Hi everyone
I am in need of advice and and others experience and stories.
8 weeks ago I had a liver resection 3 small tumors were removed (2 small sections) and 3 were ablated (all three were so small no longer seen on scans but found with internal liver ultrasound during surgery). Pathology came back on Tumors removed one was 96% dead and the other two were over 80%dead, this was good news. Today I had my first scans with hope that I would now be NED.
The results came back that there is a 0.6 cm suspicious enhanced area next to one of the ablated spots. We did scans at our new local community clinic (just moved) and plan to send all results to our surgeon and oncologist at MSK but we won't know what they think until sometime next week after they get the hard copies. The community onc. was unsure what to think or what to do... could it be inflammation? My CEA did not go down after surgery it remained at 4.6 but my CEA has not seemed like a good indicator for me since my diagnosis last summer.
Has anyone experienced this? Could it be just inflammation? Could they have missed a spot during the surgery? Could it have grown since surgery?
They did not want me to do mop up chemo because pathology looked so good, so no chemo since beginning of March.
Has anyone had to go back in after a surgery because of a missed spot? If so did you do ablation, another resection, more chemo?
I know that the good news is that there has been no spread any where else, the surgeon visually searched my abdomen and para aortic lymph nodes and all looked clear before proceeding with liver resection. Scans continue to show that.
Last year I was in the emergency room on Father's day. My husband has been my rock during this last year and I wanted so badly for this scan to be clear and just have a nice Father's Day for him.
I need encouragement... but also info so that I don't drive myself mad as I wait to hear from the doctors.