Another clear CT, again!

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AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Another clear CT, again!

Postby AmyG » Sun Jun 07, 2020 4:25 pm

Results came in Friday night to mychart. No evidence of recurrence. I love having all my insides described as unremarkable. :lol:

Labs and appointment on Wednesday, not expecting anything out of the ordinary there. I'm almost 6 full months out from my last treatment. Hair has grown back, most of the neuropathy is gone. Feet still suck a little but it's tolerable.

Everything it's pretty quiet in our neck of the woods. Thankful to still be here. Nicholas is coming up on 15 months old and is such a disaster, it's wonderful. :lol:


.
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

CF_69
Posts: 109
Joined: Sat Dec 22, 2018 9:44 pm

Re: Another clear CT, again!

Postby CF_69 » Sun Jun 07, 2020 4:52 pm

Congratulations on your good news.
47 at diagnosis
Rectosigmoid junction
Adenocarcinoma
2.8 x 1.8 x 3.5 cm
G2
T3N0M0
CEA:
December 2018 - 1.9
September 2019 - 2.5
March 2020 - 2.3
September 2020 - 2.5
Xeloda / radiation x 25
Laparoscopic LAR April 2019
0 of 12 nodes
Stage 2A
4 cycles of adjuvant Xeloda
MRI on liver for 2mm hypodensity not suspicious.
Clear CT - September 2019
Clear CT - October 2020

Wewillfight
Posts: 26
Joined: Sun Mar 03, 2019 5:27 am

Re: Another clear CT, again!

Postby Wewillfight » Sun Jun 07, 2020 5:30 pm

That is awesome. You are an inspiration. Praying for continued health and much love from Ireland :)
Feb 2017 (35yr) stage IIIc, surgery, colostomy, 2 nodes ( crohns colitis since 17yr
6 months FOLFOX
MSS - low mutation burden, TMB=1
NED
Rejoin June 2018
December 2018 symptoms
March 2019: recurrence , surgery , some spread to pertineum
Jan-June 2019 Folfiri+Cetux
No spread.
August 2019: partial blockage symptoms
Nov 2019: Aborted small bowel resection, venting gastronomy fitted , home TPN
Dec 2019- Jan 2020: Keytruda
Feb 2020: reaction
Feb 2020: treatment ceased, TPN withdrawn
March 18 2020: RIP Brother.

claudine
Posts: 809
Joined: Tue Mar 12, 2019 2:41 pm
Location: Montana

Re: Another clear CT, again!

Postby claudine » Mon Jun 08, 2020 9:41 am

Woop woop!!! That’s fantastic news. I’ve always enjoyed your funny, positive attitude. Glad the scan is all clear :D
Wife of Dx 04/18 (51 yo). MSS, KRAS G12A, no primary

Tumors: L4 04/18; left adrenal gland & small lung nodules 03/19
rectum 02/22 (pT3 pN0 stage 2A); L3 09/22

Surgeries: intestinal resect. 05/18 (no cancer - Crohn's); adrenalectomy 02/20
L3-L4-L5 fusion and corpectomy 05/20; LAR 04/22; ileo reversal 09/22
L2-L3 fusion and corpectomy 09/22

Treatments: EBRT 04/18; SBRT 02/19; Failed adjuvant Xelox ; Folfiri/Avastin 03/19 - 01/20
adjuvant chemorad (Xeloda) 06/22; SBRT 11/22; Xeloda/Avastin since 01/24

boxhill
Posts: 789
Joined: Fri Apr 06, 2018 11:40 am

Re: Another clear CT, again!

