annieliz wrote:If you live in the NYC area I highly recommend MSK. I am very happy with the treatment I am receiving there. My oncologist is Dr. Geoffrey Ku.
Hope this helps a little. I am happy to answer any other questions you may have.
Thanks Anne. MSK just called back today. I was able to get an appointment next Thursday. It was supposed to be further out but I asked if anything way I can meet w/ the Dr that I was looking to see. They reached out to the Dr to see if he can squeeze me in somewhere and got me in next week! The initial experience so far w/ MSK has been great. Trying to set up an appointment, getting all the paperwork done, follow ups, etc. Customer service 10 out of 10. I hope the rest of the experience stays the same. Once I get more information on what's next, I'll let you know if I have questions.
Cancer is definitely teaching me to have patience. I need to learn how to manage all the waiting since I was told waiting times gets even worse. I feel like every pain, headache, or abnormal feeling I experience, is the cancer is spreading. I know there's not much I can do about it but trying to stay calm and positive is tough...
Actually, I just thought of a question. Have they given you issues meeting w/ a significant other? I've had my wife w/ me for most of the appointments I've had and I've been reading where some places are restricting being accompanied by someone (because of Covid). Has MSK allowed you to have someone w/ you during appointments?
5/13/20 colonoscopy, CT Scan - 5cm tumor found in sigmoid colon, no evidence in other organs, confirmed cancer
5/21/20 colectomy (partial resection) - waiting for staging
6/2/20 Pathology results 7/25 nodes positive Stage 3C T4aN2b
6/25/20 CAPOX 4 rounds CEA 2.5