6-17: CEA 11.1 AFP 11.2 CA125 25.7 CA199 9
7-2: CEA 11.1 AFP 5.3 CA125 24.8 CA199 8
MHL1+
PMS2+
MSH2+
MSH6+
Chemo sensitivity test NCI "Test failed, neo-adj chemorad did its job. Not enough ca. cells to test."

Siti
Posts: 155
Joined: Thu Aug 01, 2019 10:58 am

Re: Stage 3C n2a, t4b Signet Ring Cell Survivor 4.5 year update

Postby Siti » Sun Jun 21, 2020 8:33 am

Thank you for sharing your story! Very happy for you :)
Wife of DH (54) DX on 5/7/19
CEA value: 1.2
T loc: Sigmoid
T type: Adenocarcinoma
T grade: G3
Pos LNs: 30/31
Wild Type for KRAS, NRAS and BRAF
19/7/19 PET-CT Scan: Distant lymph nodes (para-aorta, neck & hip), est. size 0.5-1.5cm.
22/7/19 Surgery: Laparoscopic Colon Resection
26/8/19 Chemo: CAPEOX + Avastin x 9
6/11/19 CT Scan after 3rd cycle, all nodes have shrunk! Yay!!


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