Postby boxhill » Mon Jun 08, 2020 12:26 pm

Happy for the good news, AmyG. :D
F, 64 at DX CRC Stage IV
3/17/18 blockage, r hemi
11 of 25 LN,5 mesentery nodes
5mm liver met
pT3 pN2b pM1
BRAF wild, KRAS G12D
dMMR, MSI-H
5/18 FOLFOX
7/18 and 11/18 CT NED
12/18 MRI 5mm liver mass, 2 LNs in porta hepatis
12/31/18 Keytruda
6/19 Multiphasic CT LNs normal, Liver stable
6/28/19 Pause Key, predisone for joint pain
7/31/19 Restart Key
9/19 CT stable
Pain: all fails but Celebrex
12/23/19 CT stable
5/20 MRI stable/NED
6/20 Stop Key
All MRIs NED

michelle c
Posts: 1929
Joined: Wed Dec 02, 2009 3:58 am

Re: Another clear CT, again!

Postby michelle c » Tue Jun 09, 2020 5:33 am

Great news Amy! Very happy for you :)
May 25 2009 Dx with CC (sigmoid colon) 2 days after my 44th b'day
CEA prior to surgery 4.7
Jun 3 2009 LAR - Stage III 3/10 lymph nodes
Jul 6 - Dec 10 2009 - 12 cycles FOLFIRI
Genetic testing - inconclusive for Lynch
Jul 2012 port removed & hernia repair

Gravelyguy
Posts: 382
Joined: Thu Jul 05, 2018 6:03 pm

Re: Another clear CT, again!

Postby Gravelyguy » Tue Jun 09, 2020 7:34 am

Awesome, Amy! Enjoy the day!

Dave
6/17 dx mRC t3n1m1 very low rectal tumor 2 liver Mets 1.3 cm and .9 cm

6/17 begin 4 rounds Folfox w/Vectibix
9/17 short course radiation
10/17 rectal and liver resection LAR with coloanal anastomosis (no rectum left)
11/17-3/18 8 rounds Folfox
6/18 still NED!! Takedown
8/28/18 still NED! CEA .8 new low for me
10/18/18 colonoscopy clear
12/12/18 CEA .9 still NED!
6/11/19 CEA 1.0
12/19/19 CEA 1.0 still NED!
6/17/20 CEA 1.1 still NED!
12/15/20 CEA 1.1still NED!
12/16/21 CEA 1.2 still NED!

User avatar
ginabeewell
Posts: 565
Joined: Wed Oct 24, 2018 10:30 am

Re: Another clear CT, again!

Postby ginabeewell » Tue Jun 09, 2020 11:27 am

Good for you! And what a relief. Enjoy breathing a little easier the next few months!!
49 YO mom of twins (11) lucky stepmom of 16/19 year olds
9/17/18 DX stage 4 CRC w inoperable liver mets CEA 931
Currently NED!

Join me on a lookback of my journey via my Strive for Five on Substack here:
https://ginajacobson.substack.com

All treatment details here:
https://www.weareallmadeofstars.net/col ... nt-journey

My favorite posts here:
https://weareallmadeofstars.net/favorite-posts

User avatar
beach sunrise
Posts: 1034
Joined: Thu Mar 05, 2020 7:14 pm

Re: Another clear CT, again!

Postby beach sunrise » Tue Jun 09, 2020 1:41 pm

YAY!!!! I love hearing this news!!!
8/19 RC CEA 82.6 T3N0M0
5FU/rad 6 wk
IVC 75g 1 1/2 wks before surgery. Continue 2x a week
Surg 1/20 -margins T4bN1a IIIC G2 MSI- 1/20 LN+ LVI+ PNI-
pre cea 24 post 5.9
FOLFOX
7 rds 6-10 CEA 11.4 No more
CEA
7/20 11.1 8.8
8/20 7.8
9/20 8.8, 9, 8.6
10/20 8.1
11/20 8s
12/20 8s-9s
ADAPT++++ chrono
CEA
10/23/22 26.x
12/23/22 22.x
2023
1/5 17.1
1/20 15.9
3/30 14.9
6/12 13.3
8/1 2.1
Nodule RML SUV 1.3 5mm
Rolles 3 of 4 lung nodules cancer
KRAS
Chem-sens test failed Not enough ca cells to test

AmyG
Posts: 371
Joined: Tue Dec 25, 2018 8:08 pm

Re: Another clear CT, again!

Postby AmyG » Wed Jun 10, 2020 2:09 pm

Thanks yall! Just got back from seeing the oncologist and surgeon, everything is just fine! Labs look fantastic, CEA is stable at 2.2.

Colonoscopy will be at the end of July or beginning of August and I don't get another CT until September.

I'm digging this surveillance protocol. :lol:
42 dx @ 9wks pregnant w/baby #8 8/18
Sigmoid colon resection 9/18
Adenocarcinoma, G2, T3N0M0..or so we thought
KRAS/BRAF wild
Liver biopsy is malignant, stage iv now boys!
Delivered healthy baby 3/19
FOLFOX + Avastin 5/19
CEA 167 to 24 after 4 rounds
Liver resection 8/28/19
NED!! CEA 2.3
CEA 5.8 idk wtf is up with that, but everything else is clear!
CEA 3.7 make up your damn mind...
CEA 1.5 that's a new low!

stu
Posts: 1613
Joined: Sat Aug 17, 2013 5:46 pm

Re: Another clear CT, again!

Postby stu » Wed Jun 10, 2020 3:57 pm

Just Brilliant x
supporter to my mum who lives a great life despite a difficult diagnosis
stage4 2009 significant spread to liver
2010 colon /liver resection
chemo following recurrence
73% of liver removed
enjoying life treatment free
2016 lung resection
Oct 2017 nice clear scan . Two lung nodules disappeared
Oct 2018. Another clear scan .

DarknessEmbraced
Posts: 3816
Joined: Sat Nov 01, 2014 4:54 pm
Facebook Username: Riann Fletcher
Location: New Brunswick, Canada

Re: Another clear CT, again!

Postby DarknessEmbraced » Sat Jun 13, 2020 12:02 pm

Congratulations! :D
Diagnosed 10/28/14, age 36
Colon Resection 11/20/14, LAR (no illeo)
Stage 2a colon cancer, T3NOMO
Lymph-vascular invasion undetermined
0/22 lymph nodes
No chemo, no radiation
Clear Colonoscopy 04/29/15
NED 10/20/15
Ischemic Colitis 01/21/16
NED 11/10/16
CT Scan moved up due to high CEA 08/21/17
NED 09/25/17
NED 12/21/18
Clear colonoscopy 09/23/19
Clear 5 year scans 11/21/19- Considered cured! :)

debb
Posts: 191
Joined: Sun Dec 21, 2008 9:03 pm
Location: NJ

Re: Another clear CT, again!

Postby debb » Mon Jun 15, 2020 11:43 am

YAY!!!!!!!!!!!!!
2008, Stage 3C, age 42, mom of 4
Folfox 9/08-2/09
Met to right ovary, both removed 7/10
HIPEC 8/10
VATS 7/12, right lung
10/14 Stivarga clinical trial
3/15-7/15 Folfiri & avastin
8/16 Folfiri & avastin
Break! 10 months of freedom
1/18 - 4/23 many Folfiri & Avastin
6/23 Clinical trial REGN7075. Progression
8/23 radiation to femurs and L4
9/23 rechallenged Folfox. Allergic reaction at 4th infusion
11/23 will start Bot/Bal

User avatar
CRguy
Posts: 10473
Joined: Sun Feb 10, 2008 6:00 pm

Re: Another clear CT, again!

Postby CRguy » Thu Jun 18, 2020 10:30 pm

Unremarkable IS a good thing !!
AmyG wrote:I love having all my insides described as unremarkable. :lol:

BUTT I know how you feel.
I once had a full CT scan done on my head and the Doc reported to me " we found nothing "
SO ..... I told him my wife would probably say the same thing :shock:

Cheers and best wishes :mrgreen:
CRguy
Caregiver x 4
Stage IV A rectal cancer/lung met
17 Year survivor
my life is an ongoing totally randomized UNcontrolled experiment with N=1 !
Review of my Journey so far


